Early day motion tabled by primary sponsor Lord Wigley (Plaid Cymru), on Tuesday, 4 June 1996, in the House of Commons. It is signed by 55 members in total.

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SPECIAL FAMILIES - SPECIAL NEEDS WEEK

That this House welcomes the initiative of Contact a Family in co-ordinating the Special Families-Special Needs Week 8-14th June to raise awareness of the lives of families caring for children with rare conditions; notes that most rare conditions are known as orphan diseases meaning that treatments, therapies and research may not attract current funding because the conditions affect relatively few families; further notes that the current methods of collecting statistics are haphazard or non-existent, making it difficult to be specific about numbers affected but, as diagnostic techniques improve, known incidence increases; and recognises the difficulties faced by these families in obtaining a diagnosis, learning to care for their children and carry out complex medical procedures as well as incurring additional pressures in accessing relevant information and early access to relevant specialists.

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Secondary information

Type

Early day motion

Reference

938 

Session

1995-96

Subjects

Children

Link

View this Early day motion on www.parliament.uk