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Early day motion tabled by primary sponsor Mark Todd (Labour), on Wednesday, 22 April 1998, in the House of Commons. It is signed by 73 members in total.

MOTOR NEURONE DISEASE AWARENESS WEEK

That this House welcomes the launch of Motor Neurone Disease Awareness Week on 25th April and congratulates the Motor Neurone Disease Association and its 94 branches throughout the UK for its work in caring for people affected by this uniquely rapid terminal disease; notes that there is no cure and no known cause of the disease, from which one person dies in the UK every eight hours; further notes that the association has chosen the theme of Racing Against Time for Awareness Week to reflect the fact that the speed of progression of the disease from diagnosis to death poses a major challenge to health, social service and social security providers; further notes that because of a failure by statutory providers to prioritise MND adequately, people with MND often do not access appropriate support and services rapidly enough; and calls on Her Majesty's Government to take into account the unique nature of motor neurone disease in its health, social service and social security policy reforms and specifically to ensure that MND sufferers in receipt of lifetime awards are not subjected to detailed interview under the Benefit Integrity Project.

Amendments

The Early day motion has received an amendment.

MOTOR NEURONE DISEASE AWARENESS WEEK (1237A1)
The Early day motion has received an amendment sponsored by Nigel Evans (primary, Conservative) and tabled on Wednesday, 20 May 1998. It has been signed by 1 members in total.
at end add 'notes that the news that the funding for the Motor Neurone Disease care facility at Royal Preston Hospital is to be withdrawn which will jeopardise the future of the facility and do enormous damage to the most vulnerable sectors within society; and calls on the Government to re-instate the funding of this internationally recognised facility forthwith.'.

Secondary information

Type
Early day motion
Reference
1237 
1237A1 
Session
1997-98
Other sponsors
Piara S Khabra
Lord Cryer
John Cummings
Barry Gardiner
Howard Stoate
Subjects
Diseases Motor neurone disease Nervous system
Link
View this Early day motion on www.parliament.uk