Early day motion tabled by primary sponsor Lord Lansley (Conservative), on Thursday, 16 September 2004, in the House of Commons. It is signed by 58 members in total.

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ADRENOLEUKODYSTROPHY AWARENESS WEEK, 21ST OCTOBER - 28TH OCTOBER 2004

That this House congratulates the ALDFST, or Adrenoleukodystrophy Family Support Trust, for organising the ALD Awareness Week, taking place this year from 21st until 28th October; notes that the society has been successful over the last decade since it was founded by the parents of an ALD sufferer in August 1993 to help and support ALD sufferers and their families and to raise the public's awareness of this fatal disease; notes the ALD, also known as Addison-Schilder disease, is an hereditary neurological disease affecting almost exclusively males, the most severe form occurring in boys between the ages of four and 10; and congratulates the society's volunteers across the country, who will be organising events throughout the awareness week.

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Secondary information

Type

Early day motion

Reference

1677 

Session

2003-04

Subjects

Campaigns Hereditary diseases Adrenoleukodystrophy

Link

View this Early day motion on www.parliament.uk