Early day motion tabled by primary sponsor Evan Harris (Liberal Democrat), on Thursday, 26 February 2009, in the House of Commons. It is signed by 104 members in total.

---

RARE DISEASE DAY 2009

That this House acknowledges the second Pan-European Rare Disease Day on 28 February 2009, which successfully highlights rare diseases and the challenges faced by patients, carers, healthcare professionals and policy makers, working to ensure the highest quality of services and available treatments are accessible to often isolated and vulnerable people; notes that there are over 6,000 rare conditions identified, affecting more than 3.5 million people in the UK; further notes that 75 per cent. of those with a rare condition are children and 30 per cent. die before the age of five years; welcomes the newly-established campaign Rare Disease UK; and urges the Government to move forward with the European Commission's Communciation to create a National Plan for rare diseases.

---

Secondary information

Type

Early day motion

Reference

914 

Session

2008-09

Other sponsors

Vincent Cable

Ian Gibson

John Bercow

Mark Durkan

Bob Russell

Subjects

Diseases

Link

View this Early day motion on www.parliament.uk