Early day motion tabled by primary sponsor Mike Penning (Conservative), on Monday, 4 June 2018, in the House of Commons. It is signed by 82 members in total.

---

CYSTIC FIBROSIS TRUST CAMPAIGN

That this House commends the efforts of the Cystic Fibrosis Trust in campaigning for access to the precision medicine Orkambi; recognises that the campaign has been ongoing for nearly three years; further recognises the urgency of the situation as every month that passes is critical for people with cystic fibrosis; welcomes the negotiations between the NHS and Vertex; and calls on the Government to urgently intervene to help secure a timely resolution to ensure an agreement is reached that will enable patient access to the drug without further delay.

---

Secondary information

Type

Early day motion

Reference

1327 

Session

2017-19

Other sponsors

Bob Blackman

Jim Cunningham

Robert Halfon

Jim Shannon

David Simpson

Subjects

Health services Diseases

Link

View this Early day motion on www.parliament.uk