Early day motion tabled by primary sponsor Liz Twist (Labour), on Monday, 24 November 2025, in the House of Commons. It is signed by 21 members in total.

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Phenylketonuria awareness and access to treatment (No. 2)

That this House recognises the progress made in improving the care of people with phenylketonuria (PKU), a rare inherited metabolic disorder which prevents the body from properly metabolising phenylalanine; welcomes that many patients have benefitted from access to sapropterin, which has improved quality of life for some individuals living with PKU; notes, however, that significant unmet clinical needs remain, with many patients unable to benefit from existing treatments and still reliant on a highly restrictive diet; further recognises the continuing impact of PKU on patients, carers and families; and highlights the need for access to further innovative treatments and technologies that can improve outcomes and reduce the lifelong burden of PKU.

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Secondary information

Type

Early day motion

Reference

2358 

Session

2024-26

Other sponsors

Wera Hobhouse

Jim Shannon

Brian Mathew

Ann Davies

Vikki Slade

Subjects

Access Health education Medical treatments Phenylketonuria

Link

View this Early day motion on edm.parliament.uk