Early day motion tabled by primary sponsor Danny Chambers (Liberal Democrat), on Monday, 13 July 2026, in the House of Commons. It is signed by 18 members in total.

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Ehlers Danlos Syndrome

That this House commends the tireless campaigning of EDS UK to raise awareness about hypermobile Ehlers Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD); recognises that these multisystem conditions are often undiagnosed for years, leaving patients to suffer a litany of seemingly unconnected symptoms; highlights that this means that those with hEDS/HSD are often left without adequate support or care to manage their symptoms, which can be devastating; underlines that hEDS/HSD ought not be called rare but rather a realistic possibility; celebrates the work of Dr Reinhold in Winchester to develop the RCGP EDS Toolkit which is available worldwide to support medical practitioners to recognise hEDS/HSD earlier; urges the Government to promote this toolkit as a means of raising awareness about EDS; and calls on the Government to meet with EDS UK to discuss next steps.

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Secondary information

Type

Early day motion

Reference

590 

Session

2026-27

Other sponsors

Wera Hobhouse

Helen Morgan

Wendy Chamberlain

Jess Brown-Fuller

Will Forster

Subjects

Ehlers-Danlos syndrome

Link

View this Early day motion on edm.parliament.uk