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The Myelin Project

I present a petition to the House on behalf of the Myelin Project, a national and international organisation supporting the needs of children with a genetic condition whereby their nervous tissue deteriorates, which often leads to an early and untimely death. The petition reads: To the honourable the Commons of the United Kingdom of Great Britain and Northern Ireland in Parliament assembled, 6 Dec 2006 : Column 412 The Humble Petition of Dr. Belle Humphrey, parent, and others of like disposition Sheweth That the Petitioners are parents of terminally ill children from rare hereditary and otherwise terminal (if not detected asymptomatic) Leukodystrophies; or family and friends of said children. Wherefore your Petitioners pray that your honourable House shall urge the Department of Health to introduce Universal Newborn Screening for Leukodystrophies and other like hereditary diseases. And your Petitioners, as in duty bound, will ever pray, &c. To lie upon the Table.