Proceeding contribution from Alan Johnson (Labour) in the House of Commons on Monday, 12 May 2008. It occurred during Debate on bill on Human Fertilisation and Embryology Bill.
Human Fertilisation and Embryology Bill
May I make some progress, please? I have highlighted the elements of the Bill that have attracted the most publicity. However, although they have a lower profile, other clauses contain sensible reforms that will have a more immediate impact. One example can be found in clauses 24 and 25, which amend the restrictions on the use of data collected by the HFEA about fertility treatments. The 1990 Act recognised the importance of maintaining patient privacy and imposed tough restrictions on the use of any information that could identify a patient. Under current legislation, even if at the time of treatment a patient says that he or she is happy for information that may assist identification to be passed to researchers, the HFEA is not permitted to comply. That places severe limits on the use of data collected by the HFEA—data that ultimately could improve the success of fertility treatment and the health and well-being of children conceived as a result of such treatment. Although it is imperative that we support the patient's right to privacy, it is also essential that we enable scientists to make better use of HFEA data, which are a valuable and comprehensive source of information that will lead to better treatment for patients. The Bill would provide a regulation-making power for releasing information to researchers without the patient's consent if that were necessary for the public interest. Any such regulations would be subject to consultation. In the past 18 years, scientists in this country have pioneered medical advances that could not have been anticipated in 1990. The ““unknown and threatening seas”” to which Baroness Warnock referred have been navigated successfully thus far, thanks to the lodestar provided by Parliament, which has allowed scientists to reap the benefits of embryonic stem cell research. Specialist regulation of reproductive technologies and clear legal boundaries have united scientific breakthroughs with public confidence in their development and use. Among other things, that represents a considerable triumph for parliamentary scrutiny and debate. Approximately one in seven UK couples have difficulty conceiving. Assisted reproduction brings happiness and fulfilment to millions of people. Stem cell research has enormous potential to develop new cures for degenerative and other life-threatening diseases. It brings hope to hundreds of thousands of sufferers and their families. This Government believe that we should continue to support such research in order to exploit advances in medical science, but only provided that there are clear safeguards within the ethical and moral framework that Parliament has established with such skill and sensitivity. I commend the Bill to the House.
Secondary information
- Type
- Proceeding contribution
- Reference
- 475 c1072-3
- Session
- 2007-08
- Chamber / Committee
- House of Commons chamber
- Subjects
- Civil partnerships Clones Abortion Blood Fertility Human embryo experiments Diseases Donors Genetics Human Fertilisation and Embryology Authority Ethics IVF Discrimination Foetal tissue NHS Medical treatments Screening Religion Sexuality Research Stem cells Christianity Human-animal hybrid embryos
- Legislation
- Human Fertilisation and Embryology Bill (HL) 2007-08
- Link
- View this Proceeding contribution on www.publications.parliament.uk
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