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Proceeding contribution from Richard Taylor (Independent (affiliation)) in the House of Commons on Monday, 12 May 2008. It occurred during Debate on bill on Human Fertilisation and Embryology Bill.


Human Fertilisation and Embryology Bill

May I first record my support for the establishment of a bioethics committee, as has been suggested by the hon. Member for Bolton, South-East (Dr. Iddon) and many other hon. Members? Like other hon. Members, I have received a lot of letters on these issues. Many have been from those who are against the Bill, but I have also had some very strong ones from people asking me to vote in favour of it. I am not an up-to-date scientist; I bow to the views of the hon. Member for Oxford, West and Abingdon (Dr. Harris). I am speaking as a rather long-retired physician, with my knowledge of patients and of how some of the illnesses in question have affected them. I am speaking on behalf of the patient. People know about the horrors of motor neurone disease. Although a person's intellect remains intact, their body begins to fail around them. Their muscles can be the first to go, or their limbs, followed by swallowing and speaking. Gradually, they lose control of all bodily movements and functions, and eventually they cannot eat, talk or even breathe. This results in anguish for the patient and for their family. There are no effective treatments or cures, and it is even worse than cancer in that, because it is not a painful death, doctors cannot give analgesics to ease the end. It is truly awful, which is why so many motor neurone disease patients wish to die, and go to huge extremes to achieve a legal suicide. We must think of those people. We have seen references to people with Parkinson's disease in The Guardian today, and the hon. Member for Beckenham (Mrs. Lait) also mentioned the condition earlier. It starts with tremor, stiffness and perhaps an immobile face, which can result in the patient beginning to lose their rapport with their friends. At first, drugs help, but the treatment becomes more and more complicated. The patient needs more and more drugs at more and more frequent intervals, and they eventually reach the terrible stage at which the side effects of the drugs, which they cannot get away from, are almost more terrible than the disease. Eventually, the poor patient becomes a total salivating wreck, with intellectual impairment thrown in. Alzheimer's disease was originally described as pre-senile dementia, but the description has now changed to cover senile dementia and atherosclerotic dementia. Its original description covered dementia that affected people who could still be in their 50s, which is unbelievably cruel for a spouse who might still have relatively young children. The family can be completely destroyed. The first thing that happens with any kind of dementia is that all the nice parts of a person's personality go: their personal cleanliness and their recent memory, for example. Eventually, worst of all, they fail to recognise their best beloved. The effect on a family, particularly one with young children, is horrific. Those are just three of the illnesses for which, despite all the advances, we can do very little. So any research that could help, and that could possibly give patients and their families a gleam of hope, must be supported. I respect all Christian views against the Bill, and we have heard from both extremes of the Christian spectrum. I think that there is, however, a middle view. I shall attempt to put forward—with great trepidation, as a lay person—the alternative Christian view, which I view as a middle-of-the-road Christian view. Those of us who attended the funeral of the late hon. Member for Crewe and Nantwich, Mrs. Dunwoody, will remember this prayer:"““As children of a loving heavenly Father, let us ask his forgiveness, for he is gentle and full of compassion””." Then there is the opening of the confession, addressed to ““God of mercy””. Many of us believe in a God who is loving, gentle, compassionate and merciful. If that is the God we believe in, surely we also believe that he would want all efforts to be made to reduce suffering. Returning from faith to fact, I wish to support the comments made about the use of blood from the umbilical cord. It is a completely wasted resource. The Anthony Nolan Trust, already referred to, estimates that 65,000 litres of cord blood are discarded every year. Cord blood is taken after the baby is born, so there is no risk to the baby. It is wasted, yet it can be an excellent source of stem cells. The Anthony Nolan Trust is asking for support because it has the opportunity to establish a cord blood bank that would have a much wider scope for collection and distribution of cord blood than does the current NHS cord blood bank. To conclude, let me say a few words about abortion. Like other hon. Members, I cannot see how it has crept into this Bill. I just wish that it had not, because there is so much of relevance in the Bill that needs careful discussion that I do not think we have the time to debate abortion, which is a wholly separate issue. If the main purpose is to reduce unwanted pregnancies, the Health Committee report into sexually transmitted illnesses of several years ago said categorically that sexual and relationship education in schools should be obligatory and Ofsted inspected. I have not been able to check it today, but I am pretty sure that the Minister who responded for the Government said that that aspect of education would indeed be so inspected. However, I do not think that it has been subject to such inspection yet. Another practical and pragmatic point against dropping the limit from 24 weeks is, I am afraid, one of cost. If we ever reach the stage of debating the rationing of health care in the NHS—I think it is almost inevitable at some time—how would we balance the cost of looking after some of those very tiny premature babies that require intensive treatment for ages against the cost of treatment for cancers, blindness or the diseases that affect patients so badly later in life? I will certainly support Second Reading and I will be very interested to follow the debate on subsequent amendments. I regret that abortion has been brought into the Bill, as it is a matter that deserves attention separately.


Secondary information

Type
Proceeding contribution
Reference
475 c1141-2 
Session
2007-08
Chamber / Committee
House of Commons chamber
Subjects
Civil partnerships Clones Abortion Blood Fertility Human embryo experiments Diseases Donors Genetics Human Fertilisation and Embryology Authority Ethics IVF Discrimination Foetal tissue NHS Medical treatments Screening Religion Sexuality Research Stem cells Christianity Human-animal hybrid embryos
Legislation
Human Fertilisation and Embryology Bill (HL) 2007-08
Link
View this Proceeding contribution on www.publications.parliament.uk