Skip to main content

Written question asked by Greg Mulholland (Liberal Democrat) on Monday, 24 October 2016, in the House of Commons. It was due for an answer on Wednesday, 26 October 2016. It was answered by David Mowat (Conservative) on Monday, 31 October 2016 on behalf of the Department of Health.


Muscular Dystrophy

Question

To ask the Secretary of State for Health, what assessment he has made of the adequacy of care available to treat people with the limb girdle 2b form of Duchenne muscular dystrophy.

Answer

NHS England’s neurosciences services specifications for adults and children set out what providers must have in place to deliver evidence-based, safe and effective care for patients with neuromuscular disorders, including limb girdle 2b. Under the care of a consultant-led multidisciplinary team that includes a range of clinical, specialist and health professionals, patients can receive tailored care and support, access to specialist treatments and supportive therapies. The specifications can be found at the following links:

www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf

www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf


Secondary information

Type
Written question
Reference
49848
Session
2016-17
Subjects
Health services Muscular dystrophy
Link
View this Written question on www.parliament.uk