Written question asked by Lisa Cameron (Scottish National Party) on Monday, 26 April 2021, in the House of Commons. It was due for an answer on Wednesday, 28 April 2021. It was answered by Helen Whately (Conservative) on Wednesday, 28 April 2021 on behalf of the Department of Health and Social Care.

Neurological Diseases: Children

Question: To ask the Secretary of State for Health and Social Care, if he will use the digitisation of the red book from April 2023 to improve data collection on babies and children with (a) cerebral palsy and (b) other neuro disabilities.

Answer: The Personal Child Health Record is constantly under review, overseen by the Royal College of Paediatrics and Child Health. NHS England has advised that there are currently no plans to establish a national register of children with cerebral palsy. NHS England and NHS Improvement will be meeting in due course to consider the recommendations to improve early detection and treatment pathways for cerebral palsy set out in the report, ‘Early identification, intervention and pathways of care of infants and young children with cerebral palsy: The case for reform and investment’, published by the All-Party Parliamentary Group on Cerebral Palsy in March 2021.

Secondary information