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Written question asked by Chris Green (Conservative) on Monday, 16 October 2023, in the House of Commons. It was due for an answer on Wednesday, 18 October 2023. It was answered by Will Quince (Conservative) on Friday, 20 October 2023 on behalf of the Department of Health and Social Care.


Rare Diseases: Drugs

Question

To ask the Secretary of State for Health and Social Care, how many highly specialised technology evaluations of medicines for very rare diseases conducted by the National Institute for Health and Care Excellence resulted in (a) a positive recommendation, (b) an optimised recommendation, (c) a recommendation for managed access, (d) a negative recommendation and (e) termination in each financial year since 2018-19.

Answer

The following table shows a breakdown of technologies appraised through the National Institute for Health and Care Excellence’s highly specialised technology process by financial year from 2018/19:

Financial Year

2018/19

2019/20

2020/21

2021/22

2022/23

Total

Recommended

1

4

2

4

4

15

Optimised

0

0

0

0

1

1

Not recommended

0

0

0

0

0

0

Total

1

4

2

4

5

16

Terminated

0

0

0

0

0

0


Secondary information

Type
Written question
Reference
202780
Session
2022-23
Subjects
Drugs National Institute for Health and Care Excellence Rare diseases
Contains statistics
Yes
Link
View this Written question on www.parliament.uk