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Written question asked by Sarah Bool (Conservative) on Monday, 23 June 2025, in the House of Commons. It was due for an answer on Wednesday, 25 June 2025. It was answered by Ashley Dalton (Labour) on Tuesday, 1 July 2025 on behalf of the Department of Health and Social Care.


Anaemia: Health Services

Question

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that Integrated Care Boards are (a) adequately resourced and (b) trained to commission effective care pathways for patients with aplastic anaemia.

Answer

Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as aplastic anaemia.

The majority of the treatment pathway for aplastic anaemia is an integrated care board commissioning responsibility. Hematopoietic stem cell transplant (HSCT) is an NHS England specialised commissioned service that covers aplastic anaemia, and NHS England has published two national service specifications, one for adults and one for children. The HSCT specifications set out the standards that the providers of the service must meet, which includes access to a range of multidisciplinary staff, including psychological support and nurse specialists trained in communication and counselling.


Secondary information

Type
Written question
Reference
62121
Session
2024-26
Subjects
Health services Anaemia
Link
View this Written question on www.parliament.uk