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Written question asked by Clive Betts (Labour) on Tuesday, 17 March 2026, in the House of Commons. It was due for an answer on Thursday, 19 March 2026. It was answered by Zubir Ahmed (Labour) on Thursday, 19 March 2026 on behalf of the Department of Health and Social Care.


Graft versus Host Disease: Health Services

Question

To ask the Secretary of State for Health and Social Care, whether his Department will a) review the ongoing data collection work of the British Society of Blood and Marrow Transplantation and Cellular Therapy registry and b) work with partners in the space to identify opportunities to support further development of the registry, to drive improvements in care and treatment for patients with graft-vs-host disease.

Answer

The UK Stem Cell Strategic Forum’s 2022 report, A ten-year vision for stem cell transplantation and cellular therapies, set out a number of recommendations for improving data collection for haematopoietic stem cell transplantation and cellular therapy (HSCT-CT) to drive improvements in care and treatment of HSCT-CT patients, including those with graft-vs-host disease. The report is available at the following link:

https://www.nhsbt.nhs.uk/who-we-are/performance-and-strategy/stem-cell-and-advanced-cellular-therapy-strategy/

Following on from the report recommendations, the forum has established a HSCT-CT Data Commission to create an enhanced, accessible, and sustainable data model for UK HSCT-CT data, with collaboration across the British Society of Blood and Marrow Transplantation and Cellular Therapy, the UK Aligned Registry, NHS England and the devolved counterparts, patients, academia, and industry. The Department will consider any proposals made by the commission.

The Department is also exploring how to support the report’s recommendations on data through the extension of the Department’s stem cell programme funding.


Secondary information

Type
Written question
Reference
121280
Session
2024-26
Subjects
Databases Health services British Society of Blood and Marrow Transplantation Graft versus host disease
Link
View this Written question on www.parliament.uk