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Written question asked by Baroness Masham of Ilton (Crossbench) on Monday, 22 January 2018, in the House of Lords. It was due for an answer on Monday, 5 February 2018. It was answered by Lord O'Shaughnessy (Conservative) on Monday, 5 February 2018 on behalf of the Department of Health and Social Care.

Muscular Dystrophy

Question

To ask Her Majesty's Government what assessment they have made of services to monitor and support patients with Duchenne Muscular Dystrophy who are experiencing respiratory decline.

Answer

No specific assessment has been made.

NHS England commissions specialised neurological services from 24 centres at a national level, including some services for patients with neuromuscular disorder such as Duchenne muscular dystrophy. Two service specifications, one for adults and one for children, have been developed by NHS England to set out what these providers must have in place to deliver high quality neurological and neuromuscular care. A requirement for neuromuscular services is that patient clinics ensure they identify those at risk of respiratory problems and refer them for specialist respiratory assessment and monitoring. The specifications set out the breadth of these services and the objectives for their delivery, including clinical assessment and monitoring in respiratory care and respiratory failure. Copies of 2013/14 NHS Standard Contract for Neurosciences: Specialised Neurology (Adult) and 2013/14 NHS Standard Contract for Paediatric Neurosciences: Neurology are attached.

Secondary information

Type
Written question
Reference
HL4940
Session
2017-19
Attachment
Adult Service Specification; Paediatric Service Specification
Subjects
Health services Muscular dystrophy
Link
View this Written question on www.parliament.uk