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To ask the Secretary of State for Health, what steps the Government is taking to improve facilities for people suffering from chronic fatigue syndrome; and if he will make a statement. - Inc figures.

Asked by

Joan Walley (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

11 June 2003

For answer on

13 June 2003

Answered on

13 June 2003

Ms Walley: To ask the Secretary of State for Health what steps the Government is taking to improve facilities for people suffering from chronic fatigue syndrome; and if he will make a statement. [119390] Jacqui Smith: In our response to the independent working group's report on chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME) in January 2002 we endorsed their view that there should be no doubt this is a chronic illness and that health and social care professionals should recognise it as such. On 12 May we announced that funding of £8.5 million would be provided to develop services for people with CFS/ME. In July health organisations will be invited to bid for development funds to set up centres of expertise to develop clinical care, support clinical research and expand education and training programmes for health care professionals and to establish satellite community multidisciplinary teams. The first phase of development will commence in April 2004. We asked the Medical Research Council to develop a research strategy for advancing biomedical and health services research on CFS/ME. The MRC published their research strategy for CFS/ ME on 1 May. The strategy will enable researchers and funders to develop research proposals on all aspects of this illness. It was developed by an independent research advisory group in response to a request from the Chief Medical Officer, and was informed by contributions from patients, carers, charities, researchers and clinicians via a consultation exercise in summer 2002. The MRC has announced two initiatives in response to the strategy. One is a notice to the research community welcoming high quality proposals across the entire spectrum of CFS/ME research. The other is a scientific meeting to discuss the potential to use existing UK resources and infrastructures to undertake epidemiological studies in this country. In May 2003 the MRC announced funding for two trials that will look at the effectiveness of various treatments for CFS/ME. The results of these trials will help patients and their doctors to choose the best treatment. These complementary trials will assess a variety of treatments and in doing so will both help address important issues for those with CFS/ME. The first trial known as PACE (Pacing, Activity and Cognitive behaviour therapy: a randomised Evaluation) will make the first assessment of a treatment choice popular with patients called `Pacing'. The second trial, known as FINE, (Fatigue Intervention by Nurses Evaluation) will test two different treatments that are particularly suited to helping reach those who are too ill to attend a specialist clinic as patients will be treated by nurses in their own homes.

Date

13 June 2003

Reference

119390; 406 c1125-6W;406 c1127-8W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what guidance his Department gives to the NHS about the treatment of ME. - Inc figure.

Asked by

Lord Grayling (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

3 June 2003

For answer on

9 June 2003

Answered on

9 June 2003

Chris Grayling: To ask the Secretary of State for Health what guidance his Department gives to the NHS about the treatment of ME. [117202] Jacqui Smith: We have issued no guidance to the National Health Service on the treatment of patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). We are, however, taking steps to improve services for patients with this condition. On 12 May, we announced funding of £8.5 million that will be used to develop services for people with CFS/ME. In July, health organisations will be invited to bid for development funds to set up centres of expertise to develop clinical care, support clinical research and expand education and training programmes for health care professionals and to establish satellite community multidisciplinary teams. The first phase of development will commence in April 2004. We have issued no guidance to hospital trusts and Primary Care Trusts on the provision of services to patients with CFS/ME. The main Government agency for research into the causes and treatment of disease is the Medical Research Council (MRC), which receives its funding from the Department of Trade and Industry via the Office of Science and Technology. The MRC published a research strategy for CFS/ME on 1 May. The strategy will enable researchers and funders to develop research proposals on all aspects of this illness. It was developed by an independent research advisory group in response to a request from the Chief Medical Officer and was informed by contributions from patients, carers, charities, researchers and clinicians via a consultation exercise in summer 2002. The MRC has announced two initiatives in response to the strategy. One is a notice to the research community welcoming high quality proposals across the entire spectrum of CFS/ME research. The other is a scientific meeting to discuss the potential to use existing UK resources and infrastructures to undertake epidemiological studies in this country. In addition, the MRC announced funding, on 15 May 2003, for two trials that will look at the effectiveness of various treatments for CFS/ME. The results of these trials will help patients and their doctors to choose the best treatment. These complementary trials will assess a variety of treatments and in doing so will both help address important issues for those with CFS/ME. The first trial known as PACE (Pacing, Activity and Cognitive behaviour therapy: a randomised Evaluation) will make the first assessment of a treatment choice popular with patients called `Pacing'. The second trial, known as FINE, (Fatigue Intervention by Nurses Evaluation) will test two different treatments that are particularly suited to helping reach those who are too ill to attend a specialist clinic as patients will be treated by nurses in their own homes.

Date

9 June 2003

Reference

117202; 406 c689-90W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what recommendations have been made by the Chief Medical Officer to treat symptoms of myalgic encephalomyelitis. - Includes figures and ref to 405 c610-1W, 19 May 2003.

Asked by

Anthony Steen (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

3 June 2003

Reference

113797; 406 c369-70W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what plans there are to recruit specialists to whom GPs can refer patients with symptoms of myalgic encephalomyelitis; and if he will make a statement. - (Holding answer 19 May 2003).

Asked by

Anthony Steen (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

13 May 2003

For answer on

3 June 2003

Answered on

3 June 2003

Mr. Steen: To ask the Secretary of State for Health what plans there are to recruit specialists to whom GPs can refer patients with symptoms of myalgic encephalomyelitis; and if he will make a statement. [113798] Jacqui Smith :[holding answer 19 May 2003]: Decisions on the staffing configuration for treating particular patient groups, including those with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ ME), are best made at a local level. We are however, taking steps to improve services for patients with CFS/ME. I announced funding of £8.5 million on 12 May to develop services for people with CFS/ME. The Medical Research Council (MRC) published a research strategy for CFS/ME on 1 May. The strategy will enable researchers and funders to develop research proposals on all aspects of this illness. It was developed by an independent research advisory group in response to a request from the Chief Medical Officer and was informed by contributions from patients, carers, charities, researchers and clinicians via a consultation exercise in summer 2002. The MRC has announced two initiatives in response to the strategy. One is a notice to the research community welcoming high quality proposals across the entire spectrum of CFS/ME research. The other is a scientific meeting to discuss the potential to use existing United Kingdom resources and infrastructures to undertake epidemiological studies in this country. In addition, the MRC has just announced funding, on 15 May 2003, for two trials that will look at the effectiveness of various treatments for CFS/ME. The results of these trials will help patients and their doctors to choose the best treatment. These complementary trials will assess a variety of treatments and in doing so will both help address important issues for those with CFS/ME. The first trial, known as PACE--"Pacing, Activity and Cognitive behaviour therapy: a randomised Evaluation"--will make the first assessment of a treatment choice popular with patients called "Pacing". The second trial, known as FINE--"Fatigue Intervention by Nurses Evaluation"--will test two different treatments that are particularly suited to helping reach those who are too ill to attend a specialist clinic as patients will be treated by nurses in their own homes.

Date

3 June 2003

Reference

113798; 406 c370W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how the funding announced on 12th May for service development for people with myalgic encephalomyelitis and chronic fatigue syndrome will be distributed; what assessment he has made of the level and range of service provision for people with myalgic encephalomyelitis and chronic...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

21 May 2003

Reference

405 c856W; 113655;113534

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will commission a research project into myalgic encephalomyelitis and the (a) suspected causes, (b) the scale of the problem, (c) the treatments available and (d) the number of specialists employed by the NHS to whom GPs can refer patients with...

Asked by

Anthony Steen (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

13 May 2003

For answer on

19 May 2003

Answered on

19 May 2003

Mr. Steen: To ask the Secretary of State for Health if he will commission a research project into myalgic encephalomyelitis and the (a) suspected causes, (b) the scale of the problem, (c) the treatments available and (d) the number of specialists employed by the NHS to whom GPs can refer patients with ME-like symptoms. [113800] Jacqui Smith: The main Government agency for research into the causes and treatment of disease is the Medical Research Council (MRC), which receives its funding from the Department of Trade and Industry via the Office of Science and Technology. The MRC published a research strategy for cnronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) on 1 May. The strategy will enable researchers and funders to develop research proposals on all aspects of this illness. It was developed by an independent research advisory group in response to a request from the Chief Medical Officer, and was informed by contributions from pstients, carers, charities, researchers and clincians via a consultation exercise in summer 2002. The MRC has announced two initiatives in response to the strategy. One is a notice to the research community welcoming high quality proposals across the entire spectrum of CFS/ME research. The other is a scientific meeting to discuss the potential to use existing UK resources and infrastructures to undertake epidemiological studies in this country. In addition, the MRC has just announced funding for two trials that will look at the effectiveness of various treatments for CFS/ ME. The results of these trials will help patients and their doctors to choose the best treatment. These complementary trials will assess a variety of treatments and in doing so will both help address important issues for those with CFS/ME. The first trial known as PACE (Pacing, Activity and Cognitive behaviour therapy a randomised Evaluation) will make the first assessment of a treatment choice popular with patients called `Pacing'. The second trial, known as FINE, (Fatigue Intervention by Nurses Evaluation) will test two different treatments that are particularly suited to helping reach those who are too ill to attend a specialist clinic as patients will be treated by nurses in their own homes.

Date

19 May 2003

Reference

113800; 405 c610-1W;405 c608-9W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what targets he has to increase awareness of myalgic encephalomyelitis; and if he will make a statement; if he will make a statement on regional variations in the incidence of myalgic encephalomyelitis. - Inc figures and ref to the report of the...

Asked by

Vincent Cable (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

19 May 2003

Reference

405 c610W;405 c608W; 113044;113045

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what treatments the NHS provides for patients with ME; and what rehabilitation courses the NHS offers to such patients. - (Holding answer 1 May 2003).

Asked by

Lord Grayling (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

8 May 2003

Reference

110837; 404 c871W;404 c868W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how many myalgic encephalomyelitis/chronic fatigue syndrome sufferers there are in England; how many of them are receiving treatment from the NHS; and if he will make a statement. - Inc figures.

Asked by

Vincent Cable (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

12 February 2003

Reference

97504; 399 c811W;399 c809W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what recent guidance he has issued to hospital trusts and PCTs on the provision of services to myalgic encephalomyelitis/chronic fatigue syndrome sufferers; and if he will make a statement.

Asked by

Vincent Cable (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

12 February 2003

Reference

97505; 399 c811-2W;399 c809-10W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what progress is being made into the biomedical research on chronic fatigue syndrome and ME; and when NICE will provide guidance on management and treatment for patients with ME; when the Medical Research Council will report on their strategy for advancing biomedical...

Asked by

Phil Sawford (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

27 November 2002

Reference

395 c347W; 80421;80424

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what guidance he gives to general practitioners about ME.

Asked by

Lord Grayling (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

24 October 2002

Reference

75976; 391 c503W;391 c502W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, whether his Department categorises ME as a neurological illness.

Asked by

Lord Grayling (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

24 October 2002

Reference

76269; 391 c503W;391 c501-2W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how many specialist centres for ME there are in the UK; if he will make a statement on the care of people with ME in the community. - Including fact that information on local service configuration is not held centrally.

Asked by

Lord Grayling (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

24 October 2002

Reference

391 c503-4W;391 c502W; 75975;75974

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will make a statement on the effects of holistic and complementary therapies in helping patients with myalgic encephalomyelitis.

Asked by

Paul Marsden (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

18 July 2002

Reference

389 c537W;389 c538W; 63143

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what assistance has been given to research into myalgic encephalomyelitis since 1997; what (a) medical, (b) welfare and (c) benefit provisions are made for those suffering from myalgic encephalomyelitis; what plans he has for a comprehensive epidemiological study into myalgic encephalomyelitis. -...

Asked by

Jimmy Wray (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

24 May 2002

Reference

386 c681-3W;386 c681-2W; 56261;56263;56262

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how many myalgic encephalitis specialist neurologists work in the NHS in each region of England. - Inc table.

Asked by

Elfyn Llwyd (Plaid Cymru)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

16 May 2002

For answer on

24 May 2002

Answered on

24 May 2002

Mr. Llwyd: To ask the Secretary of State for Health how many myalgic encephalitis specialist neurologists work in the NHS in each region of England. [58057] Jacqui Smith: Information about myalgic encaphalitis specialist neurologists is not collected. Information about the number of consultant neurologists is shown in the table. Hospital medical consultants within the Neurology specialty by region _________________________________________________________________________________________________. As at 30 September 2001 numbers England 359 Northern and Yorkshire 42 Trent 22 West Midlands 22 North West 40 Eastern 29 London 136 South East 60 South Western 25 _________________________________________________________________________________________________. Source: Department of Health medical and dental workforce census. Notes: Where regions are shown, staff holding appointments in more than one region are included separately in each region. The sum of regional totals therefore differs slightly from the England total and a direct comparison is not advised.

Date

24 May 2002

Reference

58057; 386 c688W;386 c687-8W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will (a) collate, (b) evaluate and (c) disseminate best practice found in NHS trusts offering services for ME sufferers.

Asked by

Bob Blizzard (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

26 March 2002

Reference

41816; 382 c925W;382 c919W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will make a statement on the work of his Department's Working Party on ME/CFS; and when he expects that working party will publish a report. - Inc ref to 5 March 2002, 381 c192W and http://www.doh.gov.uk/cmo/cfsmereport/index.htm.

Asked by

Gordon Marsden (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

12 March 2002

Reference

14708; 381 c996W;381 c998W

House

House of Commons

Westminster Hall adjournment debate on Chronic Fatigue Syndrome

Lead member

Tom Clarke

Answering member

Baroness Smith of Malvern

Department

Department of Health

Type

Adjournment debates

Date

6 February 2002

Reference

379 c304-11WH

House

House of Commons

Librarians' tools

Type

House

Session

Year

Department

Member

Primary member

Answering member

Legislative stage

Legislation

Subject

Publisher