1-13 of 13 results for subject:ME/CFS
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- subject_t:ME/CFS OR subject_t:"Chronic fatigue syndrome" OR subject_t:"Myalgic encephalomyelitis" OR subject_t:"Myalgic encephalopathy" OR subject_ses:9169
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To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of the benefits and dis-benefits of graded exercise therapy for myalgic encephalomyelitis and chronic fatigue syndrome patients.
To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of the benefits and dis-benefits of graded exercise therapy for myalgic encephalomyelitis and chronic fatigue syndrome patients.
The Department has made no assessment. The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based guidance for the health and care system. NICE published its updated guideline on the diagnosis and management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on 29 October. The updated guideline does not recommend the use of graded exercise therapy in the management of ME/CFS. NICE’s full guidance is available at the following link:
https://www.nice.org.uk/guidance/ng206
NICE’s guideline describe best practice and should be taken fully into account in the care and treatment of individual patients. However, it is not mandatory and do not override a medical practitioner’s clinical judgement.
To ask the Secretary of State for Health and Social Care, what steps he plans to take to ensure that medical practitioners cease to recommend graded exercise therapy to myalgic encephalomyelitis and chronic fatigue syndrome patients following the publication of the updated NICE guidelines on myalgic encephalomyelitis and chronic fatigue...
To ask the Secretary of State for Health and Social Care, what steps he plans to take to ensure that medical practitioners cease to recommend graded exercise therapy to myalgic encephalomyelitis and chronic fatigue syndrome patients following the publication of the updated NICE guidelines on myalgic encephalomyelitis and chronic fatigue...
The Department has made no assessment. The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based guidance for the health and care system. NICE published its updated guideline on the diagnosis and management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) on 29 October. The updated guideline does not recommend the use of graded exercise therapy in the management of ME/CFS. NICE’s full guidance is available at the following link:
https://www.nice.org.uk/guidance/ng206
NICE’s guideline describe best practice and should be taken fully into account in the care and treatment of individual patients. However, it is not mandatory and do not override a medical practitioner’s clinical judgement.
To ask the Secretary of State for Health and Social Care, whether he plans to put in place a new reporting system to enable myalgic encephalomyelitis and chronic fatigue syndrome patients to report harms resulting from graded exercise therapy following the publication of the updated NICE guidelines on myalgic encephalomyelitis...
To ask the Secretary of State for Health and Social Care, whether he plans to put in place a new reporting system to enable myalgic encephalomyelitis and chronic fatigue syndrome patients to report harms resulting from graded exercise therapy following the publication of the updated NICE guidelines on myalgic encephalomyelitis...
There are no plans to put in place a new reporting system to enable myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS) patients to report harms resulting from graded exercise therapy. The National Institute for Health and Care Excellence’s updated guideline does not recommend the use of graded exercise therapy in the management of ME/CFS and clinicians are expected to take this recommendation fully into account in the care and treatment of individual patients.
All patients have the right to make a complaint about any aspect of National Health Service care, treatment or service, and this is firmly written into the NHS Constitution. Most hospitals have a Patient Advice and Liaison Service which can be contacted if there is a problem with the treatment or care received while in hospital.
To ask the Secretary of State for Health and Social Care, if he will make it his policy to ensure that NICE publishes the ME/CFS Guidelines in their current form to help prevent harm from Graded Exercise Therapy.
To ask the Secretary of State for Health and Social Care, if he will make it his policy to ensure that NICE publishes the ME/CFS Guidelines in their current form to help prevent harm from Graded Exercise Therapy.
The National Institute for Health and Care Excellence (NICE) is an independent body and is responsible for publishing its final guidance. NICE issued a statement on 20 October stating that it will publish its updated guideline on myalgic encephalomyelitis/chronic fatigue syndrome following a meeting of its guidance executive on 26 October.
To ask the Secretary of State for Health and Social Care, what recent discussions he has had with NICE on the timeline for the publication of clinical guidelines on myalgic encephalomyelitis and chronic fatigue syndrome.
To ask the Secretary of State for Health and Social Care, what recent discussions he has had with NICE on the timeline for the publication of clinical guidelines on myalgic encephalomyelitis and chronic fatigue syndrome.
The National Institute for Health and Care Excellence (NICE) is an independent body and is responsible for developing its guidelines in line with its established methods and processes. NICE the Department regarding its publication of an updated guideline on chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). NICE now plans to host a roundtable event in October to determine how it can gain support for the guideline to ensure effective implementation.
Services for CFS/ME are commissioned locally by clinical commissioning groups to plan the provision of services subject to local prioritisation and funding. NICE’s existing guideline on CFS/ME provides guidance on diagnosing and managing the condition. Health and care professionals should continue to take this into account until the updated guideline is published.
To ask the Secretary of State for Health and Social Care, what support his Department is providing to people with myalgic encephomyelitis and chronic fatigue syndrome pending the publication of updated clinical guidelines for that condition.
To ask the Secretary of State for Health and Social Care, what support his Department is providing to people with myalgic encephomyelitis and chronic fatigue syndrome pending the publication of updated clinical guidelines for that condition.
The National Institute for Health and Care Excellence (NICE) is an independent body and is responsible for developing its guidelines in line with its established methods and processes. NICE the Department regarding its publication of an updated guideline on chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). NICE now plans to host a roundtable event in October to determine how it can gain support for the guideline to ensure effective implementation.
Services for CFS/ME are commissioned locally by clinical commissioning groups to plan the provision of services subject to local prioritisation and funding. NICE’s existing guideline on CFS/ME provides guidance on diagnosing and managing the condition. Health and care professionals should continue to take this into account until the updated guideline is published.
To ask the Secretary of State for Health and Social Care, how much Government funding has been provided to ME research in each of the last three years.
To ask the Secretary of State for Health and Social Care, how much Government funding has been provided to ME research in each of the last three years.
The following table shows the funding for research into myalgic encephalomyelitis through the National Institute for Health Research and UK Research and Innovation in the last three years.
Financial Year | £ |
2018-19 | £862,212 |
2019-20 | £691,516 |
2020-21 | £907,848 |
To ask the Secretary of State for Health and Social Care, whether he has made a recent assessment of the potential merits of increasing funding for research into ME and Chronic Fatigue Syndrome.
To ask the Secretary of State for Health and Social Care, whether he has made a recent assessment of the potential merits of increasing funding for research into ME and Chronic Fatigue Syndrome.
The Government invests in health research through the National Institute for Health Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. The NIHR and MRC both welcome high-quality applications for research into all aspects of myalgic encephalomyelitis (ME), otherwise known as chronic fatigue syndrome (CFS). No assessment has been made of the merits of increasing funding for research into ME/CFS. While it is not usual practice for the NIHR and MRC to ring-fence funds for particular topics or conditions, the MRC has had a cross-board highlight notice on CFS/ME open since 2003.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that clinical studies for (a) ME, chronic fatigue syndrome and (b) long-covid are conducted using appropriate outcome criteria.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that clinical studies for (a) ME, chronic fatigue syndrome and (b) long-covid are conducted using appropriate outcome criteria.
The National Institute for Health Research (NIHR) and UK Research and Innovation (UKRI) have invested in research into myalgic encephalomyelitis, chronic fatigue syndrome and ‘long’ COVID-19. All research commissioned by the NIHR and UKRI is subject to robust peer review processes to ensure that all the studies funded use appropriate outcome criteria to assess and measure their impact.
To ask the Secretary of State for Health and Social Care, whether his Department has commissioned research into the lightning process for people who have myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS).
To ask the Secretary of State for Health and Social Care, whether his Department has commissioned research into the lightning process for people who have myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS).
The Department funds research through the National Institute for Health Research (NIHR). The NIHR has not funded specific research into the lightening process for people with myalgic encephalomyelitis or chronic fatigue syndrome.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
The Department funds research through the National Institute for Health Research (NIHR). In 2020, the NIHR and the Medical Research Council, through UK Research and Innovation, came together to fund the world’s largest genome-wide association study of myalgic encephalomyelitis (ME), sometimes referred to as Chronic Fatigue Syndrome (CFS). This £3.2 million study, ‘DecodeME’, will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. DecodeME is a partnership between biomedical scientists at the University of Edinburgh and ME/CFS charities and people with lived experience of ME/CFS. It is hoped that the outcomes of this study will aid the development of diagnostic tests and targeted treatments.
To ask the Secretary of State for Health and Social Care, if will he make an assessment of the potential merits of reclassifying (a) myalgic encephalomyelitis and (b) chronic fatigue syndrome as a disability.
To ask the Secretary of State for Health and Social Care, if will he make an assessment of the potential merits of reclassifying (a) myalgic encephalomyelitis and (b) chronic fatigue syndrome as a disability.
The Department, NHS England and NHS Improvement accept the World Health Organization’s classification of chronic fatigue syndrome/myalgic encephalomyelitis as a neurological condition of unknown origin, and therefore health and social care professionals are expected to manage it as such.
To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with myalgic encephalomyelitis/ CFS by (a) age and (b) gender in each of the last five years.
To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with myalgic encephalomyelitis/ CFS by (a) age and (b) gender in each of the last five years.
This data is not held in the format requested.