1-4 of 4 results for subject:"Muscular dystrophy"
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When he expects NHS England to reach a decision on access to Translarna for the treatment of Duchenne muscular dystrophy; and if he will make a statement.
When he expects NHS England to reach a decision on access to Translarna for the treatment of Duchenne muscular dystrophy; and if he will make a statement.
Is the Minister aware of the case of my constituent, little George Pegg? At one time he could not walk, but this drug has made his life 100% better and he can now walk. Why are we dithering? This has been going on for at least a year, so why don’t you get off that backside of yours and get it approved?
Is the Minister aware of the case of my constituent, little George Pegg? At one time he could not walk, but this drug has made his life 100% better and he can now walk. Why are we dithering? This has been going on for at least a year, so why don’t you get off that backside of yours and get it approved?
I thank the hon. Gentleman for his question. In relation to posteriors, it is good to see his in its rightful place. I have heard of his constituent’s case, which is as distressing as that of Jagger and of all those suffering from Duchenne muscular dystrophy. It is a terrible disease that causes lasting pain to the sufferers and their families. That is precisely why we are pushing hard for a decision from NHS England by the end of this month—it could not have come as quick as he had hoped—and for interim NICE guidance by the end of this year. I am pushing officials to move as quickly as they can on this.
That this House congratulates the organisers of the Race Against Time campaign in their continuing fight to find a cure for Duchenne's Muscular Dystrophy, a genetic severe muscle wasting disease from which on average two young people die every week in the UK; congratulates the Medical Research Council for its recent grant of ??600,000 which has extended the clinical trials; notes with concern that this and similar grants have fallen a long way short of the real costs of the trials and that it is probable that unless further funds are found vital research and development is likely to stop in September 2006; and calls on the Government to use some of the funding identified in the review of Government spending on health research as announced by the Chancellor in this year's budget to close this funding gap and provide the facility to allow further experimental research and clinical trials for a cure or treatment for Duchenne's Muscular Dystrophy.
That this House congratulates the organisers of the Race Against Time campaign in their continuing fight to find a cure for Duchenne's Muscular Dystrophy, a genetic severe muscle wasting disease from which on average two young people die every week in the UK; congratulates the Medical Research Council for its...
That this House congratulates Danny Smith, a teacher at Ryton Comprehensive School on Tyneside, for his ongoing work to raise both awareness and funds in the campaign to defeat the disease Duchennes muscular dystrophy (DMD); notes that Danny's son Sam suffers from the disease and he, like hundreds of other young males, faces a worrying future; applauds the decision of organisers of the Blaydon Races to nominate DMD as its charitable beneficiary around this year's race and festival; further notes that to date Mr Smith has raised over ??85,000 and that he hopes to boost that amount by running in the Blaydon Race; and urges the Department of Health to support and finance research into the disease in order to offer hope to the hundreds of young boys who face life in a wheelchair and death in their teens.
That this House congratulates Danny Smith, a teacher at Ryton Comprehensive School on Tyneside, for his ongoing work to raise both awareness and funds in the campaign to defeat the disease Duchennes muscular dystrophy (DMD); notes that Danny's son Sam suffers from the disease and he, like hundreds of other...