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What is the protocol and what are the criteria for selecting studies for consideration in the systematic review as reported in paragraph 2 of Briefing No. 4 of the Chief Medical Officers Working Group on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis; who is compiling the information; who advised the reviewers on studies...

Asked by

Countess of Mar (Crossbench)

Type

Written questions

Status

Answered

Date

27 October 1999

Reference

606 c31WA; HL 4344

House

House of Lords

Dept of Social Security

Answered by

Hugh Bayley (Labour)

Answering body

Department of Social Security

Type

Oral answers to questions

Date

25 October 1999

Reference

336 c691-2

House

House of Commons

Dept of Social Security

To ask the Secretary of State for Social Security, What progress he has made in devising a replacement for the All Work Test.

Asked by

Bob Blizzard (Labour)

Answering body

Department of Social Security

Oral questions - Lead

Status

Answered

Date

25 October 1999

Reference

336 c691-2; 93760

House

House of Commons

Dept of Social Security

To ask the Secretary of State for Social Security, what arrangements are made to take account of ME sufferers in estimating capacity to work in the All Work Test for invalidity benefit; what changes will be made on the introduction of the new test; and if he will make a...

Asked by

Andrew Love (Labour; Co-operative Party)

Answering body

Department of Social Security

Type

Written questions

Status

Answered

Tabled on

23 July 1999

For answer on

27 July 1999

Answered on

27 July 1999

Mr. Love: To ask the Secretary of State for Social Security what arrangements are made to take account of ME sufferers in estimating capacity to work in the All Work Test for invalidity benefit; what changes will be made on the introduction of the new test; and if he will make a statement. [93550] Mr. Bayley: The All Work Test is an objective test of the effects of illness or disability on functional capacity, which assesses whether a person reaches the level of incapacity at which they are not required to work, or seek work, as a condition for receiving social security benefits. Full account is taken of factors such as pain, fatigue and the ability to repeat an activity reliably and safely. Doctors and decision makers are required to look at what a person is able to do over a period of time, not just at the time of a medical examination. ME, also known as Chronic Fatigue Syndrome or post viral fatigue disease, is a complex and widely variable condition and each case needs to be assessed on individual findings. The Department's Chief Medical Adviser issues guidance to examining doctors and ensures that guidance and training is reviewed in the light of the latest developments in the understanding of ME. The Welfare Reform and Pensions Bill replaces the All Work Test with the Personal Capability Assessment. The criteria for entitlement to benefit, and the way in which entitlement decisions are reached, will not change but the new assessment will also provide information on what individuals are able to do despite their illness or disability and medical advice on practical measures which might help them return to work. For conditions such as ME, this will include information about, for example, the ability to sustain activities and the effects of stress and of fluctuation in the condition.

Date

27 July 1999

Reference

336 c302-3W; 93550

House

House of Commons

Dept of Social Security

To ask the Secretary of State for Social Security, if he will arrange for figures to be provided in future for the numbers of people who suffer from myalgic encephalomyelitis as a separate category when collecting statistics on benefits.

Asked by

Donald Gorrie (Liberal Democrat)

Answering body

Department of Social Security

Type

Written questions

Status

Answered

Date

1 July 1999

Reference

88594; 334 c242W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will make a statement on progress made by the working group on ME.

Asked by

Paul Marsden (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

24 June 1999

Reference

87872; 333 c435W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will make it his policy to commission research into the causes of ME and the development of appropriate diagnostic procedure. - (Holding answer 18 May 1999).

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

26 May 1999

Reference

84574; 332 c154W

House

House of Commons

Dept of Social Security

To ask the Secretary of State for Social Security, what plans he has to review the guidance issued to adjudicators and BAMS doctors on the assessment of people diagnosed as suffering from ME.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Social Security

Type

Written questions

Status

Answered

Date

18 May 1999

Reference

84542; 331 c309-10W

House

House of Commons

Wednesday adjournment debate on myalgic encephalomyelitis

Wednesday adjournment debate on myalgic encephalomyelitis.

Lead member

Anthony D Wright

Answering member

Baroness Jowell

Department

Department of Health

Type

Adjournment debates

Date

12 May 1999

Reference

331 c256-76

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what studies his Department has (i) commissioned and (ii) evaluated on sufferers from chronic fatigue syndrome/myalgic encephalitis, with particular reference to the proportion who eventually return to (a) full-time employment and (b) part-time employment.

Asked by

Fraser Kemp (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

4 May 1999

Reference

82653; 330 c358W;330 c352W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what proposals he is assessing on specialist support for CFS/ME (a) nationally and (b) in the Northern Region.

Asked by

Fraser Kemp (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

30 March 1999

Reference

78484; 328 c653W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what plans he has to commission a national epidemiological study into chronic fatigue syndrome/ME.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

22 March 1999

Reference

77854; 328 c4W

House

House of Commons

Dept of Social Security

To ask the Secretary of State for Social Security, if he will estimate the number of myalgic encephalitis sufferers who (a) were in receipt of disability living allowance, (b) were appealing against being turned down for disability living allowance or having it withdrawn and (c) had successfully appealed against a...

Asked by

Tom Levitt (Labour)

Answering body

Department of Social Security

Type

Written questions

Status

Answered

Tabled on

9 March 1999

For answer on

16 March 1999

Answered on

16 March 1999

Mr. Levitt: To ask the Secretary of State for Social Security if he will estimate the number of myalgic encephalitis sufferers who (a) were in receipt of disability living allowance, (b) were appealing against being turned down for disability living allowance or having it withdrawn and (c) had successfully appealed against a decision to refuse payment of disability living allowance at the latest date for which figures are available. [76222] Mr. Bayley: Figures are not available in the form requested. The available information for a wider group of people, those with Chronic Fatigue Syndromes including myalgic encephalomyelitis and post viral conditions, is in the table. People claiming Disability Living Allowance whose main disabling condition is chronic fatigue syndrome _________________________________________________________________________________________________. Number People in receipt of benefit at 31 August 1998 8,900 First awards of benefit between 1 April 1992 and 31 August 1998 All first awards 10,300 awards on initial claim 6,500 awards resulting from review 2,600 awards resulting from appeal 1,300 _________________________________________________________________________________________________. Notes: 1. People for whom myalgic encephalitis is not their main disabling condition may also receive Disability Living Allowance 2. Figures do not sum owing to rounding Source: Analytical Services Division: 5 per cent. data

Date

16 March 1999

Reference

76222; 327 c623-4W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what assessment he has made of (i) the availability of services within the NHS for sufferers of ME/CFS and (ii) the adequacy of the present arrangements for commissioning social services.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

15 March 1999

Reference

76475; 327 c557-8W

House

House of Commons

Scottish Office

To ask the Secretary of State for Scotland, if he will list the specialist units which provide services to chronic fatigue syndrome/ME patients in Scotland. - Inc fact that information not available in the form requested.

Asked by

Andy Reed (Labour; Co-operative Party)

Answering body

Scottish Office

Type

Written questions

Status

Answered

Date

15 February 1999

Reference

325 c462W;325 c464W; 70164

House

House of Commons

Welsh Office

To ask the Secretary of State for Wales, if he will list the specialist units which provide services to chronic fatigue syndrome/ME patients in Wales.

Asked by

Andy Reed (Labour; Co-operative Party)

Answering body

Welsh Office

Type

Written questions

Status

Answered

Date

11 February 1999

Reference

70165; 325 c393-4W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what plans he has to increase the number of specialist chronic fatigue syndrome/ME units for (a) children and (b) adults; how many people are currently on the waiting lists for specialist chronic fatigue syndrome/ME units; if he will list the specialist units...

Asked by

Andy Reed (Labour; Co-operative Party)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

11 February 1999

Reference

325 c345-6W; 70163;70162;70161

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what progress he has made in promoting awareness and understanding of chronic fatigue syndrome/ME among (a) health professionals and (b) the general public; and if he will make a statement.

Asked by

Andy Reed (Labour; Co-operative Party)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

10 February 1999

Reference

70160; 325 c221W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will make a statement on the work programme of the working group on myalgic encephalomyelitis, and its timescale. - Ref to 324 c774-5W.

Asked by

Paul Marsden (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

10 February 1999

Reference

70255; 325 c221W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will estimate the number of people in Britain diagnosed as suffering with chronic fatigue syndrome; and how many are receiving, or have received, specialist treatment for their condition. - Inc table and fact that information not available in the form...

Asked by

Phil Sawford (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

19 January 1999

For answer on

8 February 1999

Answered on

8 February 1999

Mr. Sawford: To ask the Secretary of State for Health if he will estimate the number of people in Britain diagnosed as suffering with chronic fatigue syndrome; and how many are receiving, or have received, specialist treatment for their condition. [67010] Ms Jowell: The information is not available in the form requested. A number of definitions, disease descriptions or diagnostic criteria have been proposed to describe chronic fatigue syndrome/myalgic encephalomyelitis. However, there is no general agreement as to which should be used. This makes the results from studies on the prevalence of CFS/ME difficult to interpret and there is no agreement on the incidence of the illness. There is no information available on outpatient appointments. However, figures for CFS/ME for ordinary admissions and daycases in NHS trusts in England, for financial years 1995-96 to 1997-98 are shown in the table. The National Health Service provides a considerable number of services to which sufferers from CFS/ME have access, because of the wide range of symptoms people with CFS/ME can experience they are seen within a wide range of hospital specialties. Under the present system it is for health authorities and general practitioners to plan and arrange the services available to people in their care, following an assessment of their needs. Chronic Fatigue Syndrome _________________________________________________________________________________________________. Year FCEs 1995-96 705 1996-97{1} 600 1997-98{1} 650 _________________________________________________________________________________________________. {1} Figures for 1996-97, 1997-98 are provisional, no adjustments have yet been made for shortfalls in data (i.e. the data are ungrossed) Notes: 1. Ordinary admissions and daycases combined--finished consultant episodes (FCEs) by primary diagnochronic/post viral fatigue syndrome in NHS trusts in England. 2. ICD1 10 code used is G93.3. 3. An FCE represents a complete period of inpatient treatment under the care of an individual hospital consultant and in about 95 per cent. of cases represent a complete spell in hospital. Source: Department of Health, Hospital Episode Statistics

Date

8 February 1999

Reference

67010; 325 c115W

House

House of Commons

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