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To ask the Secretary of State for Work and Pensions, what recent discussions he has had with officials from the Department of Health on the clinical definition of myalgic encephalitis.

Asked by

David Leslie Taylor (Labour; Co-operative Party)

Answering body

Department for Work and Pensions

Type

Written questions

Status

Answered

Date

18 November 2004

Reference

199274; 426 c1881-2W;426 c1886W

House

House of Commons

Sainsbury of Turville, Lord

Whether they will give an assurance that patients who are to take part in the Medical Research Council PACE trials on chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME), and fibromyalgia (FM), or who are to be referred to any of the centres for CFS, ME or FM, will not as...

Asked by

Countess of Mar (Crossbench)

Type

Written questions

Status

Answered

Date

18 November 2004

Reference

666 c211-3WA; HL 4829;HL 4830

House

House of Lords

Dept of Health

To ask the Secretary of State for Health, what recent discussions he has had with the Chief Medical Officer on (a) the clinical definition of and (b) the available treatments for sufferers of myalgic encephalitis.

Asked by

David Leslie Taylor (Labour; Co-operative Party)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

18 November 2004

Reference

199290; 426 c1971W;426 c1977W

House

House of Commons

Dept for Transport

To ask the Secretary of State for Transport, what advice was taken from the Department of Health on the status of myalgic encephalitis sufferers when formulating the eligibility criteria for the Blue Badge scheme; how many of those people in England eligible for a Blue Badge are suffering from myalgic...

Asked by

David Leslie Taylor (Labour; Co-operative Party)

Answering body

Department for Transport

Type

Written questions

Status

Answered

Date

18 November 2004

Reference

426 c1848-9W;426 c1852-3W; 199273;199291

House

House of Commons

Hollis of Heigham, Baroness

Whether it is their intention that people in receipt of incapacity benefit for chronic fatigue syndrome/myalgic encephalomyelitis and who are in the care of a general practitioner or consultant should be obliged to undergo any type of rehabilitation treatment as a condition for their continued receipt of the benefit. [HL...

Asked by

Countess of Mar (Crossbench)

Type

Written questions

Status

Answered

Date

26 October 2004

Reference

HL 4442; 665 c114-5WA

House

House of Lords

Dept of Health

To ask the Secretary of State for Health, what the prevalence is of myalgic encephalomyelitis/chronic fatigue syndrome in England; and how much was spent on research into these illnesses in 2003-04.

Asked by

Richard Taylor (Independent (affiliation))

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

14 September 2004

For answer on

4 October 2004

Answered on

4 October 2004

Dr. Richard Taylor: To ask the Secretary of State for Health what the prevalence is of myalgic encephalomyelitis/chronic fatigue syndrome in England; and how much was spent on research into these illnesses in 2003-04. [189455] Dr. Ladyman: The Department does not undertake special data collection exercises for specific diseases, conditions, syndromes or injuries. Central monitoring and reporting is concentrated on the information needed to demonstrate progress against the targets set out in "National Standards, Local Action: Health and Social Care Standards and Planning Framework 2005/ 06-2007/08" published by the Department on 21 July 2004; and for contractual purposes. Additional monitoring is kept to a minimum in favour of local performance management systems, exception reporting and independent inspections and does not include cases of myalgic encephalomyelitis or chronic fatigue syndrome (CFS/ME). The main agency through which the Government support medical and clinical research is the Medical Research Council (MRC). The MRC is an independent body funded by the Department of Trade and Industry via the Office of Science and Technology. The MRC, with the Department, is funding two complementary trials into various treatments options for CFS/ME for which a total of £4.2 million has been allocated. The trials were announced in 2003 and patient recruitment will start later this year. The Department, through the National Health Service Research and Development programme, is also funding a £75,000 trial entitled "Cognitive behavioural therapy in chronic fatigue syndrome: A randomised controlled trial of an outpatient group programme". Over 75 per cent. of the Department's total expenditure on health research is devolved to and managed by NHS organisations. Details of individual projects, including some concerned with myalgic encephalomyelitis, can be found on the national research register at www.dh.gov.uk/research.

Date

4 October 2004

Reference

424 c1986-7W;424 c1984-5W; 189455

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how much money the Government has invested in the study of myalgic encephalomyelitis since 1997; how much money the Government plans to invest in the study of myalgic encephalomyelitis over the next five years. - Inc table and ref to www.dh.gov.uk/research.

Asked by

Andrew Rosindell (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

9 September 2004

Reference

424 c1354-5W;424 c1358-9W; 186833;186835

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what access (a) primary care trusts and (b) NHS trusts who failed to secure local multi-disciplinary team status for chronic fatigue syndrome/myalgic encephalomyelitis services within their zone have to these services; and if he will make a statement; what plans he has...

Asked by

Peter L Pike (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

21 July 2004

For answer on

9 September 2004

Answered on

9 September 2004

Mr. Pike: To ask the Secretary of State for Health (1) what access (a) primary care trusts and (b) NHS trusts who failed to secure local multi-disciplinary team status for chronic fatigue syndrome/myalgic encephalomyelitis services within their zone have to these services; and if he will make a statement; [186743] (2) what plans he has to extend specialist services and local multi-disciplinary teams for people with chronic fatigue syndrome/myalgic encephalomyelitis to other areas; and if he will make a statement. [186746] Dr. Ladyman: A central budget of £8.5 million for chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) services runs from 2004 to 2006 and is intended to pump prime service development and start developing clinical services where none previously exist. In addition to providing this extra funding, we have also asked the National Institute for Clinical Excellence to develop guidelines for the diagnosis and management of CFS/ME. We have invested heavily in improving national health service services. Up to 2003-04, expenditure on the NHS has increased by an average of 6.2 per cent. in real terms each year since this Government came to power. NHS expenditure is set to further increase by an average of 7.2 per cent. in real terms over the five year period 2003-04 to 2007-08. Over three years, this will take the total spent on the NHS in England from £69 billion in 2004-05 to £92 billion in 2007-08. It is the responsibility of primary care trusts to decide how to use this extra funding to meet the needs of their populations, including those with CFS/ME.

Date

9 September 2004

Reference

424 c1349-50W;424 c1358W; 186743;186746

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, where chronic fatigue syndrome/myalgic encephalomyelitis-diagnosed patients (a) in Burnley, (b) within the Burnley, Pendle and Rossendale Primary Care Trust and (c) within the East Lancashire NHS Trust receive treatment; what the furthest distance an individual in these areas has to travel to...

Asked by

Peter L Pike (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

7 September 2004

Reference

424 c1071W; 186741

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what representations he has received from (a) chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) sufferers in Burnley, (b) CFS/ME sufferers within the Burnley, Pendle and Rossendale Primary Care Trust and (c) CFS/ME sufferers within the East Lancashire NHS Trust, (d) Burnley, Pendle and Rossendale...

Asked by

Peter L Pike (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

7 September 2004

Reference

424 c1071W; 186742

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what provision (a) East Lancashire NHS Trust and (b) Burnley, Pendle and Rossendale Primary Care Trust have for chronic fatigue syndrome/myalgic encephalomyelitis services; what specific funding they receive to deliver these services; and if he will make a statement; what referral mechanisms...

Asked by

Peter L Pike (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

7 September 2004

Reference

424 c1071-2W; 186744;186745

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how many people are diagnosed with chronic fatigue syndrome/myalgic encephalomyelitis (a) in Burnley, (b) within the Burnley, Pendle and Rossendale Primary Care Trust and (c) within the East Lancashire NHS Trust; and if he will make a statement.

Asked by

Peter L Pike (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

7 September 2004

Reference

424 c1071W; 186740

House

House of Commons

Observations by the Secretary of State for Health on the petition of 21 July from Action for ME for legislation to provide a cross-government response to ME (myalgic encephalomyelitis) and for a fully funded research programme. (Circulated with the Vote for 9 September)

Lead member

Lord Reid of Cardowan

Type

Observations on petitions

Date

7 September 2004

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what assessment has been made of the availability through the NHS of respite care for sufferers of myalgic encephalomyelitis (ME); what comparative assessment has been made of the level of respite care available in different regions; how much funding has been allocated...

Asked by

Lord Jones of Cheltenham (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

1 September 2004

Reference

424 c911-2W;424 c912W; 185615

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what research into myalgic encephalomyelitis/chronic fatigue syndrome his Department (a) is conducting and (b) has commissioned since 1997.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

13 July 2004

For answer on

22 July 2004

Answered on

22 July 2004

Mr. Burstow: To ask the Secretary of State for Health what research into myalgic encephalomyelitis/chronic fatigue syndrome his Department (a) is conducting and (b) has commissioned since 1997. [184515] Ms Rosie Winterton: The main agency through which the Government support medical and clinical research is the Medical Research Council (MRC). The MRC is an independent body, funded by the Department of Trade and Industry via the Office of Science and Technology. The MRC is currently funding two complementary trials into various treatments options for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) that aim to improve quality of life for those who are ill. The Department is meeting part of the cost of the trials. Patient recruitment will start later this year. The first trial is known as pacing, activity and cognitive behaviour therapy: a randomised evaluation (PACE). PACE will be led by Dr. Peter White at St. Bartholomew's Hospital in London, Dr. Michael Sharpe of the University of Edinburgh and Dr. Trudie Chalder of King's College London. The second trial, known as fatigue intervention by nurses evaluation (FINE), will test two different treatments that are particularly suited to those who are too ill to attend a specialist clinic. FINE will be headed by Dr. Alison Wearden at the University of Manchester. The MRC also funded a research project: "The role of Noradrenaline in the Neuropsychological Pathogenesis of the Chronic Fatigue Syndrome", which was completed in 1998. The Department has separately over the last seven years commissioned a number of small scale research projects related to aspects of CFS/ME and, through the national health service research and development programme, is funding: "Cognitive Behavioural Therapy in Chronic Fatigue Syndrome: A Randomised Controlled Trial of an Out-patient Group Programme."

Date

22 July 2004

Reference

184515; 424 c634-5W;424 c635W

House

House of Commons

Untitled Paper petition

Public petition from Action for ME for legislation to provide a cross-government response to ME (myalgic encephalomyelitis) and for a fully funded research programme. (Circulated with the Vote 22 July 2004)

Lead member

Anthony D Wright

Type

Paper petitions

Date

21 July 2004

Reference

424 c455

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what the implications are for current NHS practice of the World Health Organisation's re-classification of myalgic encephalomyelitis/chronic fatigue syndrome as a neurological disorder.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

20 July 2004

Reference

184514; 424 c167W;424 c167-8W

House

House of Commons

Northern Ireland Office

To ask the Secretary of State for Northern Ireland, what plans he has to establish a specialist clinic for myalgic encephalomyelitis sufferers in Northern Ireland; and if he will make a statement.

Asked by

Lady Hermon (Ulster Unionist Party)

Answering body

Northern Ireland Office

Type

Written questions

Status

Answered

Date

29 June 2004

Reference

179732; 423 c267-8W

House

House of Commons

Northern Ireland Office

To ask the Secretary of State for Northern Ireland, what his latest estimate is of the number of myalgic encephalomyelitis sufferers in Northern Ireland; and what the percentage change has been in each year since 2000. - The information requested is not collected centrally.

Asked by

Lady Hermon (Ulster Unionist Party)

Answering body

Northern Ireland Office

Type

Written questions

Status

Answered

Date

28 June 2004

Reference

179733; 423 c57W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, whether his Department spends money on helping ME sufferers in (a) the North West, (b) Lancashire and (c) Chorley. - Inc fact that the info is not collected centrally.

Asked by

Lindsay Hoyle (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

18 June 2004

Reference

422 c1128W; 179347

House

House of Commons

Librarians' tools

Type

House

Session

Year

Department

Member

Primary member

Answering member

Legislative stage

Legislation

Subject

Publisher