The end user organisations (police forces, multi agency teams and other agencies) that have ‘direct’ access to suspicious activity reports (SARs) are listed in the SARs Annual Reports, which are available on the NCA website. They are summarised in the table below.

All individuals outside of the NCA who have ‘direct’ access to SARs are accredited by the NCA Proceeds of Crime Centre as being Financial Investigators, Financial Intelligence Officers or Financial Intelligence Administrators in line with the end user agreements in place with each organisation. Not all those individuals that have accreditation have ‘direct’ access to SARs. It is not possible, without further significant analysis, to determine the number of individuals who over time have had such access to the SARs System.

The Science and Technology Committee report on the Big Data Dilemma recommended that a Council for Data Ethics be established. The Government response was published on 26th April 2016 and can be found at the following link: http://www.publications.parliament.uk/pa/cm201516/cmselect/cmsctech/992/99204.htm

The Science and Technology Committee report on the Big Data Dilemma recommended that a Council for Data Ethics be established. The Government response was published on 26th April 2016 and can be found at the following link: http://www.publications.parliament.uk/pa/cm201516/cmselect/cmsctech/992/99204.htm

The Science and Technology Committee report on the Big Data Dilemma recommended that a Council for Data Ethics be established. The Government response was published on 26th April 2016 and can be found at the following link: http://www.publications.parliament.uk/pa/cm201516/cmselect/cmsctech/992/99204.htm

The Science and Technology Committee report on the Big Data Dilemma recommended that a Council for Data Ethics be established. The Government response was published on 26th April 2016 and can be found at the following link: http://www.publications.parliament.uk/pa/cm201516/cmselect/cmsctech/992/99204.htm

Such data are already collected in Hospital Episode Statistics, a data warehouse managed by the Health and Social Care Information Centre that includes details of all admissions and outpatient appointments at National Health Service and independent sector hospitals in England. A summary report of the data published for 2014-15 is at:

http://www.hscic.gov.uk/catalogue/PUB19608/hosp-outp-acti-2014-15-summ-repo-rep.pdf

Information on length of time between first and follow-up appointments has not been published because there are no national standards for the appropriate intervals, which will vary between different services or specialties, and between individual patients, depending on the severity of the condition and clinical decision making.

The Department does not collect any data on the number of people who use electronic cigarettes. The Department makes use of various data sources, including that published by the Health and Social Care Information Centre and the Office for National Statistics as an evidence base for policy making. This includes the Opinions and Lifestyles Survey for electronic cigarette use by adults and the Smoking, Drinking and Drugs survey for use by young people.

As is set out in the Suspicious Activity Reports (SARs) Regime Annual Report, the SARs IT infrastructure processed 381,882 SARs in 2014/15. The Report can be found at:

http://www.nationalcrimeagency.gov.uk/publications/677-sars-annual-report-2015/file

In the National Risk Assessment of Money Laundering and Terrorist Financing, which the Government published on 15 October 2015, it was recognised that the suspicious activity reports (SARS) IT infra structure is coming to the end of its life, and will need to be replaced. The Government launched the Action Plan for anti-money laundering and counter-terrorist finance on 21 April, which sets out a programme to deliver a significantly improved anti-money laundering regime for the UK. As part of these improvements we will be working with public and private stakeholders to develop a replacement SARs IT infrastructure.

In the Action Plan for anti-money laundering and terrorist financing, the Government set out that a replacement for the existing SARS IT infrastructure will be designed to support a significant improvement in the UK’s anti-money laundering regime. The benefits will include; more effective processing of SARs, including; automated cross-checking with law enforcement databases; development of intelligence on those responsible for money laundering; and better information on threats for sharing with the private sector. We are consulting on the proposals to improve the anti-money laundering regime.

As is set out in the Suspicious Activity Reports (SARs) Regime Annual Report, the SARs IT infrastructure processed 381,882 SARs in 2014/15. The Report can be found at:

http://www.nationalcrimeagency.gov.uk/publications/677-sars-annual-report-2015/file

In the National Risk Assessment of Money Laundering and Terrorist Financing, which the Government published on 15 October 2015, it was recognised that the suspicious activity reports (SARS) IT infra structure is coming to the end of its life, and will need to be replaced. The Government launched the Action Plan for anti-money laundering and counter-terrorist finance on 21 April, which sets out a programme to deliver a significantly improved anti-money laundering regime for the UK. As part of these improvements we will be working with public and private stakeholders to develop a replacement SARs IT infrastructure.

In the Action Plan for anti-money laundering and terrorist financing, the Government set out that a replacement for the existing SARS IT infrastructure will be designed to support a significant improvement in the UK’s anti-money laundering regime. The benefits will include; more effective processing of SARs, including; automated cross-checking with law enforcement databases; development of intelligence on those responsible for money laundering; and better information on threats for sharing with the private sector. We are consulting on the proposals to improve the anti-money laundering regime.

As is set out in the Suspicious Activity Reports (SARs) Regime Annual Report, the SARs IT infrastructure processed 381,882 SARs in 2014/15. The Report can be found at:

http://www.nationalcrimeagency.gov.uk/publications/677-sars-annual-report-2015/file

In the National Risk Assessment of Money Laundering and Terrorist Financing, which the Government published on 15 October 2015, it was recognised that the suspicious activity reports (SARS) IT infra structure is coming to the end of its life, and will need to be replaced. The Government launched the Action Plan for anti-money laundering and counter-terrorist finance on 21 April, which sets out a programme to deliver a significantly improved anti-money laundering regime for the UK. As part of these improvements we will be working with public and private stakeholders to develop a replacement SARs IT infrastructure.

In the Action Plan for anti-money laundering and terrorist financing, the Government set out that a replacement for the existing SARS IT infrastructure will be designed to support a significant improvement in the UK’s anti-money laundering regime. The benefits will include; more effective processing of SARs, including; automated cross-checking with law enforcement databases; development of intelligence on those responsible for money laundering; and better information on threats for sharing with the private sector. We are consulting on the proposals to improve the anti-money laundering regime.

The Department does not collect any data on the number of people who use electronic cigarettes. The Department makes use of various data sources, including that published by the Health and Social Care Information Centre and the Office for National Statistics as an evidence base for policy making. This includes the Opinions and Lifestyles Survey for electronic cigarette use by adults and the Smoking, Drinking and Drugs survey for use by young people.

The Access to Medical Treatments (Innovation) Act 2016 will create a database of innovative treatments, when the Secretary of State directs the Health and Social Care Information Centre to establish such a database. The Centre will implement the database in accordance with the common law duty of confidence, data protection law and the information governance rules to which the Centre is subject.

The Department for Work and Pensions (DWP) provides its staff with information about providing services for transgender customers but does not provide information relating to data confidentiality specifically for transgender customers. DWP has a Personal Information Charter which informs all customers of the standards they can expect when we handle their personal information.

The DWP Special Customer Records (SCR) policy provides additional controls to transgender customers. These additional controls include clerical records being held securely by a senior manager, and access to computer records only being allowed to specific employees for specific business reasons and automatic notification of any unauthorised attempt to access records.

General practitioners already maintain a register of people with learning disabilities which may include patients on their lists who also have autism where this has been diagnosed. The Royal College of General Practitioners’ Autism Initiative, which is part funded by the Department, is currently looking at the idea of an autism indicator in general practice. This work is at an early stage.

NHS England has been working with the Health and Social Care Information Centre to develop the Mental Health Services Data Set. This mandatory data set will include provision for the diagnosis of autism to be recorded. The data will be published and available for everyone to use to support and develop services based on health outcomes.

The database will not supersede the Medicines and Healthcare products Regulatory Agency’s (MHRA) guidance on the hierarchy for the use of unlicensed medicines, which is set out in the MHRA’s ‘Guidance Note 14’. The Access to Medical Treatments (Innovation) Act 2016 seeks to facilitate access to innovative medical treatments including the off-label use of medicines and the use of unlicensed medicines, such as in schemes like the Early Access to Medicines Scheme (EAMS). The Act provides for the establishment of a database of innovative medical treatments, which doctors can access to search for innovative treatments in schemes like the EAMS, including unlicensed or off-label medicines for which there is evidence that a patient might benefit. Where appropriate they can also search for clinical trials that are underway and discuss their findings with their patients to establish if they would benefit from being part of a clinical trial. There will be a full consultation on the database in due course.

The Health and Social Care Information Centre (HSCIC) is responsible for the Mental Health Services Data Set which is a patient level, output based, secondary uses dataset which will deliver robust comprehensive, nationally consistent and comparable person based information for children, young people and adults who are in contact with mental health services.

Data submission is mandatory for all instances of care including from independent providers that are wholly or partially funded by the National Health Service.

The Department is also working with the HSCIC and other health system partners to improve data submissions from independent providers.

Information is not collected centrally on how many clinical commissioning groups collect prevalence and standardised mortality data on autistic people as part of their joint strategic needs assessments.

The National Health Service is taking action to reduce premature death among people with autism and a learning disability, and with autism by increasing annual health checks for people with learning disabilities, including for those who also have autism. The NHS is working to reduce variation and improve care for physical health conditions that disproportionately impact on people with learning disabilities who also may have autism, including epilepsy and cancer. NHS England has commissioned the world's first Learning Disability Mortality Review Programme to support local areas to review deaths of people with learning disabilities and to use the information to improve service provision. This review programme for people with learning disabilities includes those who also have autism.

Think Autism set out a clear, cross Government programme of action, developed alongside people with autism, their families and carers to improve their lives and reduce premature mortality through better access to healthcare by making adjustments to services. This includes supporting the Royal College of General Practitioners (RCGPs) Autism Initiative to improve understanding of autism amongst GPs.

The Department collects Strength and Difficulties Questionnaire (SDQ) scores for children looked-after for at least 12 months. In March 2015, The Department for Education and Department of Health strengthened the statutory guidance Promoting the health and wellbeing of looked after children to include information on how Strengths and Difficulties Questionnaires should be used. The Department wrote to local authorities in 2014 and 2015 to remind them about the purpose and importance of SDQs. Ahead of this year’s data collection (published in September 2016), the Department will also write to Virtual School Heads and Independent Reviewing Officers about the use of SDQs for looked-after children. In addition we are considering how to utilise best practice from local authorities that have had consistently good return rates for SDQ scores in their annual children looked after data returns.

The Department for Work and Pensions (DWP) provides its staff with information about providing services for transgender customers but does not provide information relating to the management of data accuracy or maintenance of data integrity specifically for transgender customers. DWP have a Personal Information Charter which informs all customers of the standards they can expect when we handle their personal information.

The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) is operated by Public Health England. NCARDRS has legal permission to collect patient identifiable data without the need for individual consent. As part of this dataset, patient postcodes for individuals resident in England are recorded on the NCARDRS congenital anomaly database. Protection of individual patient data is paramount and release of this data, including postcode data, is strictly controlled.