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I am announcing today the publication of the third annual report of the Learning Disabilities Mortality Review Programme (LeDeR). A copy has been deposited in the Libraries of both Houses.

The LeDeR programme was established in June 2015 to help reduce early deaths and health inequalities for people with a learning...

Member
Caroline Dinenage (Conservative)
Department
Department of Health and Social Care
Type
Written statements
Date
21 May 2019
Reference
HCWS1571
House
House of Commons

My Hon. Friend the Minister of State for Care (Caroline Dinenage MP) has made the following written statement:

I am announcing today the publication of the third annual report of the Learning Disabilities Mortality Review Programme (LeDeR). A copy has been deposited in the Libraries of both Houses.

The LeDeR programme was...

Member
Baroness Blackwood of North Oxford (Conservative)
Department
Department of Health and Social Care
Type
Written statements
Date
21 May 2019
Reference
HLWS1530
House
House of Lords

(Urgent Question): To ask the Secretary of State for Health and Social Care to make a statement on the learning disabilities mortality review.

Member
Baroness Keeley (Labour)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c245
House
House of Commons

I would like to start by restating our commitment to reducing the number of preventable deaths among those of our population with a learning disability and to addressing the persistent health inequalities that they experience. It is completely unacceptable that people in our country with a learning disability, and indeed...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c245
House
House of Commons

Thank you for clarifying that, Mr Speaker. I do not dispute that this is absolutely the right place and time to discuss this very important issue,

but more broadly I think that Members across the House need to take a clearer view on how we discuss and view leaks, and...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c245
House
House of Commons

Thank you, Mr Speaker.

With regard to the LeDeR programme, I have committed in the past and will commit once again to bringing the final report before Parliament on the day of publication, which we are told by NHS England will be in the next few weeks. Members will feel as...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c246
House
House of Commons

Well, this is a mess, isn’t it? Last year, the first report from this important review was sneaked out on a Friday, in the middle of the local election results, and this year we have read about it through leaks to The Sunday Times and the Health Service Journal. The...

Member
Baroness Keeley (Labour)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 cc246-7
House
House of Commons

This is not a mess; the Department of Health and Social Care requested that NHS England commission the whole LeDeR programme. The report is an independent document, which is very important because we are talking about people’s lives and about deaths that could have been prevented. It is really important...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 cc247-8
House
House of Commons

I share the concern of the hon. Member for Worsley and Eccles South (Barbara Keeley) and the Minister about the fact that it appears that at least 19 patients had “do not resuscitate” orders specifically because of their learning disabilities. I welcome the fact that the Minister has made it...

Member
Lord Harper (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c248
House
House of Commons

My right hon. Friend makes a perfect point. As I have said, I will not go into the details of the report—the independent report—that have been leaked and that have not yet been published. However, we are very clear that treatment decisions must be based on objective information and should...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c249
House
House of Commons

I congratulate my hon. Friend the Member for Worsley and Eccles South (Barbara Keeley) on securing this urgent question and you, Mr Speaker, on granting it. This is a mess. The Minister talked about the training that is expected to happen. Will she set out when the autism and learning...

Member
Marsha De Cordova (Labour)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c249
House
House of Commons

I thank the hon. Lady for her question. This very thorough consultation has received more than 5,000 responses. It has very recently concluded, and we are now going through those consultation responses, some of which are quite detailed. We hope to respond in the next two or three months to...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c249
House
House of Commons

This question is similar to the “do not resuscitate” one. I am aware that a number of practitioners use seclusion, segregation and restraint against patients in the system. What is the Minister doing to stop that happening?

Member
John Howell (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c249
House
House of Commons

This is really important. We have seen an increase in reports of segregation and restraint, but that is partly because we have seen much better recording of the data. That is also very important, because we need to understand where people are being kept in seclusion or restrained inappropriately. The...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c249
House
House of Commons

I welcome the Minister’s clear statement that it is wholly unacceptable that people with learning disabilities continue to experience much shorter life expectancy. It is wholly unacceptable, but the problem is that we have all been saying this for years and nothing ever changes. We do not appear to be...

Member
Norman Lamb (Liberal Democrat)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c249
House
House of Commons

I must declare an interest: my sister was born with profound learning disabilities. Later this year, hopefully, she will celebrate her 60th birthday. During my lifetime, I have seen far too many young people with learning disabilities die premature deaths. One of the biggest problems is when they suffer a...

Member
Bob Blackman (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c251
House
House of Commons

I start by saying that I am always very happy to meet the right hon. Gentleman because he has great expertise, knowledge and understanding of this field and often makes incredibly valuable suggestions. In response his question, that is why the commitment to mandatory training for all health and care...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c250
House
House of Commons

May I for one thank you, Mr Speaker, for allowing the House of Commons to turn the spotlight on people with learning disabilities? We should never miss an opportunity to talk about a part of our population whose problems are often swept under the carpet. That applies particularly to people...

Member
Edward Leigh (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c250
House
House of Commons

I do not think I could have said it any better than my right hon. Friend. Mencap has put out a fantastic tweet featuring a particularly special young man who has Down’s syndrome. He is incredibly brilliant in the way that he articulates how very proud he is to live...

Member
Caroline Dinenage (Conservative)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c250
House
House of Commons

It is six years since Connor Sparrowhawk died, yet these leaks—yes, leaks—indicate that 8% of the cases reviewed showed that people with learning disabilities had been harmed or even killed by the care that they received. What was meant to be helping them was actually harming them. That raises enormous...

Member
Anneliese Dodds (Labour; Co-operative Party)
Type
Proceeding contributions
Date
15 May 2019
Reference
660 c250
House
House of Commons