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In the United Kingdom, more than 600,000 people—one in a 100—live with epilepsy and every day around 80 people are diagnosed. Sudden unexpected death in epilepsy, abbreviated as SUDEP, is the term used when a person with epilepsy dies suddenly and unexpectedly. At least 21 people die every week in...
In the United Kingdom, more than 600,000 people—one in a 100—live with epilepsy and every day around 80 people are diagnosed. Sudden unexpected death in epilepsy, abbreviated as SUDEP, is the term used when a person with epilepsy dies suddenly and unexpectedly. At least 21 people die every week in...
I am grateful to the hon. Gentleman for bringing this debate to the House tonight. I have been asked to come along on behalf of my constituent, James Nichols, who lost a dear friend in just that age group to SUDEP and has been a tireless campaigner on the issue...
I am grateful to the hon. Gentleman for bringing this debate to the House tonight. I have been asked to come along on behalf of my constituent, James Nichols, who lost a dear friend in just that age group to SUDEP and has been a tireless campaigner on the issue...
I thank the hon. Gentleman for his intervention and pay tribute to his constituent and their family. I am going to be talking quite a lot about what we can do to prevent such occurrences in the future.
I thank the hon. Gentleman for his intervention and pay tribute to his constituent and their family. I am going to be talking quite a lot about what we can do to prevent such occurrences in the future.
First, I commend the hon. Gentleman for bringing this debate forward. I spoke to him beforehand and, like the hon. Member for Bracknell (Peter Swallow), I am here to represent my constituents and those who are affected by this issue in Northern Ireland. SUDEP affects one in 1,000 people with...
First, I commend the hon. Gentleman for bringing this debate forward. I spoke to him beforehand and, like the hon. Member for Bracknell (Peter Swallow), I am here to represent my constituents and those who are affected by this issue in Northern Ireland. SUDEP affects one in 1,000 people with...
The hon. Gentleman is absolutely correct to say that awareness raising and increasing understanding are key priorities in dealing with SUDEP and epilepsy in general.
Patients with epilepsy carry a risk of premature death that is, on average, two to three times higher than in the general population, as has been...
The hon. Gentleman is absolutely correct to say that awareness raising and increasing understanding are key priorities in dealing with SUDEP and epilepsy in general.
Patients with epilepsy carry a risk of premature death that is, on average, two to three times higher than in the general population, as has been...
I thank the hon. Gentleman for bringing this really essential debate to the House. My constituent Emma Taylor tragically lost her daughter at the age of 19 and she now campaigns tirelessly for SUDEP Action as a policy champion. Does the hon. Gentleman agree with her on the need for...
I thank the hon. Gentleman for bringing this really essential debate to the House. My constituent Emma Taylor tragically lost her daughter at the age of 19 and she now campaigns tirelessly for SUDEP Action as a policy champion. Does the hon. Gentleman agree with her on the need for...
I very much agree with the hon. Gentleman’s constituent. I thank her for her tireless campaigning and offer my condolences for her loss.
My Oxfordshire constituency of Didcot and Wantage is the home to SUDEP Action, a charity that is local, national and international in its impact. In 1995, five bereaved...
I very much agree with the hon. Gentleman’s constituent. I thank her for her tireless campaigning and offer my condolences for her loss.
My Oxfordshire constituency of Didcot and Wantage is the home to SUDEP Action, a charity that is local, national and international in its impact. In 1995, five bereaved...
I thank the hon. Member for bringing to light the Clive Treacey checklist, because it is a really fitting way to remember Clive. It is important to remember, however, that although it is named after Clive, he is not defined by his epilepsy; he was not defined by his learning...
I thank the hon. Member for bringing to light the Clive Treacey checklist, because it is a really fitting way to remember Clive. It is important to remember, however, that although it is named after Clive, he is not defined by his epilepsy; he was not defined by his learning...
I thank the hon. Gentleman for his intervention and his tribute to his constituent, and I look forward to working with him and others on this issue.
The checklist, commissioned by NHS Midlands and developed by SUDEP Action, is designed for commissioners and providers of care. There is hope that it...
I thank the hon. Gentleman for his intervention and his tribute to his constituent, and I look forward to working with him and others on this issue.
The checklist, commissioned by NHS Midlands and developed by SUDEP Action, is designed for commissioners and providers of care. There is hope that it...
Five years ago, my constituent Nadine tragically lost her brother Trevor to epilepsy. An inquest into Trevor’s death ruled that his healthcare team and prison staff at the prison that he was in had not carried out their duties, which led directly to his death. Trevor’s death, sadly, is one...
Five years ago, my constituent Nadine tragically lost her brother Trevor to epilepsy. An inquest into Trevor’s death ruled that his healthcare team and prison staff at the prison that he was in had not carried out their duties, which led directly to his death. Trevor’s death, sadly, is one...
I thank the hon. Gentleman for his intervention, and he is absolutely right to raise prison as another setting where people are often vulnerable and where more needs to be done in relation to SUDEP.
Sepsis, which has a similar history of systemic failure, will shortly benefit from a modern service...
I thank the hon. Gentleman for his intervention, and he is absolutely right to raise prison as another setting where people are often vulnerable and where more needs to be done in relation to SUDEP.
Sepsis, which has a similar history of systemic failure, will shortly benefit from a modern service...
I thank the hon. Member for Didcot and Wantage (Olly Glover) for securing this important debate. At the outset, I will say that I am happy to meet him to discuss all the action points he raised at the end of his speech—and as for where that meeting will take...
I thank the hon. Member for Didcot and Wantage (Olly Glover) for securing this important debate. At the outset, I will say that I am happy to meet him to discuss all the action points he raised at the end of his speech—and as for where that meeting will take...
I thank the Minister for delineating everything that the Government are doing to support people with epilepsy. I was fortunate enough to secure an Adjournment debate a couple of months ago to talk about the Clive Treacey safety checklist. The Under-Secretary of State for Health and Social Care, my hon....
I thank the Minister for delineating everything that the Government are doing to support people with epilepsy. I was fortunate enough to secure an Adjournment debate a couple of months ago to talk about the Clive Treacey safety checklist. The Under-Secretary of State for Health and Social Care, my hon....
I welcome the development of the Clive Treacey safety checklist. It is an important part of Clive’s legacy, notwithstanding the comments that my hon. Friend made about his legacy being much wider than that. We would encourage commissioners and service providers to use the checklist and its accompanying guidance as...
I welcome the development of the Clive Treacey safety checklist. It is an important part of Clive’s legacy, notwithstanding the comments that my hon. Friend made about his legacy being much wider than that. We would encourage commissioners and service providers to use the checklist and its accompanying guidance as...
The Mental Health Bill received Royal Assent on 18 December 2025. This briefing provides an overview of the progress of the bill through the House of Commons.
The Mental Health Bill received Royal Assent on 18 December 2025. This briefing provides an overview of the progress of the bill through the House of Commons.
A Westminster Hall debate on Down Syndrome Regression Disorder is scheduled for Thursday 19 June 2025. The debate will be led by Jen Craft MP.
A Westminster Hall debate on Down Syndrome Regression Disorder is scheduled for Thursday 19 June 2025. The debate will be led by Jen Craft MP.
Last weekend my hon. Friend the Member for Spen Valley (Kim Leadbeater) posted on X a story of two older people who wanted to die together, and who had found doctors to sign off their assisted death. Is my hon. Friend concerned that this debate might be romanticising suicide pacts...
Last weekend my hon. Friend the Member for Spen Valley (Kim Leadbeater) posted on X a story of two older people who wanted to die together, and who had found doctors to sign off their assisted death. Is my hon. Friend concerned that this debate might be romanticising suicide pacts...
I think everyone in the House debates this issue in good faith, and in the courts there is a general view that one should be reluctant to attack otherwise. I am sure that question was meant on that basis. However, one must not lose sight of the fundamental point that...
I think everyone in the House debates this issue in good faith, and in the courts there is a general view that one should be reluctant to attack otherwise. I am sure that question was meant on that basis. However, one must not lose sight of the fundamental point that...
Edmund Burke said:
“Bad laws are the worst sort of tyranny.”
Over time, I have seen many imperfect measures put before the House—under Governments of all persuasions, by the way—and usually, through scrutiny, they are improved. That is because the parliamentary process works when there is time available, and in particular when...
Edmund Burke said:
“Bad laws are the worst sort of tyranny.”
Over time, I have seen many imperfect measures put before the House—under Governments of all persuasions, by the way—and usually, through scrutiny, they are improved. That is because the parliamentary process works when there is time available, and in particular when...