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To ask His Majesty's Government how many pregnancy terminations have been carried out on grounds of a diagnosis of (1) Downs Syndrome, or (2) Brittle Bones, in each of the past five years.
To ask His Majesty's Government how many pregnancy terminations have been carried out on grounds of a diagnosis of (1) Downs Syndrome, or (2) Brittle Bones, in each of the past five years.
We are unable to provide the data requested for 2022 and 2023 as these statistics have not yet been published. Abortion statistics for 2022 are provisionally scheduled to be published in May 2024. The date of publication of abortion statistics for 2023 will be announced in due course.
The following table shows information on the number of pregnancy terminations carried out on grounds of a diagnosis of Downs Syndrome or congenital malformations of the musculoskeletal system between 2019 and 2021:
Year | ICD-10 code | Condition | Number of mentions |
2019 | Q90 | Down's syndrome | 656 |
2020 | Q90 | Down's syndrome | 693 |
2021 | Q90 | Down's syndrome | 859 |
2019 | Q65 to Q79 | Congenital malformations of the musculoskeletal system | 357 |
2020 | Q65 to Q79 | Congenital malformations of the musculoskeletal system | 443 |
2021 | Q65 to Q79 | Congenital malformations of the musculoskeletal system | 486 |
Source: NHS England
Notes:
- The number of mentions is the number of times a particular condition has been listed under Ground E.
- ICD-10 codes are taken from the International Statistical Classification of Diseases and Related Health problems (Tenth Revision) published by the World Health Organisation (WHO).
- ICD-10 codes Q65 to Q79 (Congenital malformations and deformations of the musculoskeletal system) includes Q78.0 which is the ICD10 code for osteogenesis imperfecta (brittle bones).
- To protect patient confidentiality, we are unable to provide the number of mentions for osteogenesis imperfecta (brittle bones). Instead, we have provided the number of mentions for congenital malformations of the musculoskeletal system, which may include mentions of osteogenesis imperfecta (brittle bones), for the same period.
To ask His Majesty's Government, further to the Written Answer by Lord Markham on 7 November, how they measure patient access to multi-disciplinary teams; and what steps they are taking to ensure that people with rare bone conditions can access a multi-disciplinary team.
To ask His Majesty's Government, further to the Written Answer by Lord Markham on 7 November, how they measure patient access to multi-disciplinary teams; and what steps they are taking to ensure that people with rare bone conditions can access a multi-disciplinary team.
The level of patient access to multi-disciplinary teams is not currently measured. Services for rare bone conditions are required to have multi-disciplinary teams as outlined in the specialised rheumatology service specification. This defines the standards of care expected from organisations funded by NHS England to provide specialised care.
To ask His Majesty's Government what assessment they have made of the waiting times faced by people with rare bone conditions in accessing multidisciplinary specialist care.
To ask His Majesty's Government what assessment they have made of the waiting times faced by people with rare bone conditions in accessing multidisciplinary specialist care.
No specific assessment has been made.
To ask His Majesty's Government what plans they have to address any regional disparities in the provision of psychological and social care support for people with rare bone conditions.
To ask His Majesty's Government what plans they have to address any regional disparities in the provision of psychological and social care support for people with rare bone conditions.
No recent assessment has been made. However, care for patients with rare bone conditions are addressed through the specialised rheumatology service specification, which requires clinical psychologists to be provided as a core component of a multi-disciplinary team.
Local commissioners are responsible for the provision of services to meet the needs of the local population. Local authorities are responsible for assessing an individual’s eligibility for care and support, as set out in the Care Act 2014. Where a person is assessed as having eligible care and support needs, the local authority should undertake a financial assessment. Where individuals are not eligible for financial support, local authorities will support them, should they require assistance, to make arrangements for care services.
To ask His Majesty's Government what recent assessment they have made of the provision of psychological and social care support for people with rare bone conditions.
To ask His Majesty's Government what recent assessment they have made of the provision of psychological and social care support for people with rare bone conditions.
No recent assessment has been made. However, care for patients with rare bone conditions are addressed through the specialised rheumatology service specification, which requires clinical psychologists to be provided as a core component of a multi-disciplinary team.
Local commissioners are responsible for the provision of services to meet the needs of the local population. Local authorities are responsible for assessing an individual’s eligibility for care and support, as set out in the Care Act 2014. Where a person is assessed as having eligible care and support needs, the local authority should undertake a financial assessment. Where individuals are not eligible for financial support, local authorities will support them, should they require assistance, to make arrangements for care services.
That this House recognises the Brittle Bone Society’s campaign to mark the month of May as the National Awareness Month for Osteogenesis Imperfecta (OI); notes that OI is a genetic bone disorder characterised by fragile bones that affects a person from birth; recognises that around 5,000 people across the UK are affected by the condition; celebrates the work of the Brittle Bone Society, who offer a variety of support to those affected, including but not limited to practical assistance; commends the campaign for a National Awareness Month ran by the Brittle Bone Society and its supporters, which will help raise awareness among the general public of the condition; and calls on the Government to back the campaign and officially recognise May as the National Awareness Month for OI.
That this House recognises the Brittle Bone Society’s campaign to mark the month of May as the National Awareness Month for Osteogenesis Imperfecta (OI); notes that OI is a genetic bone disorder characterised by fragile bones that affects a person from birth; recognises that around 5,000 people across the UK...
To ask the Secretary of State for Health and Social Care, whether his Department is taking steps to help improve the timely diagnosis of osteogenesis imperfecta; what the average time taken is for such diagnoses in the latest period for which data is available; and if he will make a...
To ask the Secretary of State for Health and Social Care, whether his Department is taking steps to help improve the timely diagnosis of osteogenesis imperfecta; what the average time taken is for such diagnoses in the latest period for which data is available; and if he will make a...
We have committed £2.3 billion to increase the volume of diagnostic activity and reduce patient waiting times, including X-rays which can diagnose osteogenesis imperfecta (OI). The ‘Delivery plan for tackling the COVID-19 backlog of elective care’ sets out the ambition for 95% of patients to receive a diagnostic test within six weeks by March 2025. To implement the UK Rare Diseases Framework, we published England’s Rare Diseases Action Plan in February 2022. The Plan includes actions to improve the timely diagnosis of rare conditions such as OI. Data on the average time taken for the diagnosis of OI is not held in the format requested.
To ask the Secretary of State for Health and Social Care, whether his Department plans to ensure universal access to fracture liaison services; and what recent assessment his Department has made of the impact of the absence of universal service availability on the health of those with osteoporosis and bone...
To ask the Secretary of State for Health and Social Care, whether his Department plans to ensure universal access to fracture liaison services; and what recent assessment his Department has made of the impact of the absence of universal service availability on the health of those with osteoporosis and bone...
We are currently assessing the accessibility of fracture liaison services (FLS) through data collected in the national Falls and Fragility Fracture Audit Programme. This aims to identify any inequitable provision and improve services.
Services for those with osteoporosis and bone health conditions are commissioned locally. The Department expects musculoskeletal, fragility fracture and fall services to be fully incorporated into integrated care systems’ planning and decision-making. This will allow greater collaboration, improve the coverage and sustainability of services and development of regional bone health clinical networks to support clinicians working in FLS.
To ask the Secretary of State for Health and Social Care, if he will publish a response to Early Day Motion 883, Campaign for an Osteogenesis Imperfecta national awareness month.
To ask the Secretary of State for Health and Social Care, if he will publish a response to Early Day Motion 883, Campaign for an Osteogenesis Imperfecta national awareness month.
While we have no specific plans to officially recognise May as the national awareness month for osteogenesis imperfecta, the UK Rare Diseases Framework aims to improve the awareness of all rare diseases. England’s Rare Diseases Action Plan, published on 28 February 2022, sets out specific actions to increase knowledge and improve the resources available to health care professionals. This includes education and training programmes and developing innovative digital resources, integrated into existing digital platforms or websites to provide easily accessible information on rare diseases. Action plans from the devolved administrations will follow later in 2022.
That this House recognises the Brittle Bone Society’s campaign to mark the month of May as the National Awareness Month for Osteogenesis Imperfecta (OI); notes that OI is a genetic bone disorder characterised by fragile bones that affects a person from birth; recognises that around 5,000 people across the UK are affected by the condition; celebrates the work of the Brittle Bone Society, who offer a variety of support to those affected, including but not limited to practical assistance; believes that a national awareness month would help raise awareness among the general public of the condition; and calls on the Government to back the campaign and officially recognise May as the National Awareness Month for OI.
That this House recognises the Brittle Bone Society’s campaign to mark the month of May as the National Awareness Month for Osteogenesis Imperfecta (OI); notes that OI is a genetic bone disorder characterised by fragile bones that affects a person from birth; recognises that around 5,000 people across the UK...
To ask the Secretary of State for Health and Social Care, if he will commit to (a) developing a national bone denisity and osteoporosis screening service and (b) assessing the potential merits of piloting such a service as part of integrated care systems.
To ask the Secretary of State for Health and Social Care, if he will commit to (a) developing a national bone denisity and osteoporosis screening service and (b) assessing the potential merits of piloting such a service as part of integrated care systems.
Recommendations for screening programmes are made by the United Kingdom National Screening Committee (UK NSC), an independent advisory committee. Recommendations on whether to screen for a particular condition are taken following a rigorous review process and based on the best evidence available.
The UK NSC has considered screening postmenopausal women for osteoporosis previously, but did not recommend a screening programme. The UK NSC will review the evidence in 2022/23.
Like everyone else in the House, I thank the hon. Lady for her vociferous campaigning on this really important issue. Assuming that we get there and manage to abolish prescription charges for HRT in England, how does she perceive us running a good communication strategy so that women are still...
Like everyone else in the House, I thank the hon. Lady for her vociferous campaigning on this really important issue. Assuming that we get there and manage to abolish prescription charges for HRT in England, how does she perceive us running a good communication strategy so that women are still...
The hon. Lady is being very good about giving way—I am very grateful to her. On the question of cost, I was struck by what she said earlier about her own really difficult experience of being prescribed antidepressants because she was not properly diagnosed with the menopause. I chair the...
The hon. Lady is being very good about giving way—I am very grateful to her. On the question of cost, I was struck by what she said earlier about her own really difficult experience of being prescribed antidepressants because she was not properly diagnosed with the menopause. I chair the...
I will speak on one aspect of HRT and menopause: the link with osteoporosis. I do so as the co-chair of the all-party parliamentary group on osteoporosis and bone health. As I have said before, menopause is an important time for bone health. According to the Royal Osteoporosis Society, the...
I will speak on one aspect of HRT and menopause: the link with osteoporosis. I do so as the co-chair of the all-party parliamentary group on osteoporosis and bone health. As I have said before, menopause is an important time for bone health. According to the Royal Osteoporosis Society, the...
This debate, which my hon. Friend the Member for Swansea East (Carolyn Harris) has brought forward, is so important, and leadership starts here, so I declare an interest as a perimenopausal woman.
I just remembered to say that, though, because the brain fog was good this morning when I woke up....
This debate, which my hon. Friend the Member for Swansea East (Carolyn Harris) has brought forward, is so important, and leadership starts here, so I declare an interest as a perimenopausal woman.
I just remembered to say that, though, because the brain fog was good this morning when I woke up....
Is it me or is it warm in here? That is one of the issues we have to raise to get rid of the taboo of the menopause. How many of us have gone around saying that most days in the last few years?
I welcome the Bill of the hon....
Is it me or is it warm in here? That is one of the issues we have to raise to get rid of the taboo of the menopause. How many of us have gone around saying that most days in the last few years?
I welcome the Bill of the hon....
My hon. Friend makes several good points. This is a good workplace in which to bring the menopause to the forefront.
We have to start a public health campaign on the menopause. We have to ensure that it is not just women in their late 40s and early 50s who understand...
My hon. Friend makes several good points. This is a good workplace in which to bring the menopause to the forefront.
We have to start a public health campaign on the menopause. We have to ensure that it is not just women in their late 40s and early 50s who understand...
I thank my hon. Friend for giving way and the hon. Member for Swansea East (Carolyn Harris) for bringing this Bill forward. On educating people, one of the first times that I actually understood this issue was as a result of this Bill, so it is key for women and...
I thank my hon. Friend for giving way and the hon. Member for Swansea East (Carolyn Harris) for bringing this Bill forward. On educating people, one of the first times that I actually understood this issue was as a result of this Bill, so it is key for women and...
My hon. Friend puts that extremely well. The fact of the matter is that, even as women who are well-informed and interested in this subject, we still do not necessarily know what to expect. It is also the case that boys and men need to understand these things too.
Hon. Members...
My hon. Friend puts that extremely well. The fact of the matter is that, even as women who are well-informed and interested in this subject, we still do not necessarily know what to expect. It is also the case that boys and men need to understand these things too.
Hon. Members...
I, too, congratulate the hon. Lady on bringing forward this issue and pursuing it in such a constructive, positive and enthusiastic way not just in the House but outside it too, and on the points she raises about the stigma attached to the menopause and the idea that women of...
I, too, congratulate the hon. Lady on bringing forward this issue and pursuing it in such a constructive, positive and enthusiastic way not just in the House but outside it too, and on the points she raises about the stigma attached to the menopause and the idea that women of...