Under the Down Syndrome Act, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome. The public consultation on the draft guidance closed on 30 March 2026, and the Government is carefully considering the responses received to inform the final guidance to be published.

Relevant authorities, as defined in the schedule to the act, have a duty to have due regard to the final guidance once it is published. The act does not create any new functions beyond this duty. Rather, it brings together existing statutory requirements and guidance that relevant authorities must and/or should already be complying with to support people with Down syndrome and people with other conditions and/or a learning disability who have similar needs.

Under existing legislation, Care Quality Commission registered providers must ensure that staff receive appropriate professional development which is necessary for them to carry out their duties. They must receive specific training on learning disability and autism appropriate to their role, as per Section 20 of the Health and Social Care Act 2008, Section 181(7) of the Health and Care Act 2022, and Regulation 18 of the Health and Social Care Act 2008 (Regulated Activities) Regulations 2014. We expect that providers should be considering whether specific training on Down syndrome is required for their staff, and the draft guidance under the Down Syndrome Act sets out that some staff who work frequently with people with Down syndrome may require additional training on Down syndrome.

Under the Down Syndrome Act, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give statutory guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome. The public consultation on the draft guidance was launched on 5 November 2025.

The consultation on draft guidance closed on 30 March 2026, and the Government is carefully considering the responses received to inform the final guidance to be published.

Through the implementation of the Down Syndrome Act 2022, the Government is striving to improve life outcomes for people with Down syndrome, raise awareness and understanding of their needs, and break down barriers to opportunity that they, and other disabled people, face.

Under the Down Syndrome Act, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome. The Department engaged extensively with stakeholders, including people with lived experience of Down syndrome, to inform the development of the draft guidance, which was published for public consultation on 5 November 2025.

The consultation on the draft guidance closed on 30 March 2026. The Government will consider the responses received through the consultation to inform the final guidance to be published.

Through the implementation of the Down Syndrome Act 2022, the Government is striving to improve life outcomes for people with Down syndrome, raise awareness and understanding of their needs, and break down barriers to opportunity that they, and other disabled people, face.

Under the Down Syndrome Act, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome. The Department engaged extensively with stakeholders, including people with lived experience of Down syndrome, to inform the development of the draft guidance, which was published for public consultation on 5 November 2025.

The consultation on the draft guidance closed on 30 March 2026. The Government will consider the responses received through the consultation to inform the final guidance to be published.

Under the Down Syndrome Act 2022, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome.

Relevant authorities, as defined in the schedule to the act, have a duty to have due regard to the final guidance once it is published. The act does not create any new functions beyond this duty. Rather, it brings together existing statutory requirements and guidance that relevant authorities must and/or should already be complying with to support people with Down syndrome and people with other conditions and/or a learning disability who have similar needs.

NHS England published statutory guidance on 9 May 2023 which says that every integrated care board (ICB) should identify a member of its board to lead on supporting the ICB to perform its functions effectively in the interest of people with Down syndrome. The statutory guidance sets out NHS England’s expectations about fulfilling executive lead functions and outlines the responsibilities of these roles in more detail, and is available at the following link:

https://www.england.nhs.uk/publication/executive-lead-roles-within-integrated-care-boards/

Under the Down Syndrome Act 2022, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome.

Relevant authorities, as defined in the schedule to the act, have a duty to have due regard to the final guidance once it is published. The act does not create any new functions beyond this duty. Rather, it brings together existing statutory requirements and guidance that relevant authorities must and/or should already be complying with to support people with Down syndrome and people with other conditions and/or a learning disability who have similar needs.

NHS England published statutory guidance on 9 May 2023 which says that every integrated care board (ICB) should identify a member of its board to lead on supporting the ICB to perform its functions effectively in the interest of people with Down syndrome. The statutory guidance sets out NHS England’s expectations about fulfilling executive lead functions and outlines the responsibilities of these roles in more detail, and is available at the following link:

https://www.england.nhs.uk/publication/executive-lead-roles-within-integrated-care-boards/

No discussions have taken place between the Department of Health and Social Care and Department for Culture, Media and Sport about young people with Down syndrome in Surrey and the role of sport in health outcomes.

The UK Chief Medical Officers’ physical activity guidelines for disabled young people sets out the benefits of movement and strength activities, which includes helping to support disabled young people’s well-being, mood, development of healthy muscles, balance, and motor skills.

Through our 10-Year Health Plan, Government departments are working together to break down the barriers people face and help get more people moving. This includes development of a national plan for physical activity and a new way to deliver physical education, sport, and physical activity in schools. This work provides us with opportunities to improve ways for disabled young people to enjoy and benefit from sport, play and physical activity, whether in school, through local sports clubs, or in leisure centres and play spaces, making use of parks and nature.

In 2023, NHS England produced a guide for frontline staff as they support people with a learning disability which asks staff to be aware of diagnostic overshadowing, and which is available at the following link:

https://www.england.nhs.uk/long-read/clinical-guide-for-front-line-staff-to-support-the-management-of-patients-with-a-learning-disability-and-autistic-people-relevant-to-all-clinical-specialties/

NHS England does not hold data on the extent of diagnostic overshadowing for people with Down syndrome, nor is the data held centrally.

Through the implementation of the Down Syndrome Act 2022, the Government is striving to improve life outcomes for people with Down syndrome, raise awareness and understanding of their needs, and break down barriers to opportunity that they, and other disabled people, face.

Under the Down Syndrome Act, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to support the needs of people with Down syndrome. The draft guidance, which was published for public consultation on 5 November 2025, acknowledges that the care of people with Down syndrome may be affected by diagnostic overshadowing and recognises its impact on the care and treatment that people receive. Once the consultation has closed on 30 March 2026, the Government will consider all consultation responses to inform the final guidance to be published.

Relevant authorities, as defined in the schedule to the act, have a duty to have due regard to the final guidance once it is published. The act does not create any new functions beyond this duty. Rather, it brings together existing statutory requirements and guidance that relevant authorities must and/or should already be complying with to support people with Down syndrome and people with other conditions and/or a learning disability who have similar needs.

Under existing legislation, Care Quality Comision registered providers must ensure that staff receive appropriate professional development which is necessary for them to carry out their duties and must receive specific training on learning disability and autism appropriate to their role, as per Section 20 of the Health and Social Care Act 2008, Section 181(7) of the Health and Care Act 2022 and Regulation 18 of the Health and Social Care Act 2008 Regulated Activities) Regulations 2014. We expect that providers should be considering whether specific training on Down syndrome is required for their staff, and the draft guidance under the Down Syndrome Act sets out that some staff who work frequently with people with Down syndrome may require additional training on Down syndrome.

Under the Down Syndrome Act 2022, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome.

We considered a range of evidence from our Call for Evidence and engagement when developing the draft Down syndrome guidance, currently out for public consultation, including research on speech and language therapy (SLT).

The draft guidance highlights that people with Down syndrome are likely to have communication needs and sets out support that can be provided, including that people with Down syndrome should be able to access speech and language assessment and support in a timely manner. The guidance is also clear that NHS commissioners and providers may offer people with Down syndrome, and their families and carers, a range of SLT services and interventions to support their communication, tailored to their specific needs. This should include early intervention services starting from birth, continuing through early years to support a good start in life, and then into primary and secondary school and transition to adulthood, including transitions from child to adult care and support.

Relevant authorities, as defined in the schedule to the act, have a duty to have due regard to the final guidance once it is published. The act does not create any new functions beyond this duty. Rather, it brings together existing statutory requirements and guidance that relevant authorities must and/or should already be complying with to support people with Down Syndrome and people with other conditions and/or a learning disability who have similar needs.

NHS England published statutory guidance on 9 May 2023 which says that every integrated care board (ICB) should identify a member of its board to lead on supporting the ICB to perform its functions effectively in the interest of people with Down syndrome. The statutory guidance sets out NHS England’s expectations about fulfilling executive lead functions and outlines the responsibilities of these roles in more detail at the following link:

https://www.england.nhs.uk/publication/executive-lead-roles-within-integrated-care-boards/

I refer the Rt Hon. Member to the answer I gave to the Hon. Member for Maidenhead on 5 January 2026 to Question 103131.

In 2023, NHS England produced a guide for frontline staff to support people with learning disabilities which asks staff to be aware of diagnostic overshadowing. NHS England does not hold data on the extent of diagnostic overshadowing for people with Down syndrome, nor is the data held centrally. This guide is available at the following link:

https://www.england.nhs.uk/long-read/clinical-guide-for-front-line-staff-to-support-the-management-of-patients-with-a-learning-disability-and-autistic-people-relevant-to-all-clinical-specialties/

Through the implementation of the Down Syndrome Act 2022, the Government is striving to improve life outcomes for people with Down syndrome, raise awareness and understanding of their needs, and break down barriers to opportunity that they, and other disabled people, face.

Under the Down Syndrome Act, the Secretary of State for Health and Social Care is required to give guidance to relevant authorities in health, social care, education and housing services on what they should be doing to support the needs of people with Down syndrome. The draft guidance, which was published for public consultation on 5 November 2025, acknowledges that many people with Down syndrome may experience diagnostic overshadowing and recognises its impact on the care and treatment that people receive.

The Department welcomes specific suggestions of other topics for inclusion or additional detail on those already covered through the consultation. Once the consultation has closed, the Government will consider all consultation responses to inform the final guidance to be published.

Under the Down Syndrome Act, my Rt Hon. Friend, the Secretary of State for Health and Social Care, is required to give statutory guidance to relevant authorities in health, social care, education, and housing services on what they should be doing to meet the needs of people with Down syndrome. The consultation on the draft guidance was launched on 5 November 2025 and will remain open until 30 March 2026.

The draft guidance has been informed by over 1,500 responses to the call for evidence in 2022. A summary of these findings was published on 5 November 2025. In developing the draft guidance, the Department for Health and Social Care engaged with NHS England and all relevant Government departments, including the Department for Education. Officials also engaged with people with Down syndrome and those with other conditions and/or a learning disability who have similar needs, and their parents and carers, as well as experts and practitioners from multiple sectors, to ensure the guidance is robust, evidence-based and fit for purpose.

Based on what we were told during the call for evidence and subsequent engagement, a needs profile paper has also been developed which sets out the specific needs of people with Down syndrome. The needs paper, which has been published alongside the consultation, was used to inform the development of the draft guidance.

Through the implementation of the Down Syndrome Act 2022, the Government is striving to improve life outcomes for people with Down syndrome, raise awareness and understanding of their needs, and break down barriers to opportunity that they, and other disabled people, face.

The Down Syndrome Act 2022 requires my Rt Hon. Friend, the Secretary of State for Health and Social Care, to give guidance to relevant authorities in health, social care, education, and housing services on the actions they should be taking to support the needs of people with Down syndrome.

The public consultation on the draft guidance was launched on 5 November 2025 and will remain open until 30 March 2026. Once the consultation has closed, the Government will consider all consultation responses to inform the final guidance to be published.

What discussions he has had with the Secretary of State for Culture, Media and Sport on the role of sport in health outcomes for young people with Down's syndrome.

The hon. Member is not the first colleague to raise that issue. Clearly, the safety of patients and children is paramount, but it must be proportionate and led by evidence. I would be very happy to explore this further with him.