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To ask the Secretary of State for Health what recent assessment he has made of the performance of the Human Genetics Commission.

Asked by

John Healey (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

25 October 2010

Reference

19153; 517 c122W

House

House of Commons

Deposited Paper DEP2008-1084

Our inheritance, our future: realising the potential of genetics in the NHS progress review. 32 p.

Deposited by

Department of Health

Type

Deposited papers

Date

21 April 2008

Reference

DEP2008-1084

House

House of Lords

Human Genetics Commission

To ask the Secretary of State for Health who the Chairman of the Human Genetics Commission is; what relevant specialist qualifications he or she holds; what his or her career has been to date; where the post was advertised; how many persons applied for the post; how many were short...

Asked by

David Amess (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

6 November 2006

Reference

451 c771-2W; 97867

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will make a statement on the membership of the Human Genetics Commission. - Including ref to www.hgc.gov.uk/about_members.htm.

Asked by

Mohammad Sarwar (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

20 October 2004

Reference

425 c793W; 190571

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what the timescale is for (a) developing policy options involving stakeholders and (b) consulting the public before the moratorium on the use of genetic information by insurance companies comes to an end in 2006.

Asked by

Marion Roe (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

3 December 2003

For answer on

16 December 2003

Answered on

16 December 2003

Mrs. Roe: To ask the Secretary of State for Health what the time scale is for (a) developing policy options involving stakeholders and (b) consulting the public before the moratorium on the use of genetic information by insurance companies comes to an end in 2006. [142218] Miss Melanie Johnson: The Government have made clear its position on the use of genetic test results for underwriting life and health insurance in the October 2001 Government response to the report from the House of Commons Science and Technology Committee: Genetics and Insurance. The Genetics and Insurance Committee (GAIC) is responsible for the evaluation of specific genetic tests and their relevance to particular types of insurance. GAIC also provides independent scrutiny of compliance with the terms of the moratorium on the use of genetic test results by insurance companies, which runs until November 2006. If there is evidence of non- compliance with the moratorium by the insurance industry, then the Government is prepared to enforce it through legislation, if necessary. The Human Genetics Commission (HGC) has been asked to work closely with GAIC to provide Government with further advice in developing a longer- term policy on the use of genetic information by insurance companies. GAIC and HGC will also monitor the effectiveness of the Association of British Insurers (ABI) Code of practice on Genetics which is mandatory for all ABI members. HGC and GAIC held a well-received joint public meeting in September 2003. A number of interested groups, members of the public, attended this meeting, including representatives from organisations concerned with genetic disorders, as well as from insurance and re-insurance companies, and non-Governmental organisations with an interest in this area. HGC and GAIC are planning a further such meeting in 2004. Research is also under way to consider the use of genetic information in insurance underwriting. This research will be completed by 2005.

Date

16 December 2003

Reference

142218; 415 c886W;415 c886-7W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, whether the Human Genetics Commission has been charged with (a) involving stakeholders, (b) conducting a public consultation and (c) developing a national policy on the use of genetic information by insurance companies; what plans his Department has for a public consultation to...

Asked by

Marion Roe (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

16 December 2003

Reference

415 c889W; 142217;142206

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what progress is being made in developing a national policy on the use of genetic information by insurance companies after 2006; what steps (a) have been taken and (b) will be taken in 2004 to develop a regulatory framework for the use...

Asked by

Ian Gibson (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

3 December 2003

For answer on

11 December 2003

Answered on

11 December 2003

Dr. Gibson: To ask the Secretary of State for Health (1) what progress is being made in developing a national policy on the use of genetic information by insurance companies after 2006; [142268] (2) what steps (a) have been taken and (b) will be taken in 2004 to develop a regulatory framework for the use of genetic information by insurance companies after 2006; [142269] (3) what stakeholders and interested groups (a) have been involved and (b) will be involved in 2004 in developing a national policy on the use of genetic information by insurance companies. [142270] Miss Melanie Johnson: The Government have made clear their position on the use of genetic test results for underwriting life and health insurance in the October 2001 Government response to the report from the House of Commons Science and Technology Committee: Genetics and Insurance. The Genetics and Insurance Committee (GAIC) is responsible for the evaluation of specific genetic tests and their relevance to particular types of insurance. The GAIC also provides independent scrutiny of compliance with the terms of the moratorium on the use of genetic test results by insurance companies, which runs until November 2006. If there is evidence of non- compliance with the moratorium by the insurance industry, then the Government are prepared to enforce it through legislation, if necessary. The Human Genetics Commission (HGC) has been asked to work closely with the GAIC to provide Government with further advice in developing a longer- term policy on the use of genetic information by insurance companies. The GAIC and HGC will also monitor the effectiveness of the Association of British Insurers (ABI) code of practice on genetics, which is mandatory for all ABI members. The HGC and GAIC held a well-received joint public meeting in September 2003. A number of interested groups and members of the public attended this meeting, including representatives from organisations concerned with genetic disorders, as well as from insurance and re-insurance companies, and non- governmental organisations with an interest in this area. The HGC and GAIC are planning a further such meeting in 2004. Research is also under way to consider the use of genetic information in insurance underwriting. This research will be completed by 2005.

Date

11 December 2003

Reference

415 c595-6W; 142268;142269;142270

House

House of Commons

Our inheritance, our future: realising the potential of genetics in the NHS, including summary, in 2 volumes.

Type

White papers; Command papers

Notes

Received 25.06.03

Date

24 June 2003

Reference

CM 5791

House

House of Commons

Lords statement on the publication of the White Paper on genetics and healthcare 'Our inheritance, our future - realising the potential of genetics in the NHS'

Lords statement on the publication of the White Paper on genetics and healthcare 'Our inheritance, our future - realising the potential of genetics in the NHS'. (Cm 5791).

Lead member

Lord Warner

Department

Department of Health

Type

Ministerial statements

Date

24 June 2003

Reference

650 c144-53

House

House of Lords

Statement on the white paper on genetics (Cm 5791)

Statement on the white paper on genetics (Cm 5791).

Lead member

Lord Reid of Cardowan

Department

Department of Health

Type

Ministerial statements

Date

24 June 2003

Reference

407 c876-92

House

House of Commons

Home Office

To ask the Secretary of State for the Home Department, what response the Government has made to the Human Genetics Commission's recommendations in their report, Inside Information, of May 2002, that (a) the Government should promote a greater degree of dialogue about the justification for the apparent increase in the...

Asked by

Ian Gibson (Labour)

Answering body

Home Office

Type

Written questions

Status

Answered

Tabled on

31 March 2003

For answer on

8 April 2003

Answered on

8 April 2003

Dr. Gibson: To ask the Secretary of State for the Home Department what response the Government have made to the Human Genetics Commission's recommendations in their report, Inside Information, of May 2002, that (a) the Government should promote a greater degree of dialogue about the justification for the apparent increase in the range of offences for which DNA samples may be taken, (b) the Home Office and the Association of Chief Police Officers establish an independent body, including lay membership, to oversee the work of the national DNA database custodian and the profile suppliers and (c) consideration be given to the creation of a criminal offence of the non-consensual or deceitful obtaining and analysis of personal genetic information for non-medical purposes. [106913] Mr. Bob Ainsworth: The Government response to the main recommendations of the Human Genetics Commission report will be published shortly. This response will address the issues raised by my hon. Friend at points (b) and (c). Under the provisions of section 63 of the Police and Criminal Evidence Act 1984, the police may take non- intimate DNA samples from all those charged with, informed they will be reported for, or convicted of a recordable offence. The police may also take a non- intimate sample from those suspected of a recordable offence where there are grounds for believing the sample will tend to confirm or disprove the suspect's involvement. There are no plans to amend the category of offences for which a non-intimate sample may be taken. A recordable offence is one set out in the National Police Records (Recordable Offences) Regulations 2000 (S.I. 2000 No. 1139).

Date

8 April 2003

Reference

106913; 403 c209-10W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what representations have been received from consumers and patient organisations as part of the HGC consultation on regulation of genetic testing services supplied direct to the public; and whether these organisations favoured (a) statutory regulation and (b) a voluntary industry code; how...

Asked by

Ian Gibson (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 December 2002

Reference

396 c784-5W; 85203;85206;85207;85205

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what the procedures are for (a) appointing (i) members and (ii) chairpersons of working groups for the HGC and (b) addressing potential conflicts of interest amongst HGC working group members and chairpersons.

Asked by

Ian Gibson (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

10 December 2002

Reference

85288; 396 c297-8W

House

House of Commons

Developments in human genetics and embryology. Government response to the Science and Technology Select Committee's fourth report of session 2001/02 (HC 791).

Type

Select Committee reports (Government responses); Command papers

Date

25 November 2002

Reference

Cm 5693

House

House of Commons

Home Office

To ask the Secretary of State for the Home Department, when he will bring forward legislation which would make the obtaining of DNA samples without consent an offence. - Including ref to The Human Genetics Commission's Report, Inside Information - balancing interests in the use of personal genetic data. (Holding...

Asked by

David Stewart (Labour)

Answering body

Home Office

Type

Written questions

Status

Answered

Date

24 July 2002

Reference

66872; 389 c1519W;389 c1517W

House

House of Commons

Human genetics and embryology. Minutes of evidence 24 April 2002. (Printed with Committees fourth report session 2001/02 also laid as HC 791)

Type

Select Committee reports; House of Commons papers; Parliamentary committees

Committee

Science and Technology Committee

Date

24 April 2002

Reference

HC 791 2001/02

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what scientific advice he has received on the relative merits of (a) cell research and (b) the further development of pharmaceutical products in developing a cure for type 1 diabetes.

Asked by

George Howarth (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

29 January 2002

Reference

30544; 379 c280-1W;379 c278-9W

House

House of Commons

Westminster Hall adjournment debate on Genetics and Insurance

Lead member

Lynne Jones

Answering member

Baroness Smith of Malvern

Department

Department of Health

Type

Adjournment debates

Date

25 October 2001

Reference

373 c139-82WH

House

House of Commons

Genetics and insurance. Science and Technology Select Committee fifth report with proceedings, evidence (HC 174 i-ii 2000/01 not printed separately) and appendices. (Part 1 of 2)

Type

Select Committee reports; House of Commons papers; Parliamentary committees

Committee

Science and Technology Committee

Notes

Received 03.04.01

Date

26 March 2001

Reference

HC 174 2000/01

House

House of Commons

Statement on the human genome project

Statement on the human genome project.

Lead member

Patricia Hewitt

Department

Department of Trade and Industry

Type

Ministerial statements

Date

26 June 2000

Reference

352 c659-68

House

House of Commons

Librarians' tools

Type

House

Session

Year

Department

Member

Primary member

Answering member

Legislative stage

Legislation

Subject

Publisher