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To ask His Majesty's Government what data they collect on variation in diagnostic waiting times between Integrated Care Boards; and whether those data will be published routinely.
To ask His Majesty's Government what data they collect on variation in diagnostic waiting times between Integrated Care Boards; and whether those data will be published routinely.
To ask His Majesty's Government what assessment they have made of the implications for NHS capacity of the increase in the ophthalmology waiting list since July 2024 despite reductions in waiting lists across 20 of the NHS's 23 outpatient specialties; and what plans they have to increase capacity in hospital...
To ask His Majesty's Government what assessment they have made of the implications for NHS capacity of the increase in the ophthalmology waiting list since July 2024 despite reductions in waiting lists across 20 of the NHS's 23 outpatient specialties; and what plans they have to increase capacity in hospital...
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of using the NHS Lung Cancer Screening Programme to improve the earlier diagnosis of chronic respiratory diseases, including COPD.
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of using the NHS Lung Cancer Screening Programme to improve the earlier diagnosis of chronic respiratory diseases, including COPD.
The NHS Lung Cancer Screening Programme is designed to detect lung cancer at an earlier stage in people at high risk of developing the disease.
The Government is advised on all screening matters by the independent UK National Screening Committee (UK NSC). At its most recent review in June 2022, the UK NSC recommended targeted lung cancer screening for people aged 55 to 74 years old who are at high risk of developing lung cancer. The modelling that informed this recommendation did not include chronic respiratory diseases, including chronic obstructive pulmonary disease (COPD).
NHS England has introduced a national Incidental Findings Protocol to ensure clinically significant incidental findings are referred for appropriate investigation and follow-up through established National Health Service pathways.
In April 2026, the UK NSC concluded a three-month public consultation on screening for COPD. The outcome of this consultation will be published in due course. In addition, the UK NSC's annual open call for new evidence and proposals for screening programmes is currently open until 30 September 2026, providing an opportunity for individuals and organisations to submit proposals supported by evidence.
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the availability of early intervention and treatment pathways for children with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS); and what steps he is taking...
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the availability of early intervention and treatment pathways for children with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS); and what steps he is taking...
Paediatric acute-onset neuropsychiatric syndrome (PANS) and paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) are distressing conditions for children, young people, and their families, and we recognise the challenges that families face.
The Department acknowledges the importance of raising awareness of PANS/PANDAS to improve diagnosis. That is why we welcome the formation of the PANS PANDAS Steering Group which includes representatives from key royal colleges, specialist clinical bodies, and the national charity PANS PANDAS UK. The steering group has already taken action to improve awareness, understanding, and care.
Work is underway to develop the first United Kingdom clinical guidelines for PANS and PANDAS, led by a multidisciplinary group and supported by the Royal College of Paediatrics and Child Health. These guidelines are expected to be published in autumn 2026 and will support more consistent care across the system. Pending publication, the PANS PANDAS Steering Group recommends that clinicians be aware of existing international peer-reviewed guidelines, including the PANS research consortium treatment guidelines, published in 2017, and the clinical guidance for diagnosis and management of PANS in the Nordic Countries, published in 2021.
With the backing of NHS England, a dedicated PANS PANDAS research group is advancing efforts to strengthen the evidence base, including through a nationwide surveillance study, designed to identify the number of children and young people presenting to healthcare professionals with symptoms matching the diagnostic criteria for PANS and PANDAS.
In addition, a cross-sector group is developing practical guidance for local authorities to improve support for children and young people living with PANS and PANDAS. Publication is due later this year, ensuring more consistent access to appropriate educational and social care services.
More widely, healthcare professionals are responsible for ensuring their own clinical knowledge remains up-to-date and for identifying learning needs as part of their continuing professional development. This includes taking account of new research and developments in guidance, such as that produced by the National Institute for Health and Care Excellence, to ensure that they can continue to provide high quality care to all patients.
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the level of clinical awareness and training on Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) among NHS professionals; and what steps...
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the level of clinical awareness and training on Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) among NHS professionals; and what steps...
Paediatric acute-onset neuropsychiatric syndrome (PANS) and paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) are distressing conditions for children, young people, and their families, and we recognise the challenges that families face.
The Department acknowledges the importance of raising awareness of PANS/PANDAS to improve diagnosis. That is why we welcome the formation of the PANS PANDAS Steering Group which includes representatives from key royal colleges, specialist clinical bodies, and the national charity PANS PANDAS UK. The steering group has already taken action to improve awareness, understanding, and care.
Work is underway to develop the first United Kingdom clinical guidelines for PANS and PANDAS, led by a multidisciplinary group and supported by the Royal College of Paediatrics and Child Health. These guidelines are expected to be published in autumn 2026 and will support more consistent care across the system. Pending publication, the PANS PANDAS Steering Group recommends that clinicians be aware of existing international peer-reviewed guidelines, including the PANS research consortium treatment guidelines, published in 2017, and the clinical guidance for diagnosis and management of PANS in the Nordic Countries, published in 2021.
With the backing of NHS England, a dedicated PANS PANDAS research group is advancing efforts to strengthen the evidence base, including through a nationwide surveillance study, designed to identify the number of children and young people presenting to healthcare professionals with symptoms matching the diagnostic criteria for PANS and PANDAS.
In addition, a cross-sector group is developing practical guidance for local authorities to improve support for children and young people living with PANS and PANDAS. Publication is due later this year, ensuring more consistent access to appropriate educational and social care services.
More widely, healthcare professionals are responsible for ensuring their own clinical knowledge remains up-to-date and for identifying learning needs as part of their continuing professional development. This includes taking account of new research and developments in guidance, such as that produced by the National Institute for Health and Care Excellence, to ensure that they can continue to provide high quality care to all patients.
To ask the Secretary of State for Health and Social Care, whether he has made an assessment on the potential impact of introducing specific diagnostic or reporting time standards for patients with a limited or terminal prognosis.
To ask the Secretary of State for Health and Social Care, whether he has made an assessment on the potential impact of introducing specific diagnostic or reporting time standards for patients with a limited or terminal prognosis.
While no specific assessment has been made of diagnostic imaging turnaround time guidance and the needs of patients with a recognised terminal diagnosis or the impact of separate reporting time standards, the Government is committed to reducing waiting times for all patients and expects providers to communicate findings in a compassionate manner.
NHS England has established diagnostic reporting turnaround time guidance that applies to all patients. For diagnostic imaging tests, including computed tomography and magnetic resonance imaging scans, the guidance states that verified reports should be available within four weeks of image acquisition. Performance against turnaround times is monitored through routine national reporting. In addition, cancer pathways are supported by national cancer waiting time standards, including the Faster Diagnosis Standard, which aims to ensure that patients receive a diagnosis or have cancer ruled out promptly following an urgent suspected cancer referral. The Faster Diagnosis Standard applies to urgent referrals for suspected cancer recurrence.
We are developing a Modern Service Framework (MSF) for Palliative Care and End-of-Life Care. The MSF is a clinically led, evidence-based framework to support sustained improvement in outcomes for patients and carers, including by systematically identifying, measuring, and reducing health inequalities, and reducing unwarranted variation in access, experience, and outcomes. Further metrics and associated targets will build on the 2029 ambitions set out in the Neighbourhood Health Framework.
To ask the Secretary of State for Health and Social Care, what the median waiting time was from GP referral to confirmed diagnosis for patients diagnosed with sarcoma in the latest period for which data is available.
To ask the Secretary of State for Health and Social Care, what the median waiting time was from GP referral to confirmed diagnosis for patients diagnosed with sarcoma in the latest period for which data is available.
Data is not held on the exact median waiting time to diagnosis for suspected sarcoma from general practice referral. Data is published on the time from referral to diagnosis for suspected sarcoma, by time bands, at the following link:
The following table shows the number of suspected sarcoma diagnoses, or cancer being ruled out, sorted by time band, in May 2026 for England:
Time band | Number of suspected sarcoma diagnoses or cancer ruled out in time band |
Within 14 days | 450 |
In 15 to 28 days | 429 |
In 29 to 42 days | 136 |
In 43 to 62 days | 95 |
After 62 days | 86 |
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help ensure people are able to access a timely diagnosis for arthritis and musculoskeletal conditions in (a) Newcastle-under-Lyme and b) Staffordshire.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help ensure people are able to access a timely diagnosis for arthritis and musculoskeletal conditions in (a) Newcastle-under-Lyme and b) Staffordshire.
To support healthcare professionals in the early diagnosis and management of arthritis, the National Institute for Health and Care Excellence has published expert guidance for both rheumatoid arthritis and osteoarthritis, which are available at the following links:
https://www.nice.org.uk/guidance/ng100
https://www.nice.org.uk/guidance/ng226
The Royal College of General Practitioners also has a range of e-learning materials to support general practitioners (GPs) and other primary care professionals in the diagnosis and management of arthritis, including a rheumatoid arthritis hub and an osteoarthritis hub.
We are supporting better care for patients with arthritis through the Getting It Right First Time Programme (GIRFT) for Rheumatology. The GIRFT rheumatology programme is supporting the National Health Service to deliver care more equitably across England and closer to patients’ homes, and improve services nationally.
To support people with musculoskeletal (MSK) conditions, we are working to deliver the GIRFT MSK Community Delivery Programme. GIRFT teams are working directly with health system leaders to reduce MSK community waiting lists, including for people with arthritis, and support the recovery, long-term transformation and ongoing delivery of high-quality accessible community MSK services.
As part of a major transformation of the NHS under the 10-Year Health Plan, patients with MSK conditions will also soon be able to directly access community services, including physiotherapy, pain management and orthopaedics, in the NHS App. The landmark change will deliver faster treatment for the flare up of existing conditions including arthritis, backpain and joint pain, while enabling GPs to focus on more complex cases, reducing pressure on hospitals and freeing up GP practices.
To ask the Secretary of State for Health and Social Care, what the (a) shortest, (b) median, and (c) longest time was for patients to receive the results of a suspected cancer biopsy for each of the last 12 months, broken down by hospital trust.
To ask the Secretary of State for Health and Social Care, what the (a) shortest, (b) median, and (c) longest time was for patients to receive the results of a suspected cancer biopsy for each of the last 12 months, broken down by hospital trust.
The Department does not hold the data on the shortest, median, and longest time for patients to receive the results of a suspected cancer biopsy, broken down by National Health Service trust.
How can the upcoming Health Data Research Service simplify access to national health data for research opportunities, while addressing technical challenges, security, governance and public trust?
How can the upcoming Health Data Research Service simplify access to national health data for research opportunities, while addressing technical challenges, security, governance and public trust?
To ask the Secretary of State for Health and Social Care, what assessment he has made of trends in the level of variations in waiting times for glaucoma diagnosis and treatment across England.
To ask the Secretary of State for Health and Social Care, what assessment he has made of trends in the level of variations in waiting times for glaucoma diagnosis and treatment across England.
No formal assessment has been made. The Department does not hold data on waiting times for glaucoma treatment. However, for ophthalmology, which covers glaucoma treatment, as of May 2026, 74.1% of patient pathways were waiting within 18 weeks. This is an improvement of 3.9% over the past year.
We are committed to returning by March 2029 to the National Health Service constitutional standard that 92% of patients wait no longer than 18 weeks from referral to consultant-led treatment across England, including for ophthalmology. We are investing in and modernising NHS services to support this, including through our new online hospital, NHS Online, which will help reduce patient waiting times across England by giving people on glaucoma pathways the choice of getting the specialist care they need from their home. NHS Online will deliver the equivalent of up to 8.5 million appointment and assessments in its first three years across all specialities. We are also expanding the number of surgical hubs, which provide dedicated and protected elective capacity to drive improvement in six specialities, including ophthalmology.
To ask His Majesty's Government what assessment they have made of the impact of recruitment freezes in radiology on the likelihood of the NHS achieving its targets for cancer diagnostic test waiting periods in the NHS Medium Term Planning Framework.
To ask His Majesty's Government what assessment they have made of the impact of recruitment freezes in radiology on the likelihood of the NHS achieving its targets for cancer diagnostic test waiting periods in the NHS Medium Term Planning Framework.
The Government is committed to the National Health Service meeting all cancer waiting time standards by the end of this Parliament. NHS England continues to work towards its March 2027 cancer performance ambitions, including improvements in diagnostic and treatment waiting times.
Recruitment decisions are matters for individual NHS trusts, which are responsible for ensuring they have the workforce required to deliver safe and effective services.
The Government continues to support workforce growth across cancer services and there were more clinical oncology and radiology doctors working in NHS England in April 2026 than in April 2025.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of higher quality assessments for autism and ADHD on levels of welfare.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of higher quality assessments for autism and ADHD on levels of welfare.
The Government is committed to supporting people to have equitable access to safe, effective, and high-quality autism and attention deficit hyperactivity disorder (ADHD) assessment services. We recognise that, nationally in England, demand for assessments for autism and ADHD has grown significantly in recent years and that people are experiencing severe delays accessing such assessments.
The Government announced on 4 December 2025 the launch of an Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism. The final report, due in the summer, will make recommendations on how the Government, the health system, and wider public services can respond to increasing demand for support more fairly and effectively so that people receive the right support, at the right time, in the right place. The next stage of the review will look at service design and how services might respond more effectively to rising need, including the role of earlier intervention, community-based provision, and more integrated pathways across health, education, and other public services. The review will also look at the question of what role the private sector plays in diagnostic services.
The Timms Review, the first review of the Personal Independence Payment benefit, is examining how it can better support disabled people to live independently and access the right support at the right level. The review is due to report in the autumn. Additionally, the Milburn Review on Young People and Work is examining how health conditions can affect participation in education, employment, and training, and the implications for welfare dependency. It published its interim report on 28 May, with the final report due to be published later this year. The Government will consider the findings from these reviews, alongside those of the Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism.
It is the responsibility of integrated care boards in England to make available appropriate provision to meet the health and care needs of their local population, including providing access to autism and ADHD services in line with relevant National Institute for Health and Care Excellence guidelines.
NHS England has published guidance to support consistent, high–quality autism assessments and the guidance includes information about the specialist clinical skills required to undertake different aspects of the assessment process. NHS England has also issued advice to local systems on ADHD service delivery.
The measures outlined above are intended to support accurate, timely, and consistent assessments across providers and the current ongoing reviews will help inform future Government decisions.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of ensuring better quality ADHD and autism assessments on the number of assessments that result in a) misdiagnosis, and b) the failure to reach a conclusion.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of ensuring better quality ADHD and autism assessments on the number of assessments that result in a) misdiagnosis, and b) the failure to reach a conclusion.
The Government is committed to supporting people to have equitable access to safe, effective, and high-quality autism and attention deficit hyperactivity disorder (ADHD) assessment services, irrespective of their service provider. We recognise that, nationally in England, demand for assessments for autism and ADHD has grown significantly in recent years and that people are experiencing severe delays accessing such assessments. The independent sector provides important service capacity within autism and ADHD services.
The Government announced on 4 December 2025 the launch of an Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism. The final report, due in the summer, will make recommendations on how the Government, the health system, and wider public services can respond to increasing demand for assessment and support more fairly and effectively so that people receive the right support, at the right time, in the right place. The interim report was published in March, and the next stage of the review will look at service design and how services might respond more effectively to rising need, including the role of earlier intervention, community-based provision, and more integrated pathways across health, education, and other public services. The review will also look at the question of what role the private sector plays in diagnostic services.
It remains the responsibility of integrated care boards in England to make available appropriate provision to meet the health and care needs of their local population, including providing access to autism and ADHD services in line with relevant National Institute for Health and Care Excellence (NICE) guidelines.
In October 2025, NHS England issued advice to systems on ADHD service delivery and prioritisation, including guidance on managing service provisions, reviewing waiting lists, and providing patient support. In April 2023, NHS England published a national framework and operational guidance for autism assessment services, which can be found at the following link:
www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance
This guidance intends to help providers of National Health Services improve autism assessment services and improve the experience for those referred to a service.
We are aware of the concerns that have been raised regarding autism and ADHD assessment-only services, including around consistency, quality, and regulation, and officials are considering these issues with relevant partners.
The Department has not made an assessment of the number of inconclusive autism or ADHD assessments or of those resulting in misdiagnosis, nor of the potential impact of such outcomes on long-term health expenditure. However, NICE guidance sets out evidence-based requirements for assessment and diagnosis, including consideration of differential diagnoses and co-occurring conditions. This is intended to support accurate and robust diagnostic decision-making.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that all ADHD and autism assessments are of a high standard, regardless of assessment provider.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that all ADHD and autism assessments are of a high standard, regardless of assessment provider.
The Government is committed to supporting people to have equitable access to safe, effective, and high-quality autism and attention deficit hyperactivity disorder (ADHD) assessment services, irrespective of their service provider. We recognise that, nationally in England, demand for assessments for autism and ADHD has grown significantly in recent years and that people are experiencing severe delays accessing such assessments. The independent sector provides important service capacity within autism and ADHD services.
The Government announced on 4 December 2025 the launch of an Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism. The final report, due in the summer, will make recommendations on how the Government, the health system, and wider public services can respond to increasing demand for assessment and support more fairly and effectively so that people receive the right support, at the right time, in the right place. The interim report was published in March, and the next stage of the review will look at service design and how services might respond more effectively to rising need, including the role of earlier intervention, community-based provision, and more integrated pathways across health, education, and other public services. The review will also look at the question of what role the private sector plays in diagnostic services.
It remains the responsibility of integrated care boards in England to make available appropriate provision to meet the health and care needs of their local population, including providing access to autism and ADHD services in line with relevant National Institute for Health and Care Excellence (NICE) guidelines.
In October 2025, NHS England issued advice to systems on ADHD service delivery and prioritisation, including guidance on managing service provisions, reviewing waiting lists, and providing patient support. In April 2023, NHS England published a national framework and operational guidance for autism assessment services, which can be found at the following link:
www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance
This guidance intends to help providers of National Health Services improve autism assessment services and improve the experience for those referred to a service.
We are aware of the concerns that have been raised regarding autism and ADHD assessment-only services, including around consistency, quality, and regulation, and officials are considering these issues with relevant partners.
The Department has not made an assessment of the number of inconclusive autism or ADHD assessments or of those resulting in misdiagnosis, nor of the potential impact of such outcomes on long-term health expenditure. However, NICE guidance sets out evidence-based requirements for assessment and diagnosis, including consideration of differential diagnoses and co-occurring conditions. This is intended to support accurate and robust diagnostic decision-making.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of the number of ADHD and autism assessments resulting in a) misdiagnosis and b) no conclusion on long-term costs to the health budget.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of the number of ADHD and autism assessments resulting in a) misdiagnosis and b) no conclusion on long-term costs to the health budget.
The Government is committed to supporting people to have equitable access to safe, effective, and high-quality autism and attention deficit hyperactivity disorder (ADHD) assessment services, irrespective of their service provider. We recognise that, nationally in England, demand for assessments for autism and ADHD has grown significantly in recent years and that people are experiencing severe delays accessing such assessments. The independent sector provides important service capacity within autism and ADHD services.
The Government announced on 4 December 2025 the launch of an Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism. The final report, due in the summer, will make recommendations on how the Government, the health system, and wider public services can respond to increasing demand for assessment and support more fairly and effectively so that people receive the right support, at the right time, in the right place. The interim report was published in March, and the next stage of the review will look at service design and how services might respond more effectively to rising need, including the role of earlier intervention, community-based provision, and more integrated pathways across health, education, and other public services. The review will also look at the question of what role the private sector plays in diagnostic services.
It remains the responsibility of integrated care boards in England to make available appropriate provision to meet the health and care needs of their local population, including providing access to autism and ADHD services in line with relevant National Institute for Health and Care Excellence (NICE) guidelines.
In October 2025, NHS England issued advice to systems on ADHD service delivery and prioritisation, including guidance on managing service provisions, reviewing waiting lists, and providing patient support. In April 2023, NHS England published a national framework and operational guidance for autism assessment services, which can be found at the following link:
www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance
This guidance intends to help providers of National Health Services improve autism assessment services and improve the experience for those referred to a service.
We are aware of the concerns that have been raised regarding autism and ADHD assessment-only services, including around consistency, quality, and regulation, and officials are considering these issues with relevant partners.
The Department has not made an assessment of the number of inconclusive autism or ADHD assessments or of those resulting in misdiagnosis, nor of the potential impact of such outcomes on long-term health expenditure. However, NICE guidance sets out evidence-based requirements for assessment and diagnosis, including consideration of differential diagnoses and co-occurring conditions. This is intended to support accurate and robust diagnostic decision-making.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure assessments for autism and ADHD are a) conclusive, and b) do not result in misdiagnosis.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure assessments for autism and ADHD are a) conclusive, and b) do not result in misdiagnosis.
The Government is committed to supporting people to have equitable access to safe, effective, and high-quality autism and attention deficit hyperactivity disorder (ADHD) assessment services, irrespective of their service provider. We recognise that, nationally in England, demand for assessments for autism and ADHD has grown significantly in recent years and that people are experiencing severe delays accessing such assessments. The independent sector provides important service capacity within autism and ADHD services.
The Government announced on 4 December 2025 the launch of an Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism. The final report, due in the summer, will make recommendations on how the Government, the health system, and wider public services can respond to increasing demand for assessment and support more fairly and effectively so that people receive the right support, at the right time, in the right place. The interim report was published in March, and the next stage of the review will look at service design and how services might respond more effectively to rising need, including the role of earlier intervention, community-based provision, and more integrated pathways across health, education, and other public services. The review will also look at the question of what role the private sector plays in diagnostic services.
It remains the responsibility of integrated care boards in England to make available appropriate provision to meet the health and care needs of their local population, including providing access to autism and ADHD services in line with relevant National Institute for Health and Care Excellence (NICE) guidelines.
In October 2025, NHS England issued advice to systems on ADHD service delivery and prioritisation, including guidance on managing service provisions, reviewing waiting lists, and providing patient support. In April 2023, NHS England published a national framework and operational guidance for autism assessment services, which can be found at the following link:
www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance
This guidance intends to help providers of National Health Services improve autism assessment services and improve the experience for those referred to a service.
We are aware of the concerns that have been raised regarding autism and ADHD assessment-only services, including around consistency, quality, and regulation, and officials are considering these issues with relevant partners.
The Department has not made an assessment of the number of inconclusive autism or ADHD assessments or of those resulting in misdiagnosis, nor of the potential impact of such outcomes on long-term health expenditure. However, NICE guidance sets out evidence-based requirements for assessment and diagnosis, including consideration of differential diagnoses and co-occurring conditions. This is intended to support accurate and robust diagnostic decision-making.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure high quality assessments for autism and ADHD.
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure high quality assessments for autism and ADHD.
The Government is committed to supporting people to have equitable access to safe, effective, and high-quality autism and attention deficit hyperactivity disorder (ADHD) assessment services, irrespective of their service provider. We recognise that, nationally in England, demand for assessments for autism and ADHD has grown significantly in recent years and that people are experiencing severe delays accessing such assessments. The independent sector provides important service capacity within autism and ADHD services.
The Government announced on 4 December 2025 the launch of an Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism. The final report, due in the summer, will make recommendations on how the Government, the health system, and wider public services can respond to increasing demand for assessment and support more fairly and effectively so that people receive the right support, at the right time, in the right place. The interim report was published in March, and the next stage of the review will look at service design and how services might respond more effectively to rising need, including the role of earlier intervention, community-based provision, and more integrated pathways across health, education, and other public services. The review will also look at the question of what role the private sector plays in diagnostic services.
It remains the responsibility of integrated care boards in England to make available appropriate provision to meet the health and care needs of their local population, including providing access to autism and ADHD services in line with relevant National Institute for Health and Care Excellence (NICE) guidelines.
In October 2025, NHS England issued advice to systems on ADHD service delivery and prioritisation, including guidance on managing service provisions, reviewing waiting lists, and providing patient support. In April 2023, NHS England published a national framework and operational guidance for autism assessment services, which can be found at the following link:
www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance
This guidance intends to help providers of National Health Services improve autism assessment services and improve the experience for those referred to a service.
We are aware of the concerns that have been raised regarding autism and ADHD assessment-only services, including around consistency, quality, and regulation, and officials are considering these issues with relevant partners.
The Department has not made an assessment of the number of inconclusive autism or ADHD assessments or of those resulting in misdiagnosis, nor of the potential impact of such outcomes on long-term health expenditure. However, NICE guidance sets out evidence-based requirements for assessment and diagnosis, including consideration of differential diagnoses and co-occurring conditions. This is intended to support accurate and robust diagnostic decision-making.
To ask the Secretary of State for Health and Social Care, whether measures are in place to monitor adherence by ADHD assessment providers to NICE guidelines and UK Adult ADHD Network recommendations.
To ask the Secretary of State for Health and Social Care, whether measures are in place to monitor adherence by ADHD assessment providers to NICE guidelines and UK Adult ADHD Network recommendations.
The Government is committed to supporting people to have equitable access to safe, effective, and high-quality attention deficit hyperactivity disorder (ADHD) assessment services, irrespective of their service provider. We recognise that, nationally in England, demand for assessments for ADHD has grown significantly in recent years and that people are experiencing severe delays accessing such assessments. The independent sector provides important service capacity within ADHD services.
It is the responsibility of integrated care boards in England to make available appropriate provision to meet the health and care needs of their local population, including providing access to ADHD services in line with relevant National Institute for Health and Care Excellence guidelines. NHS England has issued advice to local systems on ADHD service delivery and prioritisation, including guidance on managing service provisions, reviewing waiting lists, and providing patient support.
Departmental officials engage regularly with the Care Quality Commission on matters relating to health service quality and regulation. We are aware of concerns that have been raised regarding some ADHD assessment-only services and are considering these issues with relevant partners.
The Government announced on 4 December 2025 the launch of an Independent Review into Prevalence and Support for Mental Health Conditions, ADHD and Autism. The final report, due in the summer, will make recommendations on how the Government, the health system, and wider public services can respond to increasing demand for assessment and support more fairly and effectively so that people receive the right support, at the right time, in the right place. The next stage of the review will look at the question of what role the private sector plays in diagnostic services.