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To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that Government policy and NHS guidance relating to diethylstilbestrol (DES) exposure are communicated to and accessible by all people exposed to DES in utero throughout the United Kingdom.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that Government policy and NHS guidance relating to diethylstilbestrol (DES) exposure are communicated to and accessible by all people exposed to DES in utero throughout the United Kingdom.
I apologise unreservedly and express my sincere sympathy to all those affected by exposure to diethylstilbestrol (DES), including those exposed in utero and their families. National Health Service records are held by individual NHS organisations and general practices, and clinicians can record clinically relevant information, including known exposure to DES, in a patient’s own medical record where this is brought to their attention and is relevant to their care.
Women who believe or know that they were exposed to DES in utero may need regular colposcopy, which falls outside the routine screening programme. They should speak to their general practitioner about this, as local arrangements should be made for the follow up of women who have been exposed to DES where clinically indicated.
NHS England has asked Cancer Alliances to cascade existing guidance to clinical networks, including general practitioners and other health professionals who may come into contact with DES-exposed patients, so that appropriate follow-up can be arranged locally where needed.
The Department has commissioned the University of Exeter, through the National Institute for Health and Care Research, to review the latest evidence on the impacts of DES, including its long-term, intergenerational, and psychosocial effects. That work will help inform future decisions on clinical guidance, treatment pathways, and any screening arrangements for people affected by DES.
The Department will continue to work with NHS England and relevant partners to support awareness of the existing guidance for clinicians and patients affected by DES exposure.
To ask the Secretary of State for Health and Social Care, whether he plans to issue guidance to NHS England on the provision of additional cervical and vaginal cancer surveillance for women exposed in utero to diethylstilbestrol (DES), beyond HPV primary screening, where clinically indicated.
To ask the Secretary of State for Health and Social Care, whether he plans to issue guidance to NHS England on the provision of additional cervical and vaginal cancer surveillance for women exposed in utero to diethylstilbestrol (DES), beyond HPV primary screening, where clinically indicated.
I apologise unreservedly and express my sincere sympathy to all those affected by exposure to diethylstilbestrol (DES), including those exposed in utero and their families. National Health Service records are held by individual NHS organisations and general practices, and clinicians can record clinically relevant information, including known exposure to DES, in a patient’s own medical record where this is brought to their attention and is relevant to their care.
Women who believe or know that they were exposed to DES in utero may need regular colposcopy, which falls outside the routine screening programme. They should speak to their general practitioner about this, as local arrangements should be made for the follow up of women who have been exposed to DES where clinically indicated.
NHS England has asked Cancer Alliances to cascade existing guidance to clinical networks, including general practitioners and other health professionals who may come into contact with DES-exposed patients, so that appropriate follow-up can be arranged locally where needed.
The Department has commissioned the University of Exeter, through the National Institute for Health and Care Research, to review the latest evidence on the impacts of DES, including its long-term, intergenerational, and psychosocial effects. That work will help inform future decisions on clinical guidance, treatment pathways, and any screening arrangements for people affected by DES.
The Department will continue to work with NHS England and relevant partners to support awareness of the existing guidance for clinicians and patients affected by DES exposure.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that individuals known to have been exposed to diethylstilbestrol (DES) in utero have that exposure recorded on their own NHS medical records, rather than solely on the records of their mothers.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that individuals known to have been exposed to diethylstilbestrol (DES) in utero have that exposure recorded on their own NHS medical records, rather than solely on the records of their mothers.
I apologise unreservedly and express my sincere sympathy to all those affected by exposure to diethylstilbestrol (DES), including those exposed in utero and their families. National Health Service records are held by individual NHS organisations and general practices, and clinicians can record clinically relevant information, including known exposure to DES, in a patient’s own medical record where this is brought to their attention and is relevant to their care.
Women who believe or know that they were exposed to DES in utero may need regular colposcopy, which falls outside the routine screening programme. They should speak to their general practitioner about this, as local arrangements should be made for the follow up of women who have been exposed to DES where clinically indicated.
NHS England has asked Cancer Alliances to cascade existing guidance to clinical networks, including general practitioners and other health professionals who may come into contact with DES-exposed patients, so that appropriate follow-up can be arranged locally where needed.
The Department has commissioned the University of Exeter, through the National Institute for Health and Care Research, to review the latest evidence on the impacts of DES, including its long-term, intergenerational, and psychosocial effects. That work will help inform future decisions on clinical guidance, treatment pathways, and any screening arrangements for people affected by DES.
The Department will continue to work with NHS England and relevant partners to support awareness of the existing guidance for clinicians and patients affected by DES exposure.
To ask the Secretary of State for Health and Social Care, if he would hold a public inquiry into the effects of diethylstilbestrol.
To ask the Secretary of State for Health and Social Care, if he would hold a public inquiry into the effects of diethylstilbestrol.
I apologise and express my sincere sympathy to all those affected by exposure to diethylstilbestrol (DES), including those exposed in utero and their families.
The Government’s focus is on carefully considering the available evidence and determining the most appropriate next steps, rather than establishing a public inquiry. Current work includes ensuring that appropriate clinical pathways, professional awareness, and sources of support are in place for people who may have been affected by DES exposure.
Employers in the health system are responsible for ensuring that their staff are trained to the required standards to deliver safe and effective treatment for patients.
To ask the Secretary of State for Health and Social Care, what training healthcare professionals are given on the impacts of diethylstilbestrol.
To ask the Secretary of State for Health and Social Care, what training healthcare professionals are given on the impacts of diethylstilbestrol.
I apologise and express my sincere sympathy to all those affected by exposure to diethylstilbestrol (DES), including those exposed in utero and their families.
The Government’s focus is on carefully considering the available evidence and determining the most appropriate next steps, rather than establishing a public inquiry. Current work includes ensuring that appropriate clinical pathways, professional awareness, and sources of support are in place for people who may have been affected by DES exposure.
Employers in the health system are responsible for ensuring that their staff are trained to the required standards to deliver safe and effective treatment for patients.
I am grateful to have secured this important debate.
I begin by asking the House to imagine a young woman in Britain in the 1950s. She is pregnant, she may have struggled to conceive and she may already have experienced the heartbreak of miscarriage, so she is desperate to do everything...
I am grateful to have secured this important debate.
I begin by asking the House to imagine a young woman in Britain in the 1950s. She is pregnant, she may have struggled to conceive and she may already have experienced the heartbreak of miscarriage, so she is desperate to do everything...
I commend the hon. Member for Bournemouth West (Jessica Toale) for securing the debate. I spoke to her beforehand to obtain her permission to intervene. As she rightly says, over 300,000 women in the UK were prescribed DES in one of the worst medical disasters in NHS history. Repercussions of...
I commend the hon. Member for Bournemouth West (Jessica Toale) for securing the debate. I spoke to her beforehand to obtain her permission to intervene. As she rightly says, over 300,000 women in the UK were prescribed DES in one of the worst medical disasters in NHS history. Repercussions of...
Yes, I agree that research is needed and that is one of the things that DES campaigners are calling for.
One of those 300,000 women was Rita, the mother of my constituent, Jan Hall. Rita was prescribed DES when she was pregnant with Jan, but when Jan was just a toddler,...
Yes, I agree that research is needed and that is one of the things that DES campaigners are calling for.
One of those 300,000 women was Rita, the mother of my constituent, Jan Hall. Rita was prescribed DES when she was pregnant with Jan, but when Jan was just a toddler,...
One of the people in the Gallery is my constituent, Heather Farrant, who came to Parliament today with two of her three daughters. She has lived with the lifelong consequences of her mother’s exposure to DES. Will the hon. Lady commend Heather and all the campaigners for their bravery in...
One of the people in the Gallery is my constituent, Heather Farrant, who came to Parliament today with two of her three daughters. She has lived with the lifelong consequences of her mother’s exposure to DES. Will the hon. Lady commend Heather and all the campaigners for their bravery in...
It was a pleasure to meet Heather today, along with all the other campaigners. I thank them all for having shown such strength in coming forward to share their stories.
One of the cruellest impacts of DES, which sets it apart from other medical scandals, is that its consequences do not...
It was a pleasure to meet Heather today, along with all the other campaigners. I thank them all for having shown such strength in coming forward to share their stories.
One of the cruellest impacts of DES, which sets it apart from other medical scandals, is that its consequences do not...
I thank the hon. Member for securing this really important debate. One of my constituents, who is a DES daughter, came to see me, and she reported that her mother’s health records were lost when her GP moved back in the 1970s. Does the hon. Member share my concern that...
I thank the hon. Member for securing this really important debate. One of my constituents, who is a DES daughter, came to see me, and she reported that her mother’s health records were lost when her GP moved back in the 1970s. Does the hon. Member share my concern that...
Of course. Recordkeeping is one of the issues we face as a campaign group. I know the Department of Health and Social Care is looking at that, and I will come on to that issue later in my remarks.
Limited studies have been done on DES sons, but they suggest that...
Of course. Recordkeeping is one of the issues we face as a campaign group. I know the Department of Health and Social Care is looking at that, and I will come on to that issue later in my remarks.
Limited studies have been done on DES sons, but they suggest that...
I thank my hon. Friend for the powerful speech she is making, and for her campaigning work on this really important issue. I recently met my constituent Susannah, who is a victim of the DES scandal. She spoke movingly about the impact it has had on her life—20 gruelling operations...
I thank my hon. Friend for the powerful speech she is making, and for her campaigning work on this really important issue. I recently met my constituent Susannah, who is a victim of the DES scandal. She spoke movingly about the impact it has had on her life—20 gruelling operations...
I thank my hon. Friend for his intervention. I have also met Susie—she is a doughty campaigner and a real tribute to the movement. I will come on to some of the calls of the DES Justice campaign shortly.
The reason I think we as a nation have a unique responsibility...
I thank my hon. Friend for his intervention. I have also met Susie—she is a doughty campaigner and a real tribute to the movement. I will come on to some of the calls of the DES Justice campaign shortly.
The reason I think we as a nation have a unique responsibility...
There are mothers who carry and have carried unimaginable guilt—a guilt that should never have been theirs to bear. No mother should be made to feel responsible for trusting her doctor, no daughter should be left to feel that her suffering is inexplicable, and no family should be forced to...
There are mothers who carry and have carried unimaginable guilt—a guilt that should never have been theirs to bear. No mother should be made to feel responsible for trusting her doctor, no daughter should be left to feel that her suffering is inexplicable, and no family should be forced to...
I am grateful for the opportunity to respond to this important debate on the intergenerational impact of diethylstilbestrol on women. I begin by applauding the perseverance of my hon. Friend the Member for Bournemouth West (Jessica Toale) and the courage of those affected by the impact of DES, including the...
I am grateful for the opportunity to respond to this important debate on the intergenerational impact of diethylstilbestrol on women. I begin by applauding the perseverance of my hon. Friend the Member for Bournemouth West (Jessica Toale) and the courage of those affected by the impact of DES, including the...
I am here because my constituent Helen, from Romiley, came to see me at my advice surgery on Saturday. I was waiting to raise this point until the Minister was close to ending her speech, because I want to understand what is being done and what more the Government can...
I am here because my constituent Helen, from Romiley, came to see me at my advice surgery on Saturday. I was waiting to raise this point until the Minister was close to ending her speech, because I want to understand what is being done and what more the Government can...
I thank the hon. Member for her question, and pay tribute to Helen. My hon. Friend mentioned this important issue. While there may be 600 women out there, there are many, many more who just do not know—and, I am sure, grandchildren too. Not only should information be widely available...
I thank the hon. Member for her question, and pay tribute to Helen. My hon. Friend mentioned this important issue. While there may be 600 women out there, there are many, many more who just do not know—and, I am sure, grandchildren too. Not only should information be widely available...
Motion lapsed. Motion made and Question proposed, that this House do now adjourn. Agreed to on question.
Motion lapsed. Motion made and Question proposed, that this House do now adjourn. Agreed to on question.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve awareness of DES-related risks (a) among general practitioners and (b) within medical education.
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve awareness of DES-related risks (a) among general practitioners and (b) within medical education.
The Department is working with NHS England to improve awareness of the risks associated with in utero exposure to diethylstilbestrol (DES). National Health Service cervical screening guidance states that women who know or believe they were exposed to DES in utero may require regular colposcopy outside the routine screening programme and should speak to their general practitioner so that appropriate local follow-up arrangements can be made.
In December 2025, Professor Peter Johnson, the National Clinical Director for Cancer, sent a letter to all NHS cancer alliances highlighting the effects of DES. This message was directed to healthcare professionals, including general practitioners, and referenced existing NHS guidance on screening that is available at the following link:
The standard of training for doctors is the responsibility of the General Medical Council (GMC). The GMC does not deliver, design, or commission education and training but sets the outcome standards expected at undergraduate level and approves courses and medical schools to write and teach the curricula content that enables their students to meet the GMC’s outcome standards. Each medical college sets its own undergraduate curriculum.