1-20 of 2,100 results for subject:ME/CFS
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To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure people with severe ME in need of tube feeding can be safely fed lying flat in NHS hospitals.
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure people with severe ME in need of tube feeding can be safely fed lying flat in NHS hospitals.
The National Institute for Health and Care Excellence (NICE) has published guidance on nutrition support for adults and on the diagnosis and management of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). The guidance recognises that people with severe or very severe ME/CFS may be unable to eat and digest food easily and may require support with hydration and nutrition, including enteral tube feeding.
Enteral feeding must be provided safely. Feeding a patient lying flat can increase the risk of aspiration, and clinicians should take the NICE guidance fully into account. However, NICE guidance does not replace clinical judgement. Decisions about positioning and the most appropriate form of nutritional support should be made by the treating clinical team, following an individual assessment of the patient’s needs, risks, and preferences and, where appropriate, with input from a multidisciplinary nutrition support team.
These services are commissioned locally by integrated care boards, which are responsible for ensuring that appropriate services are available to meet the needs of their populations.
To ask the Secretary of State for Health and Social Care, further to her answer to written parliamentary question 19983, which department or body holds the patient data recorded using the four categories of severity for myalgic encephalomyelitis/ chronic fatigue syndrome that the SNOMED CT codes recognise, namely (a) mild...
To ask the Secretary of State for Health and Social Care, further to her answer to written parliamentary question 19983, which department or body holds the patient data recorded using the four categories of severity for myalgic encephalomyelitis/ chronic fatigue syndrome that the SNOMED CT codes recognise, namely (a) mild...
SNOMED CT codes are used by general practices (GPs) to record patient diagnoses on their medical records. This is a different system to the International Classification of Diseases 10th Revision codes that are used in hospital admissions data.
The NHS England Terminology and Classifications service manages the SNOMED CT codes that GPs use, but this service would not hold any statistics on the use of these codes. Further information on the service is available at the following link:
https://digital.nhs.uk/services/terminology-and-classifications/snomed-ct
To be recorded centrally at NHS England, patient data would first need be extracted from GP clinical systems as part of a data collection. We are not aware of any NHS England data extractions that target these specific SNOMED codes.
To ask the Secretary of State for Business, Innovation, Science and Trade, whether the £4.75m contribution from the Office of Life Sciences for phase two of the Sequence ME & Long Covid study for this project will be supplemented by funding from MRC.
To ask the Secretary of State for Business, Innovation, Science and Trade, whether the £4.75m contribution from the Office of Life Sciences for phase two of the Sequence ME & Long Covid study for this project will be supplemented by funding from MRC.
To ask the Secretary of State for Health and Social Care, what guidance her Department has issued to Integrated Care Boards on commissioning services for patients with very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
To ask the Secretary of State for Health and Social Care, what guidance her Department has issued to Integrated Care Boards on commissioning services for patients with very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
I refer the Hon Member to the answer provided on 16 July 2026 to the Hon Member for Skipton and Ripon to Question 16893.
Further to this response, the Department, together with NHS England, has developed a template service specification for mild, moderate, and severe myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). The template, once published, will be circulated to integrated care boards to support the commissioning of services for severe ME/CFS.
To ask the Secretary of State for Health and Social Care, what guidance her Department has issued to Integrated Care Boards on commissioning services for patients with very severe myalgic encephalomyelitis/chronic fatigue syndrome.
To ask the Secretary of State for Health and Social Care, what guidance her Department has issued to Integrated Care Boards on commissioning services for patients with very severe myalgic encephalomyelitis/chronic fatigue syndrome.
I refer the Hon Member to the answer provided on 16 July 2026 to the Hon Member for Skipton and Ripon to Question 16893.
Further to this response, the Department, together with NHS England, has developed a template service specification for mild, moderate, and severe myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). The template, once published, will be circulated to integrated care boards to support the commissioning of services for severe ME/CFS.
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to increase investment in specialist services for people with myalgic encephalomyelitis/chronic fatigue syndrome.
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to increase investment in specialist services for people with myalgic encephalomyelitis/chronic fatigue syndrome.
I refer the Hon Member to the answer provided to the Hon Member for Skipton and Ripon on 16 July 2026 to Question 16893.
Additionally, the Department, together with NHS England, have developed a template service specification for mild, moderate, and severe myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). The template, once published, will be circulated to integrated care boards to support the commissioning of services for ME/CFS. This includes recognition of post-exertional malaise.
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that NICE's recognition of post-exertional malaise as a core diagnostic feature of ME/CFS is reflected consistently in (a) clinical training and (b) NHS service provision.
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that NICE's recognition of post-exertional malaise as a core diagnostic feature of ME/CFS is reflected consistently in (a) clinical training and (b) NHS service provision.
I refer the Hon Member to the answer provided to the Hon Member for Skipton and Ripon on 16 July 2026 to Question 16893.
Additionally, the Department, together with NHS England, have developed a template service specification for mild, moderate, and severe myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). The template, once published, will be circulated to integrated care boards to support the commissioning of services for ME/CFS. This includes recognition of post-exertional malaise.
To ask the Secretary of State for Health and Social Care, whether a formal risk assessment for patient safety has been undertaken regarding the delay to work exploring commissioning arrangements for people with severe and very severe ME/CFS until after the planned abolition of NHS England in 2027.
To ask the Secretary of State for Health and Social Care, whether a formal risk assessment for patient safety has been undertaken regarding the delay to work exploring commissioning arrangements for people with severe and very severe ME/CFS until after the planned abolition of NHS England in 2027.
To ask the Secretary of State for Health and Social Care, whether Prevention of Future Deaths reports relating to ME/CFS were considered when deciding to delay work relating to specialised commissioning arrangements for severe and very severe ME/CFS.
To ask the Secretary of State for Health and Social Care, whether Prevention of Future Deaths reports relating to ME/CFS were considered when deciding to delay work relating to specialised commissioning arrangements for severe and very severe ME/CFS.
To ask the Secretary of State for Health and Social Care, what interim measures are being put in place to ensure appropriate medical care and support for people with severe and very severe ME/CFS during the delay to work on specialised service commissioning arrangements.
To ask the Secretary of State for Health and Social Care, what interim measures are being put in place to ensure appropriate medical care and support for people with severe and very severe ME/CFS during the delay to work on specialised service commissioning arrangements.
To ask the Secretary of State for Health and Social Care, how Integrated Care Boards will be monitored and held accountable for providing appropriate services for people with severe and very severe ME/CFS pending the outcome of future commissioning discussions.
To ask the Secretary of State for Health and Social Care, how Integrated Care Boards will be monitored and held accountable for providing appropriate services for people with severe and very severe ME/CFS pending the outcome of future commissioning discussions.
To ask the Secretary of State for Health and Social Care, whether an equality impact assessment has been undertaken regarding the delay to work on specialised commissioning arrangements for severe and very severe ME/CFS.
To ask the Secretary of State for Health and Social Care, whether an equality impact assessment has been undertaken regarding the delay to work on specialised commissioning arrangements for severe and very severe ME/CFS.
To ask the Secretary of State for Health and Social Care, what the expected timetable is for both commencing and completing the delayed work relating to specialised commissioning arrangements for severe and very severe ME/CFS following the abolition of NHS England.
To ask the Secretary of State for Health and Social Care, what the expected timetable is for both commencing and completing the delayed work relating to specialised commissioning arrangements for severe and very severe ME/CFS following the abolition of NHS England.
To ask the Secretary of State for Health and Social Care, whether the Department intends to publish any documentation relating to their decision to delay work on specialised commissioning arrangements for severe and very severe ME/CFS.
To ask the Secretary of State for Health and Social Care, whether the Department intends to publish any documentation relating to their decision to delay work on specialised commissioning arrangements for severe and very severe ME/CFS.
To ask the Secretary of State for Health and Social Care, whether the £4.75m contribution from the Office of Life Sciences for phase two of the Sequence ME & Long Covid study will be supplemented by funding from NIHR.
To ask the Secretary of State for Health and Social Care, whether the £4.75m contribution from the Office of Life Sciences for phase two of the Sequence ME & Long Covid study will be supplemented by funding from NIHR.
To ask the Secretary of State for Health and Social Care, how many patients in England have been recorded using the SNOMED CT codes as having Chronic Fatigue Syndrome/Myalgic Encephalomyelitis for the four categories of severity that the SNOMED CT codes recognise (a) mild (SCTID: 377181000000104), (b) moderate (SCTID: 377171000000101),...
To ask the Secretary of State for Health and Social Care, how many patients in England have been recorded using the SNOMED CT codes as having Chronic Fatigue Syndrome/Myalgic Encephalomyelitis for the four categories of severity that the SNOMED CT codes recognise (a) mild (SCTID: 377181000000104), (b) moderate (SCTID: 377171000000101),...
The Department does not hold information on SNOMED CT for myalgic encephalomyelitis/ chronic fatigue syndrome.
To ask the Secretary of State for Education, what steps her Department is taking to ensure that local authorities take account of the needs of children and young people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome when assessing, reviewing and implementing Education, Health and Care Plans.
To ask the Secretary of State for Education, what steps her Department is taking to ensure that local authorities take account of the needs of children and young people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome when assessing, reviewing and implementing Education, Health and Care Plans.
The department has consulted on reforms to the special educational needs and disabilities (SEND) system so that every child and young person receives the support they require. Our proposals include strengthening the education, health and care (EHC) needs assessment process so that it is clearer, simpler and reflects the voice of parents/carers and the child or young person. We will consider feedback from the consultation exercise carefully before making any final decisions on this policy.
A child or young person with SEND may be eligible for an EHC plan. Where a plan is issued to someone with myalgic encephalomyelitis / chronic fatigue syndrome, it will contain provision to meet their special educational needs and any relevant health needs.
When a local authority conducts a needs assessment or reviews an existing plan, it must seek information and advice from relevant health professionals. This helps to ensure that all EHC plans will contain support tailored to the individual’s particular health needs.
To ask the Secretary of State for Health and Social Care, further to the publication of the Government's Final Delivery Plan on Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome on 22 July 2025, when will the one-year update be published.
To ask the Secretary of State for Health and Social Care, further to the publication of the Government's Final Delivery Plan on Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome on 22 July 2025, when will the one-year update be published.
We intend to circulate the one-year update to stakeholders in due course.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of creating a specialist NHS service to support those with very severe ME.
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of creating a specialist NHS service to support those with very severe ME.
The Department, together with NHS England, has developed an e-learning programme to help support healthcare professionals in the treatment and care of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The programme consists of four modules, three of which have universal access, while the fourth is targeted at healthcare professionals. This programme includes two modules on ‘Managing Severe ME/CFS’, which also covers very severe ME/CFS, and the second version of this module for healthcare professionals addresses clinical approaches to severe and very severe ME/CFS. The e-learning is available at the following link:
https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288
This e-learning, while not mandatory, is expected to support healthcare professionals, including in hospitals, deliver the right care for patients with severe and very severe ME/CFS. Additionally, the National Institute for Health and Care Excellence has produced evidence-based guidelines for the diagnosis and treatment of ME/CFS, including in hospitals, which are expected to be taken fully into account.
Additionally, ME/CFS: the final delivery plan, published in July 2025, included an action to consider whether a specialised service should be commissioned by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS.
To ask the Secretary of State for Health and Social Care, what recent steps his Department has taken to support those with very severe ME.
To ask the Secretary of State for Health and Social Care, what recent steps his Department has taken to support those with very severe ME.
The Department, together with NHS England, has developed an e-learning programme to help support healthcare professionals in the treatment and care of patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The programme consists of four modules, three of which have universal access, while the fourth is targeted at healthcare professionals. This programme includes two modules on ‘Managing Severe ME/CFS’, which also covers very severe ME/CFS, and the second version of this module for healthcare professionals addresses clinical approaches to severe and very severe ME/CFS. The e-learning is available at the following link:
https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288
This e-learning, while not mandatory, is expected to support healthcare professionals, including in hospitals, deliver the right care for patients with severe and very severe ME/CFS. Additionally, the National Institute for Health and Care Excellence has produced evidence-based guidelines for the diagnosis and treatment of ME/CFS, including in hospitals, which are expected to be taken fully into account.
Additionally, ME/CFS: the final delivery plan, published in July 2025, included an action to consider whether a specialised service should be commissioned by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS.