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To ask the Secretary of State for Health and Social Care, how many (a) men and (b) women have been diagnosed with the rare brain condition cataplexy, by age group.

Asked by
Jim Shannon (Democratic Unionist Party)
Answering body
Department of Health and Social Care
Type
Written questions
Status
Answered
Date
29 January 2020
Reference
5424
House
House of Commons

To ask the Secretary of State for Work and Pensions, how much his Department spent on legal fees in all stages of legal proceedings related to Pandemrix.

Asked by
Tracy Brabin (Labour)
Answering body
Department for Work and Pensions
Type
Written questions
Status
Answered
Date
23 March 2017
Reference
68578
House
House of Commons

To ask the Secretary of State for Health, what assessment he has made of the findings in respect of the potential link between the pandemic, vaccination and narcolepsy of the study, Risk of narcolepsy in children and young people receiving AS03 adjuvanted pandemic A/H1N1 2009 influenza vaccine: retrospective analysis, published...

Asked by
Tracy Brabin (Labour)
Answering body
Department of Health
Type
Written questions
Status
Answered
Date
22 March 2017
Reference
68423
House
House of Commons

I beg to move,

That this House has considered compensation and the Pandemrix vaccine.

It is a pleasure to serve under your chairmanship, Ms Ryan, on the occasion of my first Westminster Hall debate. I thank my hon. Friend the Member for Liverpool, West Derby (Stephen Twigg) for his extensive work on...

Member
Tracy Brabin (Labour)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 cc319-320WH
House
House of Commons

I congratulate the hon. Lady on securing this important debate. My constituent Ben Foy suffers from narcolepsy and cataplexy caused by the Pandemrix vaccine. I raised his case in the House in 2014, 2015 and 2016, and I now do so in 2017. The Department for Work and Pensions accepts...

Member
Julian Sturdy (Conservative)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 c320WH
House
House of Commons

I will come on to that point, but I totally and utterly agree. As the hon. Gentleman will know, the Government’s foot-dragging is causing unacceptable and upsetting suffering and distress for the families involved.

Although I acknowledge the difficult balancing act involved in weighing the risk of a pandemic against the...

Member
Tracy Brabin (Labour)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 cc320-1WH
House
House of Commons

I congratulate the hon. Lady on bringing forward this important case. The Court of Appeal has ruled very clearly on this matter and issued a telling judgment that opens the door to people who have suffered as a result of this so-called vaccine. I believe that its decision enables those...

Member
Jim Shannon (Democratic Unionist Party)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 c321WH
House
House of Commons

The hon. Gentleman is right. There have been some one-off payments, but they need to be made across the board. The 1979 Act provides for affected patients to receive one-off tax-free payments of £120,000, which would go some way to securing their long-term care needs.

Prior to September 2013, the Government...

Member
Tracy Brabin (Labour)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 cc321-3WH
House
House of Commons

It is a pleasure to serve under your chairmanship, Ms Ryan, on International Women’s Day. I congratulate the hon. Member for Batley and Spen (Tracy Brabin) on securing this, her first Westminster Hall debate, on an important and sensitive topic. She gave a moving account of her constituent Di and...

Member
Baroness Blackwood of North Oxford (Conservative)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 cc323-6WH
House
House of Commons

Will the change at the DWP following the Court of Appeal’s decision start immediately?

Member
Jim Shannon (Democratic Unionist Party)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 c326WH
House
House of Commons

It will start as soon as it can be implemented.

I will also follow up on the point that the hon. Member for Batley and Spen made about Xyrem. The scheme for its supply is due to continue until the personal injury claims are settled, at which point it will be...

Member
Baroness Blackwood of North Oxford (Conservative)
Type
Proceeding contributions
Date
8 March 2017
Reference
622 c326WH
House
House of Commons

Motion that this House has considered compensation and the Pandemrix vaccine. Agreed to on question.

Lead member
Tracy Brabin
Answering member
Baroness Blackwood of North Oxford
Department
Department of Health
Type
Debates
Date
8 March 2017
Reference
622 cc318-326WH
House
House of Commons

May I first congratulate the hon. Lady on securing a Westminster Hall debate on this important topic? At the end of her question, she refers to the issue of payments. I am sure she realises that the vaccine damage payment scheme is not a compensation scheme, but a one-off tax-free lump sum that is paid to help to ease the burden of those who are disabled as a result of vaccination, and it is part of a range of support that is provided. She has raised a very specific case. Obviously she has had that Westminster Hall debate, but we want to ensure that the process is open and fair at every stage. The Department for Work and Pensions does look at every claim based on its own facts. If she wants to write with the details, I am sure that my hon. Friend the Minister for Disabled People, Health and Work will look into the specific case that she has raised.

Answered by
Baroness May of Maidenhead (Conservative)
Answering body
Prime Minister
Type
Oral answers to questions
Date
8 March 2017
Reference
622 c801
House
House of Commons

Q5

.

Tracy Brabin (Batley and Spen) (Lab):

I come from a Westminster Hall debate on behalf of my young constituent Sam, who is 11 years old. He developed narcolepsy as a result of receiving the Pandemrix vaccine to protect him from the swine flu. Sam’s mum, Di, is in the Public Gallery today. In these rare and devastating cases, the link between Pandemrix and narcolepsy is proven, yet families like Di’s face long legal battles with the Government. Will the Prime Minister today promise that no more of these disabled children will be hounded through the courts, apologise to the families concerned and oversee payments to support the children’s long-term care needs?

Asked by
Tracy Brabin (Labour)
Answering body
Prime Minister
Prime Minister's questions - 1st Supplementary
Status
Answered
Date
8 March 2017
Reference
622 c801
House
House of Commons

To ask Her Majesty’s Government, in the light of the publication in SLEEP on 1 February of the epidemiological study into the association between the 2009 pandemic H1N1 vaccine and narcolepsy in adults (Pub Med identifier 26856903), whether the Department for Work and Pensions will now reverse its decisions to...

Asked by
Lord Moynihan (Conservative)
Answering body
Department for Work and Pensions
Type
Written questions
Status
Answered
Date
26 April 2016
Reference
HL7556
House
House of Lords

Motion that this House has considered the compensation for people with narcolepsy and cataplexy linked to swine flu vaccination. Agreed to on question.

Lead member
Stephen Twigg
Answering member
Jane Ellison
Department
Department of Health
Type
Debates
Date
12 January 2016
Reference
604 cc299-306WH
House
House of Commons

Figures indicate that one in 2,000 people have narcolepsy that is not related to vaccination. When it comes to compensation, how would the hon. Gentleman ensure that those who are vaccinated and are due compensation actually get it?

Member
Jim Shannon (Democratic Unionist Party)
Type
Proceeding contributions
Date
12 January 2016
Reference
604 c301WH
House
House of Commons

It is a pleasure to serve under your chairmanship, Mr Chope. I congratulate the hon. Member for Liverpool, West Derby (Stephen Twigg) on securing this debate. I am aware that he has sought to support his young constituent and his family on this difficult matter for a number of years,...

Member
Jane Ellison (Conservative)
Type
Proceeding contributions
Date
12 January 2016
Reference
604 cc303-5WH
House
House of Commons

I am aware of that and will address it shortly, although I suspect the hon. Gentleman might be disappointed by what I have to say.

A VDPS payment is for those who are severely disabled as a result of a vaccination against those diseases listed in the 1979 Act and those...

Member
Jane Ellison (Conservative)
Type
Proceeding contributions
Date
12 January 2016
Reference
604 c305WH
House
House of Commons

Perhaps it would be easier if I wrote to the hon. Gentleman after the debate to clarify that point.

As I have said, it appears from the timing that the constituent of the hon. Member for Liverpool, West Derby received the vaccine during the 2010-11 flu season. The 1979 Act did...

Member
Jane Ellison (Conservative)
Type
Proceeding contributions
Date
12 January 2016
Reference
604 c306WH
House
House of Commons