Oral question asked in the House of Lords, by Earl Howe (Conservative). It was answered on Monday, 2 June 2008.

Health: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

Question: My Lords, is the Minister aware of the work of the charity Tymes Trust—I declare an interest as a patron—which specialises in supporting young people with ME, particularly with regard to their educational needs? Does he agree that recognition of CFS/ME by teachers, social workers and, indeed, GPs is of fundamental importance and that imaginative ways need to be found to help children with ME who cannot cope with mainstream schooling?

Answer: My Lords, I am aware of the charitable contributions in this important area. In fact, many charities in this field have contributed to the development of NICE guidelines specifically in relation to children. I could not agree more with the noble Earl in emphasising the importance of engaging the family, the need for a diagnosis to be confirmed by a paediatrician and the need to support a return to education. These guidelines, which were issued as part of the NICE guidelines, have been welcomed by the Association of Young People with ME and provide a positive lever in improving services for children and young people with CFS/ME.

Secondary information