Proceeding contribution from Lord Willis of Knaresborough (Liberal Democrat) in the House of Commons on Monday, 3 July 2006. It occurred during Estimates day on Department of Health.
Department of Health
Few hon. Members would disagree with the hon. Lady. I would go further and say that what we have seen in parts of the United States, where deformities, in particular deafness, have been screened in because the parents want their child to mirror their own condition, is absolutely horrendous. Science is getting to the point where we have an amazing number of techniques and can do amazing things, but at that point we have to stop and to ask, ““Is this what we want?”” The Committee was right to ask some of the questions and it was right to say to the Government that we simply cannot let such matters drift on. The Government are there to make some of those decisions. The Committee’s recommendation about a bioethics committee is relevant. The hon. Lady is correct: not everyone is comfortable with the new possibilities or with the fact that it is the HFEA, which has only limited input from professional ethicists, that is taking those decisions. That worries me. In my view that is the job of Parliament—but I know that many people would disagree. The new treatments bring their own ethical dilemmas. The value or rights of an embryo have to be weighed against the potential benefits of avoiding certain conditions; equally, the impact of such activity on existing people with such conditions must be taken into account. Although there are arguments over what diseases and conditions are serious enough to warrant screening, there is a more fundamental argument about who should make those decisions. The Committee argued that Parliament should set the ethical parameters for the use of PGD and other such procedures, and that regulators should then be responsible for ensuring the highest possible clinical standards. I fundamentally agree with that position. Parliament, rather than unelected regulators, should have responsibility for establishing the ethical framework for the use of PGD and other procedures and for endorsing guidelines as necessary. The Committee proposes a new parliamentary Standing Committee on bioethics that would make recommendations on the need for legislative changes and scrutinise any secondary legislation in the field. Such a system has been adopted throughout Europe and I commend the principle to the Minister for serious consideration. Of course, such an approach to bioethics would necessitate changes to the existing regulatory framework, which is a fourth area of contention between the Committee and the Government. The Committee recommended a three-pronged approach on a new regulatory framework to give greater clarity to existing legislation and thus allow medical professionals to get on with their jobs without the bureaucratic burden of frequent applications to the regulators. The Committee’s call for a new human genetics, fertility and human tissue commission to replace the HFEA, the Human Tissue Authority and the Human Genetics Commission appears to have been rejected in favour of a model that combines the HFEA with the HTA. That body will retain the HFEA’s licensing responsibility, although that is a matter about which the Committee was critical. I hope that the House will debate the two sides of that argument today. My final point is about abortion time limits. Paragraph 308 of the Committee’s report recommended that a Joint Committee of both Houses should be established"““to consider the scientific, medical and social changes in relation to abortion that have taken place since 1967, with a view to presenting options for new legislation.””" It is more than 15 years since the legislation was last reviewed by Parliament. We now know a lot more about the foetus and have gained more evidence about the factors underpinning the 24-week limit. There is growing pressure from those on both sides of the abortion debate to look again at developments since 1990 to determine whether a change to the existing legislation is warranted. Early-day motion 2379 was tabled by the hon. Member for Morecambe and Lunesdale (Geraldine Smith) in support of that, and it had been signed by 59 Members at the last count. Its signatories have all viewpoints; indeed, I signed it myself. The head of the Catholic Church, Cardinal Cormac Murphy-O’Connor, has recently called for the time limit to be reviewed. All that shows that there is a feeling in the House and the country that we should at least review the scientific evidence and put it before the House, rather than simply pretending that things are as they were in 1990—or, indeed, 1967.
Secondary information
- Type
- Proceeding contribution
- Reference
- 448 c533-4
- Session
- 2005-06
- Chamber / Committee
- House of Commons chamber
- Subjects
- Abortion Finance Human embryo experiments Human Fertilisation and Embryology Authority IVF Department of Health Regulation
- Link
- View this Proceeding contribution on www.publications.parliament.uk
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