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Written question asked by Jim Shannon (Democratic Unionist Party) on Monday, 7 November 2016, in the House of Commons. It was due for an answer on Monday, 14 November 2016. It was answered by Baroness Blackwood of North Oxford (Conservative) on Monday, 14 November 2016 on behalf of the Department of Health.


Muscular Dystrophy

Question

To ask the Secretary of State for Health, what discussions his Department has had with NICE on a possible timetable for making Exon skipping therapy available to address Duchenne muscular dystrophy.

Answer

The Exon skipping therapy eteplirsen (Exondys 51) is currently being considered for referral to the National Institute for Health and Care Excellence’s (NICE) highly specialised technologies (HST) programme. Following discussion between NICE, NHS England and the Department as part of the topic selection process, NICE recently consulted stakeholders on its suitability for the HST process.


Secondary information

Type
Written question
Reference
52083
Session
2016-17
Subjects
Medical treatments Muscular dystrophy
Link
View this Written question on www.parliament.uk