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Written question asked by Kieran Mullan (Conservative) on Tuesday, 13 October 2020, in the House of Commons. It was due for an answer on Tuesday, 20 October 2020 (named day). A holding answer was provided on Tuesday, 20 October 2020. A substantive answer was provided by Jo Churchill (Conservative) on Friday, 27 November 2020 on behalf of the Department of Health and Social Care.

Neurofibromatosis: Diagnosis

Question

To ask the Secretary of State for Health and Social Care, what steps he is taking to (a) improve rates of early diagnosis of neurofibromatosis type 1 and (b) raise public awareness of that condition.

Answer

NHS England and NHS Improvement have commissioned a national specialised service to address the healthcare needs of neurofibromatosis type 1 (NF1) patients with rare complications that cause major health problems, called complex-NF1. There are two centres responsible for the diagnosis and long-term care of patients with complex NF1, which are based at Guy’s and St Thomas’ NHS Foundation Trust and Manchester University NHS Foundation Trust.

These centres also provide education with the National Health Service to raise and maintain awareness of NF1 and are expected to form a relationship with local health and social care providers to help optimise any care for complex NF1 patients provided locally.

Secondary information

Type
Written question
Reference
102960
Session
2019-21
Subjects
Diagnosis Publicity Neurofibromatosis
Link
View this Written question on www.parliament.uk