Skip to main content

Written question asked by Countess of Mar (Crossbench) on Wednesday, 22 November 2017, in the House of Lords. It was due for an answer on Wednesday, 6 December 2017. It was answered by Lord O'Shaughnessy (Conservative) on Friday, 1 December 2017 on behalf of the Department of Health.


ME/CFS: Databases

Question

To ask Her Majesty's Government when the Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database ceased to exist; and why the data included in that database is no longer collected.

Answer

The chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) National Outcome Database was developed by three NHS Clinical Network Co-ordinating Centres in 2006 and managed by Bristol University. Its development was part of a wider initiative to establish services for CFS/ME in the National Health Service at the time. Neither the Department nor NHS England has oversight of it, or responsibility for it.


Secondary information

Type
Written question
Reference
HL3499
Session
2017-19
Subjects
Databases ME/CFS
Link
View this Written question on www.parliament.uk