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Written question asked by Lord Hunt of Kings Heath (Labour) on Tuesday, 19 May 2026, in the House of Lords. It was due for an answer on Wednesday, 3 June 2026. It was answered by Baroness Merron (Labour) on Monday, 8 June 2026 on behalf of the Department of Health and Social Care.


UK Biobank

Question

To ask His Majesty's Government, for each month since UK Biobank first detected de-identified participant data on GitHub in 2022, (1) how many instances there have been of participant-level UK Biobank data being identified on GitHub, and (2) in each case, what estimate has been made of the length of time the data was publicly accessible before being identified and secured.

Answer

UK Biobank is a charity and operationally independent of government. The Government has been working closely with UK Biobank in its response to the data breach which it reported to the Government on 20 April 2026. Measures taken so far have included the suspension of access to their research analysis platform, revocation of access permissions from the institutions involved, rapid removal of the listings from the e-commerce platform, self‑referral to the Information Commissioners Office, and urgent work to introduce technical barriers to prevent download of participant‑level data.


Secondary information

Type
Written question
Reference
HL269
Session
2026-27
Grouped for answer
Yes
Subjects
Disclosure of information Data protection Software UK Biobank Research
Contains statistics
Yes
Link
View this Written question on www.parliament.uk