1-20 of 86 results for subject:"UK Biobank"
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To ask His Majesty's Government, for each month since UK Biobank first detected de-identified participant data on GitHub in 2022, (1) how many instances there have been of participant-level UK Biobank data being identified on GitHub, and (2) in each case, what estimate has been made of the length of...
To ask His Majesty's Government, for each month since UK Biobank first detected de-identified participant data on GitHub in 2022, (1) how many instances there have been of participant-level UK Biobank data being identified on GitHub, and (2) in each case, what estimate has been made of the length of...
UK Biobank is a charity and operationally independent of government. The Government has been working closely with UK Biobank in its response to the data breach which it reported to the Government on 20 April 2026. Measures taken so far have included the suspension of access to their research analysis platform, revocation of access permissions from the institutions involved, rapid removal of the listings from the e-commerce platform, self‑referral to the Information Commissioners Office, and urgent work to introduce technical barriers to prevent download of participant‑level data.
To ask His Majesty's Government whether UK Biobank conducted any audits of the number of research publications based on its data authored entirely by researchers who were not approved under its access procedures; and if so, what estimate has been made of the number of such publications.
To ask His Majesty's Government whether UK Biobank conducted any audits of the number of research publications based on its data authored entirely by researchers who were not approved under its access procedures; and if so, what estimate has been made of the number of such publications.
UK Biobank is a charity and operationally independent of government. The Government has been working closely with UK Biobank in its response to the data breach which it reported to the Government on 20 April 2026. Measures taken so far have included the suspension of access to their research analysis platform, revocation of access permissions from the institutions involved, rapid removal of the listings from the e-commerce platform, self‑referral to the Information Commissioners Office, and urgent work to introduce technical barriers to prevent download of participant‑level data.
To ask His Majesty's Government what logs are made of files downloaded from the UK Biobank Research Analysis Platform; what level of detail is recorded in these logs; and how often they are audited.
To ask His Majesty's Government what logs are made of files downloaded from the UK Biobank Research Analysis Platform; what level of detail is recorded in these logs; and how often they are audited.
UK Biobank is a charity and operationally independent of government. The Government has been working closely with UK Biobank in its response to the data breach which it reported to the Government on 20 April 2026. Measures taken so far have included the suspension of access to their research analysis platform, revocation of access permissions from the institutions involved, rapid removal of the listings from the e-commerce platform, self‑referral to the Information Commissioners Office, and urgent work to introduce technical barriers to prevent download of participant‑level data.
To ask His Majesty's Government how many breaches of special category personal data, as defined by UK GDPR, by or relating to UK Biobank have been reported to the Information Commissioner's Office; and how many were reported by (1) UK Biobank, and (2) a third party.
To ask His Majesty's Government how many breaches of special category personal data, as defined by UK GDPR, by or relating to UK Biobank have been reported to the Information Commissioner's Office; and how many were reported by (1) UK Biobank, and (2) a third party.
UK Biobank is a charity and operationally independent of government. The Government has been working closely with UK Biobank in its response to the data breach which it reported to the Government on 20 April 2026. Measures taken so far have included the suspension of access to their research analysis platform, revocation of access permissions from the institutions involved, rapid removal of the listings from the e-commerce platform, self‑referral to the Information Commissioners Office, and urgent work to introduce technical barriers to prevent download of participant‑level data.
To ask His Majesty's Government what technical controls are in place in the UK Biobank Research Analysis Platform to monitor and restrict the download of participant-level data, and how long they have been in place.
To ask His Majesty's Government what technical controls are in place in the UK Biobank Research Analysis Platform to monitor and restrict the download of participant-level data, and how long they have been in place.
UK Biobank is a charity and operationally independent of government. The Government has been working closely with UK Biobank in its response to the data breach which it reported to the Government on 20 April 2026. Measures taken so far have included the suspension of access to their research analysis platform, revocation of access permissions from the institutions involved, rapid removal of the listings from the e-commerce platform, self‑referral to the Information Commissioners Office, and urgent work to introduce technical barriers to prevent download of participant‑level data.
To ask His Majesty's Government whether UK Biobank had made them aware of the exposure online of confidential health records from the UK Biobank project, as reported in The Guardian on 14 March, before the General Practice Extraction Service Data for Consented Research Directions 2026 were signed on 10 February.
To ask His Majesty's Government whether UK Biobank had made them aware of the exposure online of confidential health records from the UK Biobank project, as reported in The Guardian on 14 March, before the General Practice Extraction Service Data for Consented Research Directions 2026 were signed on 10 February.
It has not proved possible to respond to this question in the time available before Prorogation. Ministers will correspond directly with the Member.
To ask His Majesty's Government how many times confidential health records from the UK Biobank project have been removed from the internet (1) where UK Biobank requested that the researcher do so, and (2) where UK Biobank did so itself.
To ask His Majesty's Government how many times confidential health records from the UK Biobank project have been removed from the internet (1) where UK Biobank requested that the researcher do so, and (2) where UK Biobank did so itself.
It has not proved possible to respond to this question in the time available before Prorogation. Ministers will correspond directly with the Member.
To ask His Majesty's Government what estimate they have made of how many times confidential health records from the UK Biobank project have been exposed online.
To ask His Majesty's Government what estimate they have made of how many times confidential health records from the UK Biobank project have been exposed online.
It has not proved possible to respond to this question in the time available before Prorogation. Ministers will correspond directly with the Member.
To ask His Majesty's Government what assessment they have made of the risk of UK Biobank participants being identified from information exposed online, whether through (1) the inclusion of their names and addresses or (2) through cross-referencing and the use of AI tools.
To ask His Majesty's Government what assessment they have made of the risk of UK Biobank participants being identified from information exposed online, whether through (1) the inclusion of their names and addresses or (2) through cross-referencing and the use of AI tools.
It has not proved possible to respond to this question in the time available before Prorogation. Ministers will correspond directly with the Member.
To ask His Majesty's Government what assessment they have made of the exposure online of confidential health records from the UK Biobank project, as reported in The Guardian on 14 March.
To ask His Majesty's Government what assessment they have made of the exposure online of confidential health records from the UK Biobank project, as reported in The Guardian on 14 March.
It has not proved possible to respond to this question in the time available before Prorogation. Ministers will correspond directly with the Member.
Lords statement on the use of UK Biobank data.
Lords statement on the use of UK Biobank data.
My Lords, I thank the Minister for the Statement. This is clearly a serious incident that goes to the heart of public trust in one of our most important research assets. I pay tribute to the hundreds of thousands of volunteers whose data underpins the success of the UK Biobank...
My Lords, I thank the Minister for the Statement. This is clearly a serious incident that goes to the heart of public trust in one of our most important research assets. I pay tribute to the hundreds of thousands of volunteers whose data underpins the success of the UK Biobank...
My Lords, I thank the Minister for coming forward in relation to this Statement and join in acknowledging unreservedly the profound scientific value of UK Biobank and the extraordinary generosity of the half a million volunteers whose participation has driven life-saving discoveries in heart disease, cancer, dementia, Parkinson’s, and Covid...
My Lords, I thank the Minister for coming forward in relation to this Statement and join in acknowledging unreservedly the profound scientific value of UK Biobank and the extraordinary generosity of the half a million volunteers whose participation has driven life-saving discoveries in heart disease, cancer, dementia, Parkinson’s, and Covid...
My Lords, I am grateful to the noble Lords, Lord Markham and Lord Clement-Jones, for those responses and questions. The Government agree that this is unacceptable; it is an abuse of UK Biobank’s data and something that we take extremely seriously, and it needs robust, technical solutions.
I start, though, by...
My Lords, I am grateful to the noble Lords, Lord Markham and Lord Clement-Jones, for those responses and questions. The Government agree that this is unacceptable; it is an abuse of UK Biobank’s data and something that we take extremely seriously, and it needs robust, technical solutions.
I start, though, by...
My Lords, I declare an interest in the area of cyber security. First, we should congratulate the Government, despite the seriousness of this, on their swift response. Admittedly, it was after the event, but the Government acted on this occasion swiftly and effectively. Secondly, although this was not a cyber...
My Lords, I declare an interest in the area of cyber security. First, we should congratulate the Government, despite the seriousness of this, on their swift response. Admittedly, it was after the event, but the Government acted on this occasion swiftly and effectively. Secondly, although this was not a cyber...
I thank the noble Lord for his questions, and I echo his points about the Front-Bench spokesmen on the other side. It is very clear that everyone has the same intent here, which is to try to sort this out, and I welcome those inputs.
I agree that this is cultural...
I thank the noble Lord for his questions, and I echo his points about the Front-Bench spokesmen on the other side. It is very clear that everyone has the same intent here, which is to try to sort this out, and I welcome those inputs.
I agree that this is cultural...
I declare two conflicts of interest. First, I was a participant in UK Biobank, having been recruited in Oxford in 2007. My wife is also a participant and has been far more assiduous—for example, she underwent whole-body imaging about two years ago, which took a whole day. We are both...
I declare two conflicts of interest. First, I was a participant in UK Biobank, having been recruited in Oxford in 2007. My wife is also a participant and has been far more assiduous—for example, she underwent whole-body imaging about two years ago, which took a whole day. We are both...
Let me thank the noble Lord, Lord Tarassenko, and his wife for participating in UK Biobank, because the whole thing depends on that. He is quite right that, before 2024,
the data was downloaded and people did their research on downloaded data. I have had this discussion with the chair...
Let me thank the noble Lord, Lord Tarassenko, and his wife for participating in UK Biobank, because the whole thing depends on that. He is quite right that, before 2024,
the data was downloaded and people did their research on downloaded data. I have had this discussion with the chair...
My Lords, I am grateful to my noble friend for coming to the House about this very serious incident, and I welcome what the Government are doing to try to prevent it happening again. I echo what has been said about the vital importance of UK Biobank. Nevertheless, I have...
My Lords, I am grateful to my noble friend for coming to the House about this very serious incident, and I welcome what the Government are doing to try to prevent it happening again. I echo what has been said about the vital importance of UK Biobank. Nevertheless, I have...
I thank my noble friend for the question. UK Biobank has identified the sites that were responsible for the leak. There were three institutions: the Second Xiangya Hospital, China-Japan Union Hospital, and Beijing Chaoyang Hospital. Those institutions have been contacted, to be dealt with as discussed. Sorry, I have forgotten...
I thank my noble friend for the question. UK Biobank has identified the sites that were responsible for the leak. There were three institutions: the Second Xiangya Hospital, China-Japan Union Hospital, and Beijing Chaoyang Hospital. Those institutions have been contacted, to be dealt with as discussed. Sorry, I have forgotten...