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To ask the Secretary of State for Health, what steps he is taking to encourage the (a) sharing and (b) linking of health and care data; when he expects the hospital episodes statistics database and GP-level data to be linked; and if he will make a statement.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

8 December 2014

Reference

216652

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, which data sources he intends to capture through (a) the National Cancer Registration Service and (b) care.data.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

20 October 2014

Reference

209878

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, what steps he is taking to encourage the sharing of patient-related information by NHS organisations.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 October 2014

Reference

209875

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, if he will publish a list of all datasets containing (a) patient-identifiable and (b) pseudonymised information held by (i) his Department, (ii) Public Health England, (iii) NHS England and (iv) the Health and Social Care Information Centre; and if he will make...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 October 2014

Reference

209876

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, what estimate he has made of the number of (a) NHS organisations, (b) academic institutions, (c) private sector organisations and (d) non-academic charities which hold databases containing (i) patient-identifiable and (ii) pseudonymised data; and if he will make a statement.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 October 2014

Reference

209879

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, how many people have opted out of the care.data programme.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 October 2014

Reference

209874

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, with which organisations the Health and Social Care Information Centre has shared data collected from NHS patients in the last 24 months; what data was shared in each case; and if he will make a statement.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 October 2014

Reference

209880

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, what recent progress has been made on the care.data project; and if he will make a statement.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 October 2014

Reference

209877

House

House of Commons

Medical Records: Databases

To ask the Secretary of State for Health, what assessment he has made of the potential benefits to the NHS of increasing the extent to which patient-level data is shared between organisations; and if he will make a statement.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 October 2014

Reference

209873

House

House of Commons

Quality Management and Analysis System

To ask the Secretary of State for Health what the prevalence of disease data collected through the quality management and analysis system was for each quarter for which data are available for (a) England, (b) each region and (c) each primary care trust area.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

27 February 2006

Reference

43598; 443 c486W;443 c486W

House

House of Commons

Children Act

To ask the Secretary of State for Education and Skills pursuant to the answer of 7 December 2005, Official Report, column 1337W, what work her Department is undertaking in pursuance of the exercise of the power under section 12 of the Children Act 2004.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department for Education and Skills

Type

Written questions

Status

Answered

Tabled on

8 December 2005

For answer on

12 December 2005

Answered on

15 December 2005

My right hon. Friend the Secretary of State for Education and Skills issued on 8 December the following written ministerial statement.““I am announcing today a step change in the support the Government provides to front-line professionals in children's services by leading the implementation of an information sharing index.The information sharing index is a key element of the Every Child Matters programme to transform children's services by supporting more effective prevention and early intervention. Its goal is to improve outcomes and the experience of public services for all children, young people and families. Better information sharing is essential for early and effective intervention. The index will provide a tool to support better communication among practitioners across education, health, social care and youth offending. It will allow them to contact one another more easily and quickly, so they can share information about children who need services or about whose welfare they are concerned.Our decision about the way forward with the index has been informed by substantial input from, and consultation with, many front-line practitioners and managers across a wide range of children's services organisations. We have also drawn extensively on the experience of local index approaches run under existing legislation by Trailblazer local authorities. Our conclusions respond to what stakeholders have told us they need to be able to do their jobs more effectively and take account of views expressed on the design of the index.The index will be a simple basic online system containing:"minimal identifying information for each child; name, address, date of birth, gender, and contact details for parents or carers. Each child will also have a unique identifying number. In almost all cases this will be a scrambled version of their Child Reference Number (which all children are allocated when a claim for child benefit is made);""contact details for their educational setting and GP practice and for other practitioners or services working with them; and""where a practitioner judges it appropriate and necessary, an indicator showing that they wished to be contacted by other practitioners because they have relevant information to share, are taking action, or have undertaken an assessment in relation to that child."No case information will be held on the index. Children, young people, or, where appropriate, their parents or carers will be able to ask to see their records and to challenge any inaccuracies, in accordance with data protection legislation.There will be a single central index with its data partitioned into 150 parts, one relating to each local authority in England. A central index will ensure that the system works for children who move areas or who access services from more than one area. Partitioning the data will ensure local authorities take the lead in maintaining the accuracy of the data for children living in their area.To avoid double-inputting of data and to ensure high standards of accuracy, information on the index will be drawn from and updated through existing systems. It will use proven technology.Technical access to the index will be either through the practitioner's existing case management systems, via a web link or, where an approved practitioner has no access to appropriate IT facilities, via another approved user who does have IT access.The Government are determined that the index will be as secure as possible, and will therefore ensure it complies with rigorous security standards. Access to it will be granted only to authorised users who have undergone appropriate checks, including those provided by the Criminal Records Bureau. Practitioner use of the index will be audited to ensure information is only accessed where it is necessary for practitioners to do so, and so guard against inappropriate access by authorised users.The Government are today making available a report on local authority Trailblazer experience. Copies will be placed in the Library of the House.The experience of the Trailblazers identifies significant benefits in the effectiveness of services. These include improved access to information to inform action, better identification of children not receiving universal services, and better multi-agency communication and information exchange. Scope for significant efficiency gains has also been demonstrated from time saved by practitioners on such tasks as identifying other services involved with a child, tracking down and contacting the individual practitioners involved, and making wasted referrals to services already involved with a child. These savings have been quantified as worth over £88 million per annum across England. We do not intend to reduce funding for children's services, but instead to enable savings realised to be reinvested in more and better services for children and more effective use of staff time. We anticipate that this will enhance staff satisfaction with their jobs.The Government will commit substantial resources to the index. One-off implementation costs will be an estimated £224 million over the next three years—this includes the costs of adapting systems that will supply the data to the index and adapting the day-to-day systems used by practitioners so they can access the index from their own systems. It also includes the cost of ensuring the original data supplied to the index is accurate, that there are robust systems in place to ensure security, and that staff are trained to use the index properly. Operating costs, thereafter, will be £41 million per year. Most of these costs will fund the additional staff needed to ensure the on-going security, accuracy and audit of the index. Both set-up and running costs will be funded by central Government, so that the costs to local authorities do not form a pressure on the council tax.Our plan is that a technically robust, secure and accurate index is available to support children's services across England by the end of 2008. To enable this to be achieved we plan to publish draft regulations under Section 12 of the Children Act 2004, which will be subject to the affirmative resolution procedure. An initial set of regulations in spring 2006 will provide the necessary vires to allow trials to take place for the creation of the initial records. We then plan to publish in autumn 2006 the main regulations to govern the operation of the index. We will consult publicly on draft regulations in the summer/autumn of 2006.Implementation will be led by a dedicated project team within DfES. The Project Team will continue to work closely with local authorities, users and other stakeholders to ensure that developments continue to be relevant and lead to more effective practice. Building on the current knowledge gained by the local authority Trailblazers, the project team will directly and actively seek the views of children, young people and families and will ensure those views are taken into account as we develop the index.””I have written to the hon. Member about the information sharing index announcement, and also to other hon. Members and Peers who have expressed an interest in the index.

Legislation

Children Act 2004

Date

15 December 2005

Reference

37230; 440 c2198-200W

House

House of Commons

Information Standards Board (Data)

To ask the Secretary of State for Health pursuant to her Answer of 12 September 2005, Official Report, column 2757W, on data, when the first data collection will commence for each of the datasets approved by the Information Standards Board to date.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

2 November 2005

Reference

20654; 438 c1146W;438 c1144W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what provision there will be for the care record system to be shared with private sector providers undertaking NHS work; what safeguards will be put in place by the National Programme for IT to ensure information cannot be shared with organisations outside...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

4 November 2004

For answer on

15 November 2004

Answered on

15 November 2004

Mr. Burstow: To ask the Secretary of State for Health (1) what provision there will be for the care record system to be shared with private sector providers undertaking NHS work; [197281] (2) what safeguards will be put in place by the national programme for IT to ensure information cannot be shared with organisations outside the NHS. [197282] Mr. Hutton: The NHS Care Records Service (NHS CRS) will incorporate stringent security controls and safeguards to prevent unrestricted or uncontrolled access to personal information. Access will only be available to authorised national health service healthcare professionals who must be registered and authenticated users of the NHS CRS. They must have a legitimate relationship with the patient, that is they must be directly involved with the delivery of their care and have a `need to know' relevant to that role. A record will be kept of everyone who accesses a patient's record and alerts will be raised if anyone tries to access a record in contravention of predetermined system rules. Breaches of confidence by staff working within or under contract to NHS organisations, or inappropriate use of health records or abuse of computer systems, may lead to disciplinary measures, bring into question professional registration, and possibly result in legal proceedings. Where an NHS patient is referred for treatment to a private sector healthcare provider, or in another European Union state, relevant information will be made available where appropriate through the existing request mechanisms, but access to the information on the NHS CRS will be under exactly the same stringent conditions.

Date

15 November 2004

Reference

426 c1156-7W;426 c1160-1W; 197281;197282

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, whether a patient's right to opt out of having personal information on the care record system will include all information on the care record; what plans his Department has to notify individual patients of their right to opt out of having personal...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

15 November 2004

Reference

426 c1157W;426 c1161W; 197283;197284

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what plans he has to introduce a system of learning from the yellow card system about the correct dosage and prescribing methods for medicines for children.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

25 October 2004

For answer on

3 November 2004

Answered on

3 November 2004

Mr. Burstow: To ask the Secretary of State for Health what plans he has to introduce a system of learning from the yellow card system about the correct dosage and prescribing methods for medicines for children. [194259] Ms Rosie Winterton: The yellow card scheme is not designed to enable lessons to be drawn about correct dosage or prescribing methods for medicines for children. There are no plans to introduce a system of learning in this context. Reports of suspected adverse drug reactions (ADRs) are held on a purpose designed computer database known as the adverse drug reactions on-line information tracking (ADROIT) database, which was introduced in 1991. Data held on ADROIT is dynamic and may be subject to change. The Committee on Safety of Medicines/Medicines and Healthcare products Regulatory Agency (CSM/ MHRA) request that all suspected ADRs which occur in children are reported, regardless of whether the medicine is licensed for use in children. This is because the nature and course of illness and ADRs may differ between adults and children. In general, children are not exposed to medicines in clinical trials, many drugs which are routinely used to treat children are not licensed for use in this age group. It is therefore particularly important to focus on the safety of medicines in children. We are interested in any side effects of medicines as used in clinical practice, regardless of whether they are being used according to the terms of the licence, as described in the product information. It is important that we are aware of side effects which arise when medicines are used "off label", so that we can act to warn health professionals if necessary. However, the treatment of individual patients remains the responsibility of the doctor.

Date

3 November 2004

Reference

194259; 426 c319W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what assessment he has made of the validity of criticisms of the Yellow Card scheme published in the International Journal of Risk and Safety of Medicine (2003, 16, 3-17); what account he has taken of the view of the Medicines and Healthcare...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

8 June 2004

For answer on

21 July 2004

Answered on

21 July 2004

Mr. Burstow: To ask the Secretary of State for Health what assessment he has made of the validity of criticisms of the Yellow Card scheme published in the "International Journal of Risk and Safety of Medicine" (2003, 16, 3-17); what account he has taken of the view of the Medicines and Healthcare Products Regulatory Agency on the matter; and what steps he has taken (a) to ensure that there has been no significant miscoding and misinterpretation of Yellow Card adverse drug reaction reports for paroxetine and (b) to ensure that there has been effective follow-up of reports relating to suspected paroxetine-induced suicidal behaviour. [178431] Tim Loughton: To ask the Secretary of State for Health what assessment he has made of the Medicines and Healthcare Products Regulatory Agency criticisms of the Yellow Card scheme published in the "International Journal of Risk and Safety of Medicine" (2003, 16, 3-17); and what assessment he has made of (a) the adequacy of the coding and interpretation of Yellow Card adverse drug reaction reports for paroxetine and (b) the effectiveness of the follow-up of reports relating to suspected paroxetine-induced suicidal behaviour. [178696] Ms Rosie Winterton: The Yellow Card scheme was recently subject to an independent review led by Dr. Jeremy Metters and the recommendations of the review are out to consultation, apart from the recommendation to introduce direct patient reporting, which has been accepted in principle. The Medicines and Healthcare Products Regulatory Agency (MHRA) has carefully reviewed the criticisms made in the article by Medawar and Herxheimer in relation to follow up and coding of reports of suspected adverse reactions associated with paroxetine (Seroxat) received through the yellow card scheme. Professor Herxheimer and Mr. Medawar contributed to the Metters review. Yellow cards submitted by health care professionals are held as scanned images and coded data are transposed onto the adverse drug reactions online information tracking (ADROIT) system. This is a relational database of around 500,000 reports, which enables complex analyses to be performed to detect new or changing drug safety hazards. Data from the yellow card scheme cannot be used to quantify the risk of an adverse reaction. Standard operating procedures are in place which ensure quality control of data. Errors in transposition onto the database occur at a low rate and are kept to a minimum by quality checks. These transposition errors do not impact on signal detection and risk evaluation. The standardised terms used for coding were based on what has become the internationally adopted standard in drug regulation, MedDRA--the medical dictionary for regulatory activities. The ADROIT classification procedure reflects as closely as possible the words used by the reporter rather than introducing further interpretation of the reporter's words. The image of the original yellow card is available along side the electronic record. This enables the MHRA to assess the totality of the yellow card data, which are routinely examined when risk assessment is undertaken, along with other data sources. The MHRA will respond directly to the authors of the article and a copy of that reply will be placed in the Library.

Date

21 July 2004

Reference

178431; 424 c370-1W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how many hits have been recorded for the website mindnseek.net since it was established; and what evaluation of the project has been undertaken. (Report in Library Dep 04/347). - Including figures and ref to Read the Signs campaign, Report of Findings in...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

9 February 2004

Reference

417 c1204-5W; 149863

House

House of Commons

Dept of Trade and Industry

To ask the Secretary of State for Trade and Industry, if she will publish a summary of the representations she has received on the termination of the home accidents surveillance system. - Includes ref to 18 November 2003, 413 c742W.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Trade and Industry

Type

Written questions

Status

Answered

Date

3 December 2003

Reference

141574; 415 c104W

House

House of Commons

Dept of Trade and Industry

To ask the Secretary of State for Trade and Industry, pursuant to the Answer of 11 September 2003, 410 c392W, to the honourable Members for Cunninghame South and Gateshead East and Washington West, on the Home Accident Surveillance System, if she will place copies of the representations in the Library;...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Trade and Industry

Type

Written questions

Status

Answered

Date

18 November 2003

Reference

138659; 413 c742W

House

House of Commons

Home Office

To ask the Secretary of State for the Home Department, what information the UKPS lost and stolen passport database collects as set out in the UKPS business plan 2002-07; and if he will place a copy of this information in the Library.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Home Office

Type

Written questions

Status

Answered

Date

11 June 2003

Reference

117122; 406 c947W;406 c949-50W

House

House of Commons

Librarians' tools

Type

House

Session

Year

Department

Member

Primary member

Answering member

Legislative stage

Legislation

Subject

Publisher