The Government published the ME/CFS Final Delivery Plan in July 2025, which is available at the following link:

https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan

The plan focuses on three main areas to improve care and support for those with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), boosting research, improving attitudes and education, and bettering the lives of people with this debilitating disease. It also sets out a series of actions, which will help address the key challenges and drive forward improvements to outcomes and quality of life for people living with ME/CFS in England.

The Department worked closely with ME/CFS patients, carers, clinicians, charities, research funders and researchers throughout the development of the plan. This engagement has helped to shape new and more ambitious actions that deliver meaningful change for the ME/CFS community.

Due to transformation in NHS England, the decision has been made to delay the action to review a case for a specialised service commission until April 2027. Until this time, integrated care boards (ICBs) should continue to commission appropriate services for patients with very severe ME/CFS as needed. ICBs are responsible for the commissioning of services for all severity levels of ME/CFS. NHS England and the Department are developing a new template service specification for mild and moderate ME/CFS which will include reference to severe and very severe ME/CFS. Officials, alongside stakeholders, are considering interim measures to support people with very severe ME/CFS.

The Department and NHS England will continue to work with stakeholders across and beyond government and the NHS to progress the agreed actions set out in the plan and to ensure the best possible care for people with ME/CFS.

Our ME/CFS Final Delivery Plan, published in July 2025, includes an action for the Department of Health and Social Care and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

The third and final session in NHS England’s ME/CFS e-learning series, Managing Severe ME/CFS, is now live on the NHS Learning Hub. This session provides practical, evidence-based guidance to support people living with severe and very severe ME/CFS, and has universal access. There is also an additional version of this module, which is only available to healthcare professionals, and includes clinical guidance on severe and very severe ME/CFS.

NHS England has already started its work on co-designing resources, including a ‘template service specification’ for mild/moderate ME/CFS services, to support systems to improve services for mild and moderate ME/CFS. NHS England and the Department of Health and Social Care have met with a group of key stakeholders to move this work on. This template will now include reference to severe ME/CFS.

Our ME/CFS Final Delivery Plan, published in July 2025, includes an action for the Department of Health and Social Care and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

The third and final session in NHS England’s ME/CFS e-learning series, Managing Severe ME/CFS, is now live on the NHS Learning Hub. This session provides practical, evidence-based guidance to support people living with severe and very severe ME/CFS, and has universal access. There is also an additional version of this module, which is only available to healthcare professionals, and includes clinical guidance on severe and very severe ME/CFS.

NHS England has already started its work on co-designing resources, including a ‘template service specification’ for mild/moderate ME/CFS services, to support systems to improve services for mild and moderate ME/CFS. NHS England and the Department of Health and Social Care have met with a group of key stakeholders to move this work on. This template will now include reference to severe ME/CFS.

The final delivery plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in July 2025, includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt. Hon. Friend, the Secretary of State for Health and Social Care, for severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.

The third and final session in NHS England’s newly-developed ME/CFS e-learning series, Managing Severe ME/CFS, is now live on the NHS Learning Hub. This session provides practical, evidence-based guidance for healthcare professionals to support people living with severe and very severe ME/CFS.

Additionally, as set out in the Plan for Change, we are committed to returning to the NHS constitutional standard that 92% of patients wait no longer than 18 weeks from referral to consultant-led treatment by March 2029. We exceeded our pledge to deliver an extra two million appointments, tests, and operations in our first year of government, having delivered 5.2 million additional appointments between July 2024 and June 2025. This will help people with severe ME/CFS to get support sooner.

The 10-Year Health Plan sets out a transformed vision for elective care by 2035, where most interactions no longer take place in a hospital building, instead happening virtually or via neighbourhood services. We will empower patients by giving them greater choice and control and establishing expected standards for making their experience of planned NHS care as smooth, supportive and convenient as possible, including for people with severe ME/CFS.

Most of the actions included in the final delivery plan on myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), which we published in July, will benefit all patients with ME/CFS, irrespective of condition severity. However, we are taking specific steps to ensure that patients with severe and very severe ME/CFS are not overlooked. For instance, the ME/CFS final delivery plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.

To support healthcare professionals in the diagnosis and management of ME/CFS, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. All three sessions of the e-learning programme are now available at the following link:

https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288

The 10-Year Health Plan for the National Health Service also sets out a plan to shift healthcare from hospitals to the community, enabling people to feel supported managing their long-term conditions, including ME/CFS, closer to home. The Neighbourhood Health Service, delivered by new multidisciplinary teams of professionals, will support more services being delivered in the community, helping to create capacity within secondary services for those patients that need it. This will aim to help ensure that those who suffer from ME/CFS are able to live as independently as possible.

UK Research and Innovation (UKRI) and the National Institute for Health and Care Research (NIHR) work closely together to coordinate research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Extensive support is provided to early-career researchers through the NIHR Academy and NIHR Infrastructure.

ME/CFS is a priority area for UKRI’s Medical Research Council (MRC) and it has committed over £4,460,000 to ME/CFS research since 2020. NIHR has also committed approximately £3.7 million to this area across the 2019/20-2023/24 financial years.

MRC recently awarded funding to PRIME, a £800,000 partnership to build new research infrastructure for ME/CFS research. PRIME will establish new research collaborations, bringing together researchers and private sector partners, to investigate the genetics, biomarkers and disease mechanisms of ME/CFS.

The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health and care, including post-acute infection condition such as myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), for which research funding is available. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality, rather than designating an amount of funding for a particular condition. Welcoming applications on ME/CFS and other post-acute infection conditions to all NIHR programmes enables maximum flexibility both in terms of the amount of research funding a particular area can be awarded, and the type of research which can be funded.

The NIHR Academy offers extensive support for early-career researchers through various fellowships, training awards, and mentoring structures. For instance, through the INSIGHT Programme, they work with universities to fund research masters studentships and to attract students into research. Through Academic Clinical Fellowships, for doctors and dentists, and Predoctoral Academic Fellowships, for other health professionals, the NIHR Academy supports healthcare practitioners in integrating research with clinical practice.

Together with the Medical Research Council (MRC), which is part of UK Research and Innovation, we are actively exploring next steps in ME/CFS research, as outlined in the ME/CFS final delivery plan. This includes a new funding opportunity for a development award focussed on evaluating repurposed pharmaceutical inventions for post-acute infection syndromes and associated conditions, including ME/CFS. This funding opportunity is one component of our approach to improve evidence around the diagnosis, management, and treatment of post-acute infection conditions, including ME/CFS. We are also planning an NIHR and MRC hosted showcase event for post-acute infection conditions research, including for ME/CFS and long COVID, later this year to stimulate further research in this field.

The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health and care, including post-acute infection condition such as myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), for which research funding is available. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality, rather than designating an amount of funding for a particular condition. Welcoming applications on ME/CFS and other post-acute infection conditions to all NIHR programmes enables maximum flexibility both in terms of the amount of research funding a particular area can be awarded, and the type of research which can be funded.

The NIHR Academy offers extensive support for early-career researchers through various fellowships, training awards, and mentoring structures. For instance, through the INSIGHT Programme, they work with universities to fund research masters studentships and to attract students into research. Through Academic Clinical Fellowships, for doctors and dentists, and Predoctoral Academic Fellowships, for other health professionals, the NIHR Academy supports healthcare practitioners in integrating research with clinical practice.

Together with the Medical Research Council (MRC), which is part of UK Research and Innovation, we are actively exploring next steps in ME/CFS research, as outlined in the ME/CFS final delivery plan. This includes a new funding opportunity for a development award focussed on evaluating repurposed pharmaceutical inventions for post-acute infection syndromes and associated conditions, including ME/CFS. This funding opportunity is one component of our approach to improve evidence around the diagnosis, management, and treatment of post-acute infection conditions, including ME/CFS. We are also planning an NIHR and MRC hosted showcase event for post-acute infection conditions research, including for ME/CFS and long COVID, later this year to stimulate further research in this field.

The Government believes there is a strong case to change the system of health and disability benefits across Great Britain so that it better enables people to enter and remain in work and to respond to the complex and fluctuating nature of the health conditions many people live with today. The system must also work to support disabled people and those with health to live independently.

We are therefore working to develop proposals for health and disability reform and will set them out in a Green Paper ahead of the Spring Statement. This will launch a consultation on the proposals, with a conclusion to be set out in a white paper later this year.

This Government is committed to putting the views and voices of disabled people at the heart of all that we do, so we will consult on these proposals, where appropriate, with disabled people and representative organisations.

Ahead of the formal consultation for the Green Paper, we have already started to explore ways of engaging with disabled people and their representatives, including through stakeholder roundtables and public visits. We look forward to progressing these initiatives over the coming months.

NHS England’s long COVID and myalgic encephalomyelitis, also known as chronic fatigue syndrome, stocktake aimed to collate information about service commissioning, activity, and delivery, to provide a national overview of the services commissioned by integrated care boards as part of their core activity. The stocktake was completed for an internal NHS England committee and, therefore, there are no plans to publish the findings. However, those findings did confirm the widely recognised challenges of significant variation in care delivery across England, and a lack of comprehensive activity data.

There are currently no plans to allocate additional funding towards the myalgic encephalomyelitis / chronic fatigue (ME/CFS) final delivery plan. The ME/CFS final delivery plan continues to be developed.

The plan will focus on improving research, attitudes and education, and bettering the lives of people with this disease. The consultation responses, alongside continued stakeholder engagement via the ME/CFS Task and Finish Group, will inform the development of the final delivery plan for ME/CFS, which we aim to publish by the end of March 2025.

Backed by £240m investment, the Get Britain Working White Paper launched on 26 November will drive forward approaches to tackling economic inactivity and work toward the long-term ambition of an 80% employment rate.

We are committed to reforming the system of health and disability benefits so that it promotes and enables employment among as many people as possible. The system must also support disabled people to live independently. It is also vital to ensure that the system is financially sustainable in the long term. We are working to develop proposals for reform in the months ahead and will set them out in a Green Paper ahead of the Spring Statement later this year.

Appropriate work is generally good for health and wellbeing, so we want everyone to get work and get on in work, whoever they are and wherever they live.

Disabled people and people with health conditions, including those with Long Covid and/or ME, are a diverse group so access to the right work and health support, in the right place, at the right time, is key. We therefore have a range of specialist initiatives to support individuals to stay in work and get back into work, including those that join up employment and health systems.

Measures include support from Work Coaches and Disability Employment Advisers in Jobcentres and Access to Work grants, as well as joining up health and employment support around the individual through Employment Advisors in NHS Talking Therapies and Individual Placement and Support in Primary Care.

Employers play a key role in increasing employment opportunities and supporting disabled people and people with health conditions, to thrive as part of the workforce. Our support to employers includes increasing access to Occupational Health, a digital information service for employers and the Disability Confident scheme.

My hon. Friend raises a really important point. NHS England is due to complete a stocktake of long covid services throughout England at the end of this month. That will provide an accurate in-depth overview of not only long covid services but ME/CFS—myalgic encephalomyelitis/chronic fatigue syndrome—services. The stocktake will provide a comprehensive and accurate national picture, identify key challenges and make strategic recommendations for future service improvement, development and assurance.

No assessment has been made on the adequacy of the implementation of National Institute for Health and Care Excellence (NICE) guidance NG206 on myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). NICE guidelines are not mandatory, but the Government does expect healthcare commissioners to take the guidelines fully into account in designing services to meet the needs of their local population, and to work towards their implementation over time.

There are steps that the Government is taking to improve care for patients with ME/CFS. It is a priority for the Department to publish the final ME/CFS delivery plan. We cannot comment on the exact content of the final delivery plan at this time, but it will be shaped by the consultation responses, along with continued close engagement with stakeholders, with three broad themes of attitudes and education, research, and living with ME/CFS. We aim to publish it at the end of March 2025.

The Department is also currently working with NHS England to develop an e-learning course on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes.

Additionally, the Government funds research into ME/CFS through the National Institute for Health and Care Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. In 2020, the NIHR and the MRC came together to fund the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. Further details of the study are available at the following link:

www.decodeme.org.uk

No assessment has been made on the adequacy of the implementation of National Institute for Health and Care Excellence (NICE) guidance NG206 on myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). NICE guidelines are not mandatory, but the Government does expect healthcare commissioners to take the guidelines fully into account in designing services to meet the needs of their local population, and to work towards their implementation over time.

There are steps that the Government is taking to improve care for patients with ME/CFS. It is a priority for the Department to publish the final ME/CFS delivery plan. We cannot comment on the exact content of the final delivery plan at this time, but it will be shaped by the consultation responses, along with continued close engagement with stakeholders, with three broad themes of attitudes and education, research, and living with ME/CFS. We aim to publish it at the end of March 2025.

The Department is also currently working with NHS England to develop an e-learning course on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes.

Additionally, the Government funds research into ME/CFS through the National Institute for Health and Care Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. In 2020, the NIHR and the MRC came together to fund the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. Further details of the study are available at the following link:

www.decodeme.org.uk