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To ask the Secretary of State for Health, what assessment he has made of the adequacy of education and training of (a) medical, (b) nursing and (c) allied professions in the (i) diagnosis, (ii) treatment and (iii) management of CFS/ME. - (Holding answer 28 November 2000).

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

29 November 2000

Reference

357 c634W;357 c633W; 140546

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will list for each NHS region the number of inpatient beds that cater for the needs of people with CFS/ME; how much is spent in each region on such inpatient services; and how many NHS staff, broken down by category,...

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

29 November 2000

Reference

357 c633-4W;357 c632W; 140544;140545

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what recent research his Department has commissioned into the causes and treatment of myalgic encephalomylitis.

Asked by

Martin Caton (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

17 November 2000

Reference

356 c824-5W; 138168

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will review the ALAMA guidelines for Occupational Medicine of 1996 regarding ill-health retirement for people suffering from chronic fatigue syndrome; and if he will make a statement.

Asked by

Paul Marsden (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

19 July 2000

Reference

124472; 354 c237W

House

House of Commons

Hunt of Kings Heath, Lord

Answered by

Lord Hunt of Kings Heath (Labour)

Type

Oral answers to questions

Date

12 July 2000

Reference

615 c226-8

House

House of Lords

Hunt of Kings Heath, Lord

When the Chief Medical Officer's task force on chronic fatigue syndrome and myalgic encephalomyelitis is expected to report.

Asked by

Countess of Mar (Crossbench)

Oral questions - Lead

Status

Answered

Date

12 July 2000

Reference

615 c226-8

House

House of Lords

Hunt of Kings Heath, Lord

1st supplementary on existence of no agreed treatment for ME and allowing families to decide on treatment.

Asked by

Countess of Mar (Crossbench)

Oral questions - 1st Supplementary

Status

Answered

Date

12 July 2000

Reference

615 c226-8

House

House of Lords

Hunt of Kings Heath, Lord

Answered by

Lord Hunt of Kings Heath (Labour)

Type

Oral answers to questions

Date

12 July 2000

Reference

615 c226-8

House

House of Lords

Dept of Health

To ask the Secretary of State for Health, if he will make a statement on the work carried out to date by the CFS/ME Working Group.

Asked by

Bob Blizzard (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

3 July 2000

Reference

127701; 353 c42W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what work is being carried out by his Department to improve the services available to people suffering from ME.

Asked by

Bob Blizzard (Labour)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

9 June 2000

Reference

123266; 351 c402W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what steps he is taking to promote research into and public awareness of causes and symptoms of myalgic encephalomyelitis; and if he will make a statement.

Asked by

Laurence Robertson (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

16 May 2000

Reference

122395; 350 c70W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what recent representations he has received regarding additional funding for research into the causes of, and cure for, (a) ME and (b) MS; and if he will make a statement. - Inc figures.

Asked by

Christopher Gill (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

4 May 2000

For answer on

11 May 2000

Answered on

11 May 2000

Mr. Gill: To ask the Secretary of State for Health what recent representations he has received regarding additional funding for research into the causes of, and cure for, (a) ME and (b) MS; and if he will make a statement. [121353] Yvette Cooper: The information is as follows: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) We have recently received representations in the form of Ministerial correspondence about provision for research into, and treatment of, myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), and the perceived lack of research into diagnosis and treatment for this condition. The National Health Service research and development programme is currently supporting the following research projects on CFS/ME: A systematic review to determine the clinical effectiveness of treatments and interventions for Chronic Fatigue Syndrome/ME--University of York Family Focused Cognitive Behavioural Therapy for Adolescents with Chronic Fatigue Syndrome--King's College School of Medicine, London Chronic Fatigue Syndrome after Acute Q Fever: A follow-up study of the 1989 outbreak cohort--Birmingham Heartlands Hospital, Birmingham A randomised controlled trial of cognitive behaviour therapy for chronic fatigue syndrome--GKT School Medical School, London. Multiple Sclerosis (MS) The Department has recently received a large amount of correspondence from the public asking that additional funding be made available for research into the causes of and cure for multiple sclerosis (MS). There has also been some Ministerial correspondence and a Parliamentary Question which asked about treatment and research into multiple sclerosis during 1999. The Medical Research Council supported about a dozen projects on multiple sclerosis and associated demyelinating diseases in 1998-99 representing a spend of approximately £640,000 in that year. The Department funds research to support policy and the delivery of effective practice in the National Health Service. The Department is currently spending approximately £150,000 per year on projects related to MS. In addition, we have awarded the MS Society £15,000 per year from 1997-98 until 1999-2000 under the Section 64 scheme of grants, for their emerging therapies project.

Date

11 May 2000

Reference

121353; 349 c461-2W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what are the identifiable causes of (a) ME, (b) MS and (c) HIV/AIDS. - Including figures.

Asked by

Christopher Gill (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

12 April 2000

Reference

348 c210W; 118585

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, how many beds are currently available at the National ME Centre; how many people are currently waiting for a bed at the National ME Centre; and for what periods of time they have been waiting.

Asked by

Paul Burstow (Liberal Democrat)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

4 April 2000

Reference

347 c395W; 117515;117516

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what is the incidence of (a) ME, (b) MS and (c) HIV/AIDS, and what was the level of public expenditure, in each of the past five years in respect of each category. - Inc figures and table.

Asked by

Christopher Gill (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

21 March 2000

For answer on

3 April 2000

Answered on

3 April 2000

Mr. Gill: To ask the Secretary of State for Health what is the incidence of (a) ME, (b) MS and (c) HIV/AIDS, and what was the level of public expenditure, in each of the past five years in respect of each category. [116254] Ms Stuart: Information on the incidence and level of public expenditure on Chronic Fatigue syndrome (CFS)/Myalgic Encephalomyelitis (ME) is not available in the format requested. A number of definitions, disease descriptions or diagnostic criteria have been proposed to describe CFS/ME. However, there is no general agreement as to which should be used. This makes the results from studies on the prevalence of CFS/ME difficult to interpret and there is no agreement on the incidence of the illness. Services for people with CFS/ME are funded from baseline expenditure. The Department is currently supporting a number of projects at a total cost of £221,000 on CFS/ME research. In addition, we have also awarded the ME Association a total of £30,000 for 1998-99 and 1999-2000 and the Association of Youth with ME a total of £6,200 in 1998-99 under the Section 64 scheme of grants. Information on the incidence and level of public expenditure on Multiple Sclerosis is not available in the format requested. MS is one of the most common diseases of the central nervous system. It is estimated to affect between 80-90,000 people in the UK. However, the incidence (new diagnoses each year) is not known. Services for people with MS are funded from baseline expenditure. The Medical Research Council supported about a dozen projects on multiple sclerosis and associated demyelinating diseases in 1998-99 representing a spend of approximately £640,000 in that year. The Department funds research to support policy and the delivery of effective practice in the National Health Service. The Department is currently spending approximately £150,000 per year on projects related to MS. In addition, we have awarded the MS Society £15,000 per year from 1997-98 until 1999-2000 under the Section 64 scheme of grants, for their emerging therapies project. The table reports new diagnoses of HIV and AIDS for England in each of the last five years. As people with HIV infection may not have symptoms for some time, new diagnoses are dependent on people coming forward for testing; however, the data on new diagnoses based on clinical reports of AIDS cases are a reasonable measure of AIDS incidence. _________________________________________________________________________________________________. Year of diagnosis New diagnoses of HIV infection New diagnoses of AIDS 1995 2,412 1,587 1996 2,438 1,298 1997 2,441 960 1998 2,557 677 1999 2,289 460 _________________________________________________________________________________________________. Notes: 1. Data reported by end 1999. 2. Numbers, particularly for the more recent years, will rise as further reports are received. Funding for HIV/AIDS £ million _________________________________________________________________________________________________. Year Health Local Voluntary Public education Research Total authorities authorities organisations 1995-96 244.7 13.4 1.54 8.0 20.6 288.2 1996-97 237.7 13.7 1.63 5.2 19.5 277.7 1997-98 251.9 13.7 1.52 5.2 15.4 287.7 1998-99 281.4 13.7 1.58 4.8 16.2 317.6 1999-2000 286.4 15.0 1.60 4.5 16.0 323.5 Total 1,302.1 69.5 7.87 27.7 87.7 1,494.7 _________________________________________________________________________________________________.

Date

3 April 2000

Reference

347 c346-8W;347 c346-7W; 116254

House

House of Commons

Dept of the Environment Transport and the Regions

To ask the Secretary of State for the Environment, Transport and the Regions, if he will review the ill health retirement guidelines for ME sufferers who are members of the Local Government Pension Scheme; and if he will make a statement. - (Holding answer 13 March 2000).

Asked by

Paul Marsden (Labour)

Answering body

Department of the Environment, Transport and the Regions

Type

Written questions

Status

Answered

Date

14 March 2000

Reference

346 c118W; 114380

House

House of Commons

: Christmas recess motion speech on London Borough of Hillingdons treatment of workers with disability - the case of Andrea Morgan

Christmas recess motion speech on London Borough of Hillingdons treatment of workers with disability - the case of Andrea Morgan.

Member

John McDonnell (Labour)

Type

Proceeding contributions

Date

13 December 1999

Reference

341 c92-5

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what experiments are taking place on young patients suffering from ME/CFS; and if he will make a statement.

Asked by

Peter Luff (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

29 November 1999

Reference

99450; 340 c67W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, what research his Department is (a) undertaking and (b) funding into the causes of ME/CFS; and what assessment he has made of the prospects for the success of such research. - Including figures.

Asked by

Peter Luff (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Tabled on

18 November 1999

For answer on

29 November 1999

Answered on

29 November 1999

Mr. Luff: To ask the Secretary of State for Health what research his Department is (a) undertaking and (b) funding into the causes of ME/CFS; and what assessment he has made of the prospects for the success of such research. [99449] Mr. Denham: The Government fund health and medical research in a number of ways: The Department funds research and development to support its work on policy development and evaluation in health and social care. The Department also manages the National Health Service research and development levy which is used to support research and development of relevance to the National Health Service in hospitals, general practice and other health care settings, and to fund the NHS research and development programme. In addition, the Medical Research Council (MRC)--which receives most of its income via grant-in-aid from the office of my right hon. Friend the Secretary of State for Trade and Industry--funds medical research as part of the Government's funding of the science and engineering base. The MRC has provided support for a Small Project Grant in the area of Chronic Fatigue Syndrome, undertaken by Dr. R. K. Morriss at the University of Manchester, entitled "The role of noradrenaline in the neuropsychological pathogenesis on the chronic fatigue syndrome". The total amount awarded was £37,241 and the study was concluded this year. The NHS research and development programme is supporting the following projects: Chronic fatigue syndrome after acute Q fever: a follow-up study of the 1989 outbreak cohort--Birmingham Heartlands Hospital, Birmingham Should general practitioners manage chronic fatigue syndrome?-- University of Hull Family focused cognitive behavioural therapy for adolescents with chronic fatigue syndrome--King's College School of Medicine, London Project details of work directly funded by the Department or supported through the NHS R&D levy can be found on the National Research Register (NRR).

Date

29 November 1999

Reference

99449; 340 c67-8W

House

House of Commons

Dept of Health

To ask the Secretary of State for Health, if he will make a statement on his policy on the treatment of ME/CFS in young people and the principle of parental consent to their removal from their home for such treatment; if he will make a statement on the provision of...

Asked by

Peter Luff (Conservative)

Answering body

Department of Health

Type

Written questions

Status

Answered

Date

29 November 1999

Reference

340 c66-7W; 99453;99452

House

House of Commons

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