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1-20 of 60 results for subject:ME/CFS

Session X
2007-08

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To ask the Secretary of State for Health what provision (a) South West Herts Acute Hospital Trust and (b) South West Herts Primary Care Trust have made for chronic fatigue syndrome or myalgic encephalomyelitis services; what specific funding they receive to deliver these services; and if he will make a...

Asked by
Mike Penning (Conservative)
Answering body
Department of Health
Type
Written questions
Status
Answered
Date
5 November 2008
Reference
482 c514-5W;482 c514W; 231879
House
House of Commons

To ask the Secretary of State for Innovation, Universities and Skills if he will increase expenditure on research into the biomedical causes and consequences of myalgic encephalopathy.

Asked by
John MacDougall (Labour)
Answering body
Department for Innovation, Universities and Skills
Type
Written questions
Status
Answered
Date
24 June 2008
Reference
478 c245-6W; 213043
House
House of Commons

To ask the Secretary of State for Innovation, Universities and Skills how much has been allocated from public funds for research into the biomedical causes of myalgic encephalomyelitis/encephalopathy in 2008-09; what proportion of Government spending on research into the condition this sum represents; how much has been allocated for research...

Asked by
Vincent Cable (Liberal Democrat)
Answering body
Department for Innovation, Universities and Skills
Type
Written questions
Status
Answered
Date
12 June 2008
Reference
477 c503-4W; 209991
House
House of Commons
My Lords, the Government recognise that CFS/ME is a poorly understood condition that can be very distressing to patients, their families and carers. The long-term conditions pathway is one of the care pathways that strategic health authorities are examining as part of the NHS next stage review. The review, which is being led by local multidisciplinary working groups, will increase awareness and ensure better care for people with CFS/ME and will help to support local delivery of the NSF for long-term neurological conditions.
Answered by
Lord Darzi of Denham (Labour)
Type
Oral answers to questions
Date
2 June 2008
Reference
702 c1
House
House of Lords
My Lords, I thank the Minister for that reply. Does he appreciate that, despite the fact that it has been 40 years since the World Health Organisation recognised ME as a neurological disease and 20 years since the Department of Health did so, adults are still sectioned or deemed as lacking in capacity and children whose parents are blamed for their illness are put on the at-risk register or are made wards of court, with people from both these groups forcibly put into mental hospitals? This has been described to me as abuse by professionals. What has been the outcome of the CMO’s 2002 recommendations on the £8.5 million supposedly spent on CFS/ME, which has apparently come to nothing, and what will happen in the future?
Asked by
Countess of Mar (Crossbench)
Oral questions - 1st Supplementary
Status
Answered
Date
2 June 2008
Reference
702 c2
House
House of Lords
My Lords, the Government accept the World Health Organisation’s classification of CFS/ME as a neurological condition of an unknown cause. My ministerial colleague Ann Keen reaffirmed that position at the meeting of the All-Party Parliamentary Group on ME in January of this year. Subsequent to the CMO’s report, the Government allocated funding of £8.5 million for two years, 2004-05 and 2005-06, to set up specialist CFS/ME services where none existed previously. These centres, of which there are 13 across the country, would improve services for those with CFS/ME.
Answered by
Lord Darzi of Denham (Labour)
Type
Oral answers to questions
Date
2 June 2008
Reference
702 c2
House
House of Lords
My Lords, I am very grateful for that intervention.
Answered by
Lord Darzi of Denham (Labour)
Type
Oral answers to questions
Date
2 June 2008
Reference
702 c4
House
House of Lords
My Lords, I thank the noble Baroness for acknowledging that for many years there has been a heated debate about CFS/ME among researchers, practitioners and patients. In fact, few illnesses have been discussed so extensively. The underlying issue is whether more research and development should be undertaken in this field not just on the symptomatology but on a diagnostic test so that we can at least plan different treatment protocols. In August 2007, NICE looked at the evidence relating to treatment protocols and recommended cognitive behavioural therapy and graded exercise therapy, as there was some evidence to support their suitability in the treatment of this condition.
Answered by
Lord Darzi of Denham (Labour)
Type
Oral answers to questions
Date
2 June 2008
Reference
702 c2-3
House
House of Lords
My Lords, the Government have made it clear that they consider that CFS/ME should be classified as a neurological condition. It is for professional bodies to look at the evidence base and I will encourage the Royal College of General Practitioners to look at the WHO classification, which, as I said earlier, is that it is a neurological rather than a mental condition.
Answered by
Lord Darzi of Denham (Labour)
Type
Oral answers to questions
Date
2 June 2008
Reference
702 c3
House
House of Lords
My Lords, I have acknowledged that CFS/ME is a neurological condition, but I am not aware of the circumstances in which associated illnesses might require sectioning. The noble Countess wrote to me about one specific case and I shall respond in relation to that.
Answered by
Lord Darzi of Denham (Labour)
Type
Oral answers to questions
Date
2 June 2008
Reference
702 c3
House
House of Lords
My Lords, I am aware of the charitable contributions in this important area. In fact, many charities in this field have contributed to the development of NICE guidelines specifically in relation to children. I could not agree more with the noble Earl in emphasising the importance of engaging the family, the need for a diagnosis to be confirmed by a paediatrician and the need to support a return to education. These guidelines, which were issued as part of the NICE guidelines, have been welcomed by the Association of Young People with ME and provide a positive lever in improving services for children and young people with CFS/ME.
Answered by
Lord Darzi of Denham (Labour)
Type
Oral answers to questions
Date
2 June 2008
Reference
702 c3
House
House of Lords
Whether the current NHS review will include consideration of chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME) as a long-term neurological condition.
Asked by
Countess of Mar (Crossbench)
Oral questions - Lead
Status
Answered
Date
2 June 2008
Reference
702 c1
House
House of Lords
My Lords, is it not the case that under Section 31 of the Children Act 1989 a child can be placed in care only if he or she is suffering significant harm or is at risk of significant harm and that therefore any connection with ME can only be on the basis of a misdiagnosis?
Asked by
Lord Elystan-Morgan (Crossbench)
Oral questions - Supplementary
Status
Answered
Date
2 June 2008
Reference
702 c4
House
House of Lords
My Lords, is the Minister aware of the work of the charity Tymes Trust—I declare an interest as a patron—which specialises in supporting young people with ME, particularly with regard to their educational needs? Does he agree that recognition of CFS/ME by teachers, social workers and, indeed, GPs is of fundamental importance and that imaginative ways need to be found to help children with ME who cannot cope with mainstream schooling?
Asked by
Earl Howe (Conservative)
Oral questions - Supplementary
Status
Answered
Date
2 June 2008
Reference
702 c3
House
House of Lords
My Lords, can the Minister explain to the House why the Royal College of General Practitioners continues to insist on categorising CFS as a mental illness?
Asked by
Baroness Howe of Idlicote (Crossbench)
Oral questions - Supplementary
Status
Answered
Date
2 June 2008
Reference
702 c3
House
House of Lords
My Lords, so far as I could hear, the Minister failed to respond to the noble Countess’s point on patients with this disease being sectioned and children being put into care as a result. Would he be good enough to do so now?
Asked by
Lord Swinfen (Conservative)
Oral questions - Supplementary
Status
Answered
Date
2 June 2008
Reference
702 c3
House
House of Lords
My Lords, when I was a student, I had a professor who, when asked the cause of a very difficult disease, would usually reply, ““Nobody knows, tiddly-pom””. I suspect that ME falls into the ““nobody knows”” category. It is welcome news that pathways are being set up to look at this condition and to decide what is to be done in the health service, but how long will it be before the condition is taken seriously and protocols are in place to deal with the very real consequences for patients of this disease?
Asked by
Baroness Tonge (Liberal Democrat)
Oral questions - Supplementary
Status
Answered
Date
2 June 2008
Reference
702 c2-3
House
House of Lords

To ask the Secretary of State for Work and Pensions what steps his Department is taking to ensure that assessments for the new employment and support allowance take account of the fluctuating health cycle characteristic of people who have myalgic encephalomyelitis/chronic fatigue syndrome.

Asked by
Desmond Turner (Labour)
Answering body
Department for Work and Pensions
Type
Written questions
Status
Answered
Date
14 May 2008
Reference
475 c1620W; 203975
House
House of Commons

To ask the Secretary of State for Work and Pensions what steps his Department is taking to ensure that assessments for the new employment and support allowance take account of the fluctuating state of health which is characteristic of people who have myalgic encephalopathy/chronic fatigue syndrome.

Asked by
Janet Anderson (Labour)
Answering body
Department for Work and Pensions
Type
Written questions
Status
Answered
Date
14 May 2008
Reference
475 c1620W; 203918
House
House of Commons

To ask the Secretary of State for Work and Pensions how (a) the provisions of the Welfare Reform Act 2007 and (b) the guidance on disability living allowance published in July 2007 will improve access to benefits for people with myalgic encephalomyelitis/chronic fatigue syndrome who go to appeal to get...

Asked by
Desmond Turner (Labour)
Answering body
Department for Work and Pensions
Type
Written questions
Status
Answered
Date
14 May 2008
Reference
475 c1619-20W; 203972
House
House of Commons