1-20 of 112 results for subject:"Spina bifida"
Librarians' tools
- Search time
- 0.332 seconds
- Solr query time
- 0.002 seconds
- Search query
- subject:"Spina bifida"
- We searched for
- subject_t:"Spina bifida" OR subject_ses:12980
Type
House
Session
Year
Department
Member
More
Primary member
More
Answering member
More
Legislative stage
Legislation
Subject
More
Publisher
To ask the Secretary of State for Health and Social Care, what the evidence base is to support the use of fetal analgesia during in-utero surgery for spina bifida from 19 weeks' gestation, but not its use before the termination of a pregnancy at the same gestation.
To ask the Secretary of State for Health and Social Care, what the evidence base is to support the use of fetal analgesia during in-utero surgery for spina bifida from 19 weeks' gestation, but not its use before the termination of a pregnancy at the same gestation.
The Department does not set clinical practice. The Royal College of Obstetricians and Gynaecologists has considered the issue of fetal pain and awareness in its guidelines âThe Care of Women Requesting Induced Abortion (Evidence-based Clinical Guideline No. 7)â and âFetal Awareness: Review of Research and Recommendations for Practiceâ, which are available at the following links:
https://www.rcog.org.uk/globalassets/documents/guidelines/abortion-guideline_web_1.pdf
https://www.rcog.org.uk/globalassets/documents/guidelines/rcogfetalawarenesswpr0610.pdf
The Royal College is currently reviewing these guidelines to consider the latest evidence on fetal pain and fetal awareness. It has advised that that the difference in approach in the use of fetal analgesia for in-utero surgery for spinda bifida is related to the fetal stress response, which is not related to fetal pain and the need for the fetus to be immobilised during spinal surgery. There is also evidence that the stress response could impact ongoing development of the fetus.
My young constituent Sara Walbyoff from Calidcot lives with a rare form of spina bifida and this week has been meeting with Olympians and Paralympians at Great Ormond Street Hospital to talk about her experience of living with the condition. Sara’s family supports the campaign of Shine, the spina bifida...
My young constituent Sara Walbyoff from Calidcot lives with a rare form of spina bifida and this week has been meeting with Olympians and Paralympians at Great Ormond Street Hospital to talk about her experience of living with the condition. Sara’s family supports the campaign of Shine, the spina bifida...
I am grateful to the hon. Lady for raising this important issue and I wish Sara well. The campaign is an important one. I will pass on the hon. Lady’s comments to the Health Secretary. The question of compulsory medication is always a difficult and sensitive one, so it is...
I am grateful to the hon. Lady for raising this important issue and I wish Sara well. The campaign is an important one. I will pass on the hon. Lady’s comments to the Health Secretary. The question of compulsory medication is always a difficult and sensitive one, so it is...
To ask the Secretary of State for Health and Social Care, what steps his Department has taken to review the accuracy and objectivity of the Abortion and Abortion Care Factsheet produced by the Royal College of Obstetricians and Gynaecologists' Faculty of Sexual and Reproductive Healthcare in 2019; and what comparative...
To ask the Secretary of State for Health and Social Care, what steps his Department has taken to review the accuracy and objectivity of the Abortion and Abortion Care Factsheet produced by the Royal College of Obstetricians and Gynaecologists' Faculty of Sexual and Reproductive Healthcare in 2019; and what comparative...
The Abortion and Abortion Care Fact Sheet for schools was produced and published by the Royal College of Obstetricians and Gynaecologists and the Faculty of Sexual and Reproductive Healthcare, therefore no assessment has been made.
To ask the Secretary of State for Health and Social Care, how much funding has been allocated in 2021 for the treatment of spina bifida to the (a) Rotherham NHS Foundation Trust and (b) Sheffield Teaching Hospitals NHS Foundation Trust.
To ask the Secretary of State for Health and Social Care, how much funding has been allocated in 2021 for the treatment of spina bifida to the (a) Rotherham NHS Foundation Trust and (b) Sheffield Teaching Hospitals NHS Foundation Trust.
Information on funding allocated to Rotherham NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation Trust for the treatment of spina bifida is not held in the format requested.
The Department does not hold information on the number of individuals with spina bifida.
To ask the Secretary of State for Health and Social Care, how many people have spina bifida in (a) South Yorkshire, (b) the Rotherham NHS Foundation Trust area and (c) the Sheffield Teaching Hospitals NHS Foundation Trust area.
To ask the Secretary of State for Health and Social Care, how many people have spina bifida in (a) South Yorkshire, (b) the Rotherham NHS Foundation Trust area and (c) the Sheffield Teaching Hospitals NHS Foundation Trust area.
Information on funding allocated to Rotherham NHS Foundation Trust and Sheffield Teaching Hospitals NHS Foundation Trust for the treatment of spina bifida is not held in the format requested.
The Department does not hold information on the number of individuals with spina bifida.
To ask the Secretary of State for Health and Social Care, what recent steps his Department has taken to improve NHS treatment of spina bifida.
To ask the Secretary of State for Health and Social Care, what recent steps his Department has taken to improve NHS treatment of spina bifida.
Since 2019, NHS England has commissioned a highly specialised service undertaking open fetal surgery to treat babies with open spina bifida. Two provider units act as a single combined centre with a joint clinical fetal surgery co-ordinator and a joint surgery decision-making multi-disciplinary team. Pre-natal closure surgery has been shown to improve neurological and motor function for those babies that are in scope for pre-natal surgery. The Department does not hold specific details of funding for this surgery.
The Department is not currently carrying out work to raise awareness among healthcare professionals and 999 operators. However, warning signs of spina bifida are identified as part of a screening for spina bifida at the 20 week scan.
To ask the Secretary of State for Health and Social Care, how much funding has been allocated to the treatment of spina bifida for 2021.
To ask the Secretary of State for Health and Social Care, how much funding has been allocated to the treatment of spina bifida for 2021.
Since 2019, NHS England has commissioned a highly specialised service undertaking open fetal surgery to treat babies with open spina bifida. Two provider units act as a single combined centre with a joint clinical fetal surgery co-ordinator and a joint surgery decision-making multi-disciplinary team. Pre-natal closure surgery has been shown to improve neurological and motor function for those babies that are in scope for pre-natal surgery. The Department does not hold specific details of funding for this surgery.
The Department is not currently carrying out work to raise awareness among healthcare professionals and 999 operators. However, warning signs of spina bifida are identified as part of a screening for spina bifida at the 20 week scan.
To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of spina bifida and its warning signs among (a) healthcare professionals and (b) 999 operators.
To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of spina bifida and its warning signs among (a) healthcare professionals and (b) 999 operators.
Since 2019, NHS England has commissioned a highly specialised service undertaking open fetal surgery to treat babies with open spina bifida. Two provider units act as a single combined centre with a joint clinical fetal surgery co-ordinator and a joint surgery decision-making multi-disciplinary team. Pre-natal closure surgery has been shown to improve neurological and motor function for those babies that are in scope for pre-natal surgery. The Department does not hold specific details of funding for this surgery.
The Department is not currently carrying out work to raise awareness among healthcare professionals and 999 operators. However, warning signs of spina bifida are identified as part of a screening for spina bifida at the 20 week scan.
That this House welcomes the report on Foetal Sentience and Pain commissioned by the all-party Parliamentary pro-life group; recognises that recent research by Dr Stuart WG Derbyshire and John C Bockmann PA in the Journal of Medical Ethics supports the view that babies in the womb may feel pain from as early as 12 weeks’ gestation; welcomes the provision of pain relief for babies in the womb undergoing surgery for spina bifida between 20 and 26 weeks’ gestation; regrets the inconsistency in NHS practice that recommends pain relief for spina bifida surgery from 20 weeks’ gestation but not for abortion at the same gestation; notes that the killing of protected animals from two-thirds of gestation is subject to tighter legal regulation than unborn humans being aborted from the same stage of development; and calls on the Government to review its official guidance on fetal pain, requiring that pain relief be provided from at least 12 weeks’ gestation for all invasive medical procedures involving babies in the womb, including abortion.
That this House welcomes the report on Foetal Sentience and Pain commissioned by the all-party Parliamentary pro-life group; recognises that recent research by Dr Stuart WG Derbyshire and John C Bockmann PA in the Journal of Medical Ethics supports the view that babies in the womb may feel pain from...
To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the risk that covid-19 poses to people with spina bifida and hydrocephalus.
To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the risk that covid-19 poses to people with spina bifida and hydrocephalus.
People with spina bifida and hydrocephalus are not automatically identified as clinically vulnerable or clinically extremely vulnerable.
GPs and hospital clinicians have the discretion to add individual patients to the shielded patient list based on careful, clinical assessments of each individual’s needs. This will require expert clinical judgement on a patient-by-patient basis. If anyone is unsure if they should be following the guidnece for the clinically vulnerable or clinically extremely vulnerable. we would encourage them to discuss this with their GP or hospital specialist.
To ask the Secretary of State for Health and Social Care, how many unborn babies have received surgery for open spina bifida; and how much money has been spent on those surgeries since the introduction of the open spina bifida surgery in 2018.
To ask the Secretary of State for Health and Social Care, how many unborn babies have received surgery for open spina bifida; and how much money has been spent on those surgeries since the introduction of the open spina bifida surgery in 2018.
NHS Digital data collection for open repair of spina bifida in a fetus was introduced from 1 April 2020. However, finalised Hospital Episode Statistics data is only available up to March 2020, so we are unable to provide this information.
NHS England and NHS Improvement commissioned a United Kingdom-wide ‘Open fetal surgery to treat foetuses with open spina bifida’ service since November 2019. Since the start of the service to the end of July 2020, surgery has been undertaken on 13 unborn babies and the total cost of these surgeries was £164,021.
To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with spina bifida in each of the last three years.
To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with spina bifida in each of the last three years.
The following table shows the number of reported cases of spina bifida in England in the last three years for which data are available. These data include all reported cases of spina bifida registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which is available at the following link:
https://eu-rd-platform.jrc.ec.europa.eu/eurocat
These data exclude spontaneous miscarriage before 20 weeks gestation and cases of spina bifida occulta.
Number of reported cases of spina bifida in England, 2015 - 2017
Year of birth | Number of reported spina bifida cases | Total number of births (coverage) | Total number of births in England | Estimated number of cases for England |
2015 | 75 | 141,474 | 667,351 | 354 |
2016 | 204 | 329,301 | 666,050 | 413 |
2017 | 181 | 320,013 | 649,330 | 367 |
Source: https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data
The following table shows the estimated number of cases of congenital heart disease in England in the last three years for which data are available. These data include all reported cases of CHD registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which can be viewed at the following link
https://eu-rd-platform.jrc.ec.europa.eu/eurocat
This is likely to be an under-estimate of the actual number of cases as milder forms of congenital heart disease are often diagnosed later.
The estimated number of reported cases of congenital heart disease in England, 2015 - 2017
Year of birth | Number of reported CHD cases | Total number of births (coverage) | England Total number of births in England | Estimated number of cases for England |
2015 | 706 | 141,474 | 667,351 | 3,330 |
2016 | 2,169 | 329,301 | 666,050 | 4,387 |
2017 | 2,188 | 320,013 | 649,330 | 4,440 |
Source: https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 14 February 2019 to Question 217544 on Spina Bifida: Surgery, what estimate he has made of the average cost of pain relief that will be administered an unborn baby prior to undergoing that fetal...
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 14 February 2019 to Question 217544 on Spina Bifida: Surgery, what estimate he has made of the average cost of pain relief that will be administered an unborn baby prior to undergoing that fetal...
The tariff that has been developed for spina bifida fetal surgery includes an estimate of around £800 for fetal drugs which includes drugs for pain relief. However, the actual cost will vary on a case by case basis dependent on the clinical circumstances.
To ask Her Majesty's Government whether their consultation on the proposal to add folic acid to flour will include evidence from health economists on the costs to society and the NHS of spina bifida.
To ask Her Majesty's Government whether their consultation on the proposal to add folic acid to flour will include evidence from health economists on the costs to society and the NHS of spina bifida.
The Department is working closely with economists and analysts to estimate costs to society and the National Health Service of spina bifida and other neural tube defects. We are keen to gather further evidence through the consultation and we welcome responses from all interested parties.
The impact assessment will be revised in light of the consultation and published after the consultation closes.
To ask the Secretary of State for Health and Social Care, pursuant to the Answers of 6 February 2019 to Question 214478 on Foetuses: Analgesics and of 26 February 2019 to Question 223137 on Abortion, whose role it is to oversee clinical practices to ensure (a) consistency of practice and...
To ask the Secretary of State for Health and Social Care, pursuant to the Answers of 6 February 2019 to Question 214478 on Foetuses: Analgesics and of 26 February 2019 to Question 223137 on Abortion, whose role it is to oversee clinical practices to ensure (a) consistency of practice and...
Individual organisations should have in place their own clinical governance and ensure their clinical practices are in line with any national guidelines. It is the role of the Care Quality Commission to monitor, inspect and regulate healthcare services to make sure they meet fundamental standards of quality and safety.
Healthcare professional regulators, including the General Medical Council and the Nursing and Midwifery Council, are responsible for assuring the fitness to practise of healthcare professionals, and can take action against professionals who do not meet the standards for professional conduct set by the regulators.
To ask the Secretary of State for Health and Social Care, whether painkiller will be administered to unborn babies with spina bifida who undergo spinal surgery; and at what age those unborn babies will undergo that surgery.
To ask the Secretary of State for Health and Social Care, whether painkiller will be administered to unborn babies with spina bifida who undergo spinal surgery; and at what age those unborn babies will undergo that surgery.
Spinal surgery for spina bifida for babies in the womb is among new, innovative treatments that will be routinely available on the National Health Service for the first time.
The procedure for unborn children with spina bifida, whose spine and spinal cord do not develop properly, allows pregnant women to be treated closer to home and their families.
Pain relief for the unborn baby will be delivered intra-operatively. This is administered before the fetal surgery, after the uterus is opened. The fetus will be monitored during the procedure by ultrasound to check the fetal heart rate. The surgery takes place between 20 and 26 weeks of gestation.
This proposed new treatment was independently assessed for its clinical benefit and cost by the Clinical Priorities Advisory Group comprising doctors, health experts and patient representatives.
To ask the Secretary of State for Health and Social Care, with reference to the announcement, Spinal surgery for babies in the womb on the NHS, published by NHS England in December 2018, whether painkillers will be administered to the unborn baby; and at what age unborn babies will have...
To ask the Secretary of State for Health and Social Care, with reference to the announcement, Spinal surgery for babies in the womb on the NHS, published by NHS England in December 2018, whether painkillers will be administered to the unborn baby; and at what age unborn babies will have...
Spinal surgery for spina bifida for babies in the womb is among new, innovative treatments that will be routinely available on the National Health Service for the first time.
The procedure for unborn children with spina bifida, whose spine and spinal cord do not develop properly, allows pregnant women to be treated closer to home and their families.
Pain relief for the unborn baby will be delivered intra-operatively. This is administered before the fetal surgery, after the uterus is opened. The fetus will be monitored during the procedure by ultrasound to check the fetal heart rate. The surgery takes place between 20 and 26 weeks of gestation.
This proposed new treatment was independently assessed for its clinical benefit and cost by the Clinical Priorities Advisory Group comprising doctors, health experts and patient representatives.
Spina bifida is one of the most prevalent causes of infant mortality and disability, and a campaign has been running for quite a long time to try to fortify flour to prevent it. Successive Governments have ducked the issue, so will we now please seize it?
Spina bifida is one of the most prevalent causes of infant mortality and disability, and a campaign has been running for quite a long time to try to fortify flour to prevent it. Successive Governments have ducked the issue, so will we now please seize it?
We are continuing to review the advice from our expert advisory groups on safe levels of folate intake, but, continuing our tradition of announcing things to the House first, I want to inform the House today that we are going to issue a public consultation, as of now, on adding folic acid to flour.
We are continuing to review the advice from our expert advisory groups on safe levels of folate intake, but, continuing our tradition of announcing things to the House first, I want to inform the House today that we are going to issue a public consultation, as of now, on adding folic acid to flour.
We are continuing to review the advice from our expert advisory groups on safe levels of folate intake, but, continuing our tradition of announcing things to the House first, I want to inform the House today that we are going to issue a public consultation, as of now, on adding folic acid to flour.
Spina bifida is one of the most prevalent causes of infant mortality and disability, and a campaign has been running for quite a long time to try to fortify flour to prevent it. Successive Governments have ducked the issue, so will we now please seize it?