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Written question asked by Jim Shannon (Democratic Unionist Party) on Wednesday, 2 October 2019, in the House of Commons. It was due for an answer on Monday, 7 October 2019. It was answered by Caroline Dinenage (Conservative) on Tuesday, 8 October 2019 on behalf of the Department of Health and Social Care.

Spina Bifida

Question

To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with spina bifida in each of the last three years.

Answer

The following table shows the number of reported cases of spina bifida in England in the last three years for which data are available. These data include all reported cases of spina bifida registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which is available at the following link:

https://eu-rd-platform.jrc.ec.europa.eu/eurocat

These data exclude spontaneous miscarriage before 20 weeks gestation and cases of spina bifida occulta.

Number of reported cases of spina bifida in England, 2015 - 2017

Year of birth

Number of reported spina bifida cases

Total number of births (coverage)

Total number of births in England

Estimated number of cases for England

2015

75

141,474

667,351

354

2016

204

329,301

666,050

413

2017

181

320,013

649,330

367

Source: https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data

The following table shows the estimated number of cases of congenital heart disease in England in the last three years for which data are available. These data include all reported cases of CHD registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which can be viewed at the following link

https://eu-rd-platform.jrc.ec.europa.eu/eurocat

This is likely to be an under-estimate of the actual number of cases as milder forms of congenital heart disease are often diagnosed later.

The estimated number of reported cases of congenital heart disease in England, 2015 - 2017

Year of birth

Number of reported CHD cases

Total number of births (coverage)

England Total number of births in England

Estimated number of cases for England

2015

706

141,474

667,351

3,330

2016

2,169

329,301

666,050

4,387

2017

2,188

320,013

649,330

4,440

Source: https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data

Secondary information

Type
Written question
Reference
293583
Session
2017-19
Grouped for answer
Yes
Subjects
Spina bifida
Contains statistics
Yes
Link
View this Written question on www.parliament.uk