Skip to main content

Written question asked by Sureena Brackenridge (Labour) on Friday, 10 April 2026, in the House of Commons. It was due for an answer on Wednesday, 15 April 2026 (named day). A holding answer was provided on Thursday, 16 April 2026. A substantive answer was provided by Sharon Hodgson (Labour) on Wednesday, 29 April 2026 on behalf of the Department of Health and Social Care.


ME/CFS: Health Services

Question

To ask the Secretary of State for Health and Social Care, for what reason the action relating to a specialised service for patients with very severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome was included in the Final Delivery Plan without full consideration of system constraints affecting its implementation.

Answer

Integrated care boards (ICBs) are responsible for the commissioning of specialised services that meet the needs of their local populations. ICBs are expected to commission services in line with National Health Service expectations of care. NHS England supports ICBs through statutory guidance, service specifications, and the Strategic Commissioning Framework, but decisions on commissioning and service configuration ultimately rest with individual ICBs, based on local need. This is also the case for the commissioning of services for all levels of severity of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS).

The action within July 2025’s final delivery plan on ME/CFS, to consider whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS has been delayed until April 2027.

Officials in the Department and NHS England are currently considering, along with ME/CFS stakeholders, interim measures to support patients with very severe ME/CFS, including referencing severe and very severe ME/CFS in a new template service specification for mild and moderate ME/CFS.


Secondary information

Type
Written question
Reference
126003
Session
2024-26
Grouped for answer
Yes
Subjects
ME/CFS Health services
Link
View this Written question on www.parliament.uk